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Priestess
08-08-06, 02:44 PM
I just got back from day 1 of my HCG test; "HCG stands for Human Chorionic Gonadotropin". The idea of the test is that the doctor, who insists I'm faking everything, gave me a "before" test of baseline hormone levels, a shot of HCG, and two follow-up blood-drawings to see how the hormone levels change. The 2'snd follow-up being tommorow.

If you give HCG to a woman, it's supposed to trigger ovulation, and then fool her body into thinking it's pregnant, and release pregnancy hormones & stuff.
If you give it to a man, his testosterone level is supposed to go sky-high, and stay elevated for about a week.

The doc wanted this test to prove that I'm faking and deliberately making myself too sick to continue living. He's hoping my testosterone will spike up and that he'll have the perfect excuse to not treat my health problems.

Well, for good or for bad, I'm now in the midst of HCG. And here are my limited observations so far.

1) I don't think my testosterone has gone sky high. It went up a lot when they gave me the ACTH stimulation test back in the spring. And I don't feel like that at all.

2) I'm allergic to HCG. It's made me start breaking out in hives in scattered places, and in a few places like one of my arms, I seem to have developed faint red tiger-stripes.

3) for the first two and a half hours, I had a severe pain in behind my bladder, somewhere near the suspected female parts. And it didn't matter whether I was trying to walk or if I just sat still. But then it just stopped.

4) I've spent the entire time since the injection feeling woozy, dizzy, and like I had vertigo. And being on the edge of nausea and vomitting.

5) I'm also very tired and sleepy, even though I was relatively fresh and awake before the injection.

6) Afterwards, I developed an estrogen-migraine so bad that I can't see through the aura in my right eye. Estrogen seems to be the only thing that gives me migraines.

7) I also feel wet inside, but that's another matter.

All in all, I'd have to say HCG sucks, and I'll be pretty disappointed if I went through all this and the docs don't offer me some medical treatment after this.

Priestess
08-08-06, 10:28 PM
An update from almost 12 hours after the HCG shot, a new pelvic pain has appeared, similar to the first one, but on the right side instead of the left. The migraine persists, so does the extreme nausea. If there was any testosterone surge at all, then I haven't felt any aggression/sexuality response from it. I wonder if these observations forewarn good or bad test results? We will see.

fraulein_Maria
08-09-06, 12:01 AM
Congratulations! Welcome to the club of miserable woman-hood. You are currently experiencing a really bad case of PMS + unmistakable endometriosis. You've got uterine tissue in there (somewhere). hopefully, there has been a nurse checking up on you, and DOCUMENTING everything you are SAYING.

Priestess
08-09-06, 09:00 AM
Congratulations! Welcome to the club of miserable woman-hood. You are currently experiencing a really bad case of PMS + unmistakable endometriosis. You've got uterine tissue in there (somewhere). hopefully, there has been a nurse checking up on you, and DOCUMENTING everything you are SAYING.

At two hours post-injection, I was seen by the phlebotomists, their impression seemed to be that my symptoms were sincere. After that, just my mother and her cousin (they were visiting together)

I have umm mixed feelings about this club I've just been inducted into :help: :2in1:
Can't I just have the good stuff and skip the bad parts? :rolleye13

fraulein_Maria
08-09-06, 01:30 PM
I have umm mixed feelings about this club I've just been inducted into :help:

>>>> we don;t get to choose. but cheer up. you now have BITCHING RIGHTS :) <<<<


Can't I just have the good stuff and skip the bad parts?

>>>> this is earth. not heaven. its not hell either, it just feels that way sometimes. hell is in alabama. ask monhblume

Kailana
08-09-06, 06:12 PM
Hiya Priestess, I thought you were hoping this would happen. Results on the female side of things. Rather then the male, as you say , "what the doctors were hoping for".

i am sure it is kinda unsetling, as your sysmptoms dont sound oall that pleasurable. But, Won't your Doctors comprehend that you were right. They may at least say there sorry for doubting you. Then again i haven't experienced that so who knows. It is quite possible that your doctors are as moronic as mine. I should rephrase that, as most of mine. My Current general practitioner and endocrinologist treat me with respect. All the others though are idiots, some of em sadistic butchers.

anyways, should your doctors still refuse tooo listen to you. You may want to get new ones.


Best wishes and i hope you feel better soon.

Priestess
08-09-06, 06:38 PM
Hello Kaila,
Right now, I think I'm hoping for any results that would force the doctors to heal whatever is wrong. One thing is that the docs have decided on their own requirement, that if the tests were to show "male" then they will not try to solve my health problems, not at all. But there is clearly a lot wrong, and they say it themselves, but if they call me "male" then they will continue to accuse me of doing it to myself.

So really, they are forcing me to hope that the tests show "female", because that's the only way around the obstacles they created. But at this point, maybe what I hope for doesn't count in anyone's eyes except my own. I want to live, and find some sort of happiness. And my personal requirements aren't gender specific, there's more than one answer to these questions. I've only gotten to the situation I'm in because of desperation, and acknowledging to myself that where I was before wasn't getting me any closer to fulfillment. I had nothing left to lose.

Kailana
08-09-06, 06:54 PM
I understand that. it took me a bit to get there too. I hope everything works out ok for you.
best wishes, with hope, and understanding.

Priestess
08-10-06, 03:00 PM
Just a 52-hour update

There's still some lingering nausea and allergic reaction to the HCG, but all in all, the effects are starting to fade away. In fact, I'm starting to feel better than I was before I got the injection. The pelvic pain is on vacation, for the first time in a long while. I've yet to notice any testosterone surge, though I did seem to feel an estrogen surge. And although I'm still sort of tired out, my mental state seems a bit more upbeat than pre-injection, though if the doctors still aren't convinced of my sincerity then that might change. And I've actually been a little bit creative today. So, hopefully all will turn out well.

Priestess
08-18-06, 03:06 PM
Some of the results are back from my HCG test, namely the testosterone and estradiol levels. For the other hormone levels they tested, the records just say "results missing".

I'm not sure what the endo's interpetation will be, but my T-levels seem to show that I don't have working testes. My T-level didn't go any higher than it already gets on a monthly cycle, which is below the male range. The HCG made my estradiol rise to double.

In other news, of the two radiologist's reports, of the one saying I have female organs vs the other which said I'd previously had a sex-reassignment surgery-

I have a conference in three weeks. Between me; my primary physician; the witness of my choice; Dr Hadley, who issued the report that I have female organs; and the hospital's "Risk Management" excutives. This was their idea.

My primary doctor indicated that Dr Hadley intends to officially recant his report, to say that not only are there no female organs but no abnormalities at all, so that therefore I'm not experiencing any health problems. And that the executive are there to say "too bad and tough luck, it's not our concern"

Dr Manzi, who said I'd had previous surgery, was terminated from his job and can no longer be located to testify in the matter. My primary physician believes that this means his report doesn't count.

Unless the endo, Dr Taylor, comes along wiyth a diagnosis to save the day, there is no longer any chance of treatment, neither for IS nor for the very real and painful symptoms I've been having, whatever they are. Which seems tragically unlikely given that he was calling my female-ish hormone tests the result of trickery a mere 2 weeks before the HCG test.

This is how it ends, with plenty of indicators but no diagnosis, and everyone covering their behinds. I think though that I may consider Aimee's idea, before the time of this conference.

Kailana
08-18-06, 07:35 PM
i feel for you. Sometimes i find it amazing, at how bad you can be treated, Sorry, thats all i can say.

Anger, bring a baseball bat to the meeting. ?

Call em all bigots, write your paper, who knows just dont give up.

Priestess
08-18-06, 08:09 PM
i feel for you. Sometimes i find it amazing, at how bad you can be treated, Sorry, thats all i can say.

Anger, bring a baseball bat to the meeting. ?

Call em all bigots, write your paper, who knows just dont give up.

At right now, I'm too weak to lift a baseball bat. Too weak to walk 1/10'th of a mile. Half the time need help to stand. Episodes of hard to breath & breathing has strange sound to it, when I can't talk louder than a whisper. My hands and feet always hurt and tingle like electric shocks. To fight back, you need to be alive. I didn't want to give up, want to live, live happily ever after. They won't let me. The reaper won't.

sparklingdreams
08-23-06, 10:15 AM
I HATE DOCTORS!!!

When my Early-Onset Generalized Dystonia started getting bad,

I had similar problems. All the Doctors I saw wanted to connect that and my CAH, which never got me anywhere. So I started keeping that part away from anyone I was seeing about my Dystonia. And things went much better.

But all together I still ended up seeing more that 30 to 40 Doctors and Specialists and over one year to get a diagnosis, but I'm convinced that was a big part of what helped me get a diagnosis.

As for your GP and Endro's if they're going to treat you like that because you're getting sick. So I would suggest you start over with new Endro's and GP... and focus on each issue separate and thanks to Hipaa laws you can keep each issue separate without a problem.

As for your surgical Dr. quitting or being fired so his statements are no longer valid that's not right unless his creditability is in question, but regardless his surgical records are still your's to get, again thanks to Hipaa... write them, call them, stalk them, and get your records.