Brave

[JaneWilde]

Hello,

I just want to say, as an outsider looking in here, i think you are all very brave in a way that i am never going to be or understand. it may seem like a pathetic gesture - and i am sorry if it is - but i just want you all to know that i admire you very much.
don't feel obliged to respond to this, but if you ever feel the need to talk to someone who isn't intersex but also isn't completely screwed in the head, let me know.
I also have access to a bunch of prominent doctors, one of whom is a very well known endocrinologist, so if you have any burning questions that you want answered for free, let me know.

[Priestess]

Hello Jane,

Welcome to our forums. Please don't feel put off if perhaps only a few people respond, it's not you, things have been quiet here lately, maybe due to the holiday season. Though I suspect things will also improve once the main website is repaired. We had an attack by a malicious hacker a short while ago.

Sometimes our individual circumstances force us to either develop courage or else suffer from unpleasant destinies. While others here seem naturally bravehearted. Thank you for saying so, the reminder helps as a further encouragement.

Knowing many doctors could be helpful. There are a few people here who have been treated like medical mysteries by their physicians, and then never receive any appropriate medical treatment. I'm sure that at least one or two people here are likely to ask you questions.

I hope you're enjoying a pleasant summer in Melbourne :wavey:

-- Melissa

Hello,

I just want to say, as an outsider looking in here, i think you are all very brave in a way that i am never going to be or understand. it may seem like a pathetic gesture - and i am sorry if it is - but i just want you all to know that i admire you very much.
don't feel obliged to respond to this, but if you ever feel the need to talk to someone who isn't intersex but also isn't completely screwed in the head, let me know.
I also have access to a bunch of prominent doctors, one of whom is a very well known endocrinologist, so if you have any burning questions that you want answered for free, let me know.

[Sunshine1]

This post here reminds me of how the different ways that "normal" people need to categorize people that have any medical issues. I wish that I could find that fucking article because it was really cool.



Dear Student,

Why on earth would you admire me?

Why the fuck would you think I'm so brave?


You don't stand above children with that endo of yours ....do ya? during genital exams? and go what a strong child you are. We just want to take a peek.

Are you some medical records clerk? who are you and why the fuck would you admire me?

Why the fuck do you consider yourself an outsider? pity the poor people with the medical conditions ....you so brave..... What the fuck?

I got a question for ya sweet pea.....Why are Endos afraid of big clitorises and why do they shove people into gender or offer up a surgeon to slice and dice genitals because they don't look like others. Here is something for your prominent Endo Fuck him golly gee prominent? lick his boots ....prominent Endo how about listen to your prominent patients ...thou shall do no harm and don't fucking TOUCH Me or Slice me untill I say so.

Your not screwed in the head? but you judge others to be? How above everything You are.


Do you even know the names of the different medical conditions that may cause intersex physical characteristics?

How do you know that you don't have an medical condition that is under the intersex umbrella?

A very well know Endo in Australia ....a ped Endo? I know who that fucker
is.

Answer me.

[Priestess]

Oh. I thought she meant brave as in comparison to how a lot of non-afflicted persons might consider themselves as theoretically having a hard time coming up with the courage to even talk about the subject if they were a parent/loved one or in our shoes. In a lot of people's minds, IS is more embarressing than being gay, and look at how many otherwise normal people spend their lives in a closet over that.

[JaneWilde]

I am sorry if i offended you with my support. I think you have misunderstod my intentions.
first of all, the endocrinologist i know specialises in diabetes, and has no interest in doing anything to you. he has no vested interest in intersex operations, that's why i mentioned him. also, i must say i do not think you speak for everyone when you say you want no medical intervention.
second, i didn't say, nor do i think that you are screwed in the head.
thirdly, i think that i am an outsider here because this is a forum for intersex information, and i imagine that i am in the minority in that i don't have (that i know of) any intersex traits.
fourthly, even though you clearly don't like or respect me, i do admire you. and i would like to differentiate that in the strongest terms from pitying you. pity would imply i think lesser of you, which i don't. rather greater. I offer my friendship rather than my pity.
And finally, if you are going to get hostile with me, have the decency to use proper english.
And thankyou for responding, Melissa. i am enjoying a supernaturally cool summer in melbourne.

[Sunshine1]

Dear Student,

I'm guessing you are what I first mentioned from an article that I read and because I fucking need it? I can't find it but it was a good article and was a wonderful perspective on how "normal" who the fuck is normal anyway? categorize people with medical issues becuase it helps them feel better.

You aren't comfortable talking with different types of people without thinking it's personal against you. There is a difference between a fucking verb and a noun. That isn't attacking you but to show that I never called you names but use words that you find offensive ....yep I am an ugly rowdy American ... I also tell people my endo is Fucking Brilliant ....although it would of been nice to of been treated earlier for the thyroid condition but hey I still love him and he is fucking sexy ....so it's all good.

I think you must be a sweet girl that doesn't have a clue ....shit I love my endo and the old mother fucker ped endo too But Yep Should of asked ..thou shall do no harm ...and slicing and dicing my genitals without my permission wasn't the way to go or touching me either and they do know that know and had the class to say sorry. So - you think we should be sliced and diced without asking us? Your psot was rather interesting in your dominance and I could imagine you shaking your finger at me .....no, in my post ....I didn't clam to speak for anyone but me and that is why ...ummmm wrote don't touch me and not us .....but it seems like from what you wrote that you feel it's fine to alter ...medical intervention my body without my permission? just because? Sliced and diced to fit into your fucking ideal? I don't assume but you wrote " I don't think you speak for everyone when you say you don't want medical intervention" So, you are on of those that are for infant and childhood genital reconstruction without the actually person that owns it permission and there is no medical danger? Do you know anything about medical conditions that may be consided intersex by the medical community ....who are you? are you a clerk in medical practice that has been reading patients records? are you a med assistant or nurse that has stood over someone like me when I was a child and watched with curiosity as the doctor did his little peek, pull and poke to make sure our genitals matched yours. Ain't nothing brave about that crap lady.....it sucks and strips people of dignity.


You think "greater" of people with medical conditions? that goes back to that article where those that don't or know of conditions need to put others to make themselves feel OK .....shit nobody is any greater than anyone ..nobody is perfect ....hell Late Onset CAH is 1 in a hundred people and the Intersex Society of America ...the last time I checked ...likes to sweep them into their intersex world as well and that is too fucking funny ......that one endo that they got is so hot in a geeky intelligent way .....A fantasy is that he is checking my thyroid as I play with his hair ...ohhh lost in that thought ok back to the adrenal gland shit and yep a small portion of girls are born with what the heck is that external genitals ....who the fuck knew that the adrenal gland could do that shit along with adrenal crisis that may kill you and some girls are born with enlarged clitorises ...are you one of those that need enlarged clitorises to be sliced and diced? I've spoken with men about this and they are like fuck Aimee where are your friends WITH the big Clits ...we like that and when I say half the women with CAH are lesbians or bi- sexuals ..they go...are you? with hope in their eyes? men love to watch lesbians and hope the woman they marry is bi sexual but I just like men .... and also the way I was born and they were that is something that i know nothing about and were really interested in the whole metabolic endocrine pathway and the results of waht happens when it gets fucked up. Yep.... used the word pseudo hermaphrodite secondary to CAH- aint's spelling it out today and they told me of relatives that also had medical issues ...everyone at one time or another will have medical issues and to think greater of someone when they have them is to set yourself up because we are just people. I was watching South Park and drunk of my ass when the fucked up cartoon characters went your Mother is a Hermaphrodite ....I laughed my ass off because nothing is excluded from that cartoon friends looked at me for a second and they laughed as well ....life isn't perfect and the world is fucked up- normal people are boring but really in a dream world because every human being has "five medical issues" just floating around but it just didn't come out in them. Genetics? the human herd isn't perfect :smile:

Please don't judge or assume - I could be crazy as a mad hatter that just flew in on the milky way ....shit ....I got no fucking I idea who is crazy or not and I'm the last one to judge.

Your Endo ...is a diabetic endo? most are and going on how prominent he is? ick.. ick...Just be real..Ok? you made it seem like this could be the one that could help people that think they may have some sort of intersex condition but aren't having much luck here. I don't think you ment it but it seems like false hope or playing with peoples heads. It makes me think that you work in this doctors group practice bases on the tome you took in the second post and lack of any emotion when I wrote about genital exams or surgery because it seems like to you and I'm guessing that It's Ok with you that doctors do whatever ....you totally dismissed what I had to say about nooo please no touching without patient permission and please don't surgically change patient without permission. I do have empathy for women like you .....and you seem really fucking sweet. I'm understanding that you need people to look a certain way and after all just fixing what the fucking adrenal gland did forthe patients best interest never mind the patient way fine with they way they look and would be for awhile but was shattered by the need of the medical intervention to make my genital area look like yours. Ever have a good surgeon finger you at ten because he tought sticking his finger in you was far less traumatic than the manual dialators they were shoving in the next child. He needed to see that his man made canal was open for business and I was ten ....medical intervention ???? fuck that. I do have respect and actually like that old asshole even though he ruined my life ....the fucker meant well and did have the class to say that "medicine isn't right but it is forever changing" I fucking respect that a lot. So did you get any of this? Medical conditions suck and we have people that step up to the plate and don't always do or say the right things but they change and learn based on pateint input and positive or negative outcome. Medicine is a fucking cool artform.

Why on earth would you admire me?

Hummm ?? a person that you doesn't have the decency to use proper english or think I'm brave or better?

Maybe this is the best english for me and I didn't call you names or I don't think wrote sliced up to fit into your world .........sad that you can't take people for who they really are.

Have you even read about CAH or any other condition?



Dear Priestress,

How are you? Yep, many people are embarrased by whatever medical conditions......shit... I was given up for adoption because of it....others people have told me that how I was born and her daughter was born was ...ewww gross and had a nurse tell me that born like that is weird those are their opinions and the way some people process waht may happen with the human condition. I read my medical records when I was ten and waiting for the gang bang student exams ....shit .... I read pseudo- hermaphrodite secondary to CAH at ten and went yep that makes sense ..it was causes by a fucked up adrenal gland condition and props to medicine for figuring that out- I have a ball with gender and the traumatic part was others that needed to correct how I was born without chatting with me- it wasn't tramatic to me and the only people that were in my pants were the endo and his students ...I wasn't confused gender wise and really din't give it thought as a kid ...I was me and they did get lucky in that I do fit in the female side but the traumatic part was being "shoved" father into gender ....booo they scare you into their idea of gender but my identity which is in the female side also wasn't allowed to surface... the doctors are good fuckers that ment well and they've learned to make things better for each generatio . When I was born ...nope externally nobody knew what the fuck I was and that is how explain it to people and only a small portion of girls with CAH are born like this .....I think it is a freaky part of the condition but really it is just a boring adrenal gland condition. There are lots of freaky medical conditions and I think that is what is interesting about the human condition. I met someone that had two Gall Bladders and I thought that was freaky.

Happy New Year to you both.

[Sunshine1]

You are a medical student then?

You did one of those exams? got to chat about it with your "prominent" endo and then all the brave and admire crap for your guilt?

Come on ....who are you?

WHY WHY WHY DO YOU ADMIRE? ANSWER ME.

[Andre]

Aimee;

WHY WHY WHY DO YOU ADMIRE? ANSWER ME.

I know this question was not directed to me but may I ask you something ?

What is there not to admire about yourself ?

Andre

[Priestess]

Hello Aimee,
I'm rather dehydrated at the moment. I keep sliding in and out of delirious. Delirious isn't fun, I keep having half-awake dreams of giant one-eyed snail monsters. I'm kind of woozy while concious.

I think I'm starting to hallucinate. About an hour ago, I watched an empty can of chowder move about 18 inches sideways across the countertop, making a small scraping sound as it went. Things were never that weird even when I used to live in a supposedly haunted house.

The prescription pain pills aren't enough to prevent me from crying over how bad my pelvis hurts. The hurt even wakes me up from when I'm asleep. Calls to my doctors are ignored. They've washed their hands of me, thrown me away.

I've tried to contact experts, some of them famous. Milton Diamond said I should find a lawyer, then he stopped responding to my messages. Other experts never reply in the first place, like Dr de la Chapelle at OSU. The NIH lost interest in me as soon as they decided my abnormal adrenal levels didn't belong in their funded CAH study. Everyone says there ought to be some solution, some people say they know what it is, but no ever tells me who I can contact for real medical treatment.

[JaneWilde]

No i am not a medical student. I am not a science student. I am not a biomed student. I have no affiliation with the medical profession. My association with this endocrinologist is entirely unrelated. And i wasn't suggesting that he was the answer to anyone's prayers, i was suggesting he might know the answer to a question someone might like to ask.

Why do you keep saying i want to cut you up? You keep bringing that up. you've constructed some kind of idea of me that has no actual correlation to me. I never visit the doctor's surgery.

i don't really understand what you are trying to say to me, or what you want me to say to you. If you don't want my support or admiration, then why did you even respond to me? What exactly are you trying to prove to me? That you can get along fine without me and my admiration? good for you. That my notions and sensibilities are misguided? well, i don't think you or i can make that judgement. you are not obliged to accept my admiration, or even talk to me.

“The greater part of the world's troubles are due to questions of grammar” - Michel de Montaigne

[Dianne]

Please try not to rake the hostilities personally Jane. Thank you for dropping by and for your interest.

[Sunshine1]

Dear Dianne,

My fucking post have nothing to do with being hostile and if you would read each then you would see that but I have the realization that maybe you can't and that is fine. I supported and tried to understand what you wrote about your kid but fucking dumb ass me :smile: isn't going to get the same from you.



Dear Student,

Like I wrote in another post, I think you must be a sweet kid/lady/ non- gendered human that had no fucking clue about any of this and thus asked your position on infant and kid genital surgeries and/ or if you even knew anything about the medical conditions that may fall under the intersex umbrella.But, you couldn't or wouldn't respond to any of that and thus you are the type that might be afraid of medical conditions and goes around even in real life that you admire people that have anything of that nature? Unlike the above poster who wants to shit on me like most people, I'm asking you direct questions and that might be a bit much for you. The post from Andre is right on the money with all this.

My next guess is that you actually must have diabetes or know someone that does and just found this site somehow? You seem to be comfortable putting this endo up for answering questions from the internet about cases he has no clue or actual real history about. Another guess is that you are this endos wife, girlfriend or maybe even daughter? and was reading things on his desk at home? ......I don't know because you aren't into telling where you came from but nobody tells us anything


I was asking you why and what do you fucking admire about someone? and I thought that might evolve into an interesting thread of what and why people admire each other ....see I ain't fucking deep ( the word fucking being used as a verb? or an adverb? but it was never used directly at you) but realized that this just lip service given because you can't articulate as to why and that is fine. You wrote about thinking as others as "greater" and that is fucked up becuase nobody is greater than yourself and don't put someone on a pedestal becuase they have some fucked up medical condition because they just people and get orney and grumpy as the rest. I gave up on finding that fucking article but it was really good and went on how people catagorize people with conditions


I also posted in the other ones that maybe this is the way I talk and the best to express myself with a realization that you might not understand people having different types of medical conditions, being from all walks of life, and different social economic backgrounds. I noticed your grammer quote at the bottom of your post - why have to follow fucking grammer and be proper ....and realized that this person hasn't even read anything about CAH or other conditions liked I had hoped and that is when I know that this is just fluff stuff ummm like the I admire your shoes type of stuff?

I justed wanted to know what and why you admire?

Why would you put anyone greater than yourself?

Your position on infant and child genital surgeries?

What you think about child genital exams done to admire the work they did?

What you think about genital surgeries then and now? (Sigh) the fucking realization that you don't have a clue what or that clitorectomies were done until the 80's.

You admire, admire but do you see or feel what the person writes?

What do you admire about yourself?

[Sunshine1]

Dear Priestress,

I hope this post finds you feeling somewhat better and I hope that you somehow are able to find medical help. When I'm not feeling well? i go to an Er but first call my GP and then maybe the Endo.

Sometimes medicine doesn't have the answers and isn't always right but is forever changing and learning. They didn't even know I had cancer until I fainted at home in a pool of blood and even then they thought I was just a crazy lady with anemia that also has CAH with a freaky part they like to call "interesting".

Tests aren't perfect or the cancer wasn't there at the time of the test and medicine itself isn't perfect - The best anyone can ask for is a General Practitioner through private or county based that tries to help you cope with any medical condition and can direct you to specialist if needed.


I'm just some shumk on the internet that isn't a doctor or nurse and I don't have answers to anything myself ...shit I've been curious as to what this person in Australia admires and even she can't tell me:smile:

You went to the National Institute of Health? I figured that woulda been the place for help or maybe even a place like John Hopkins .....fuck :smile: they have had tons of experience.

Is there a local hospital that could help you? Maybe attatched to a teaching community that has the knowledge base to investigate? I don't know and I am sorry things are anything and they do the tests that they can do but might not come up with the answers.

Would exploratory surgery help? I'm not a doc or nurse and have no idea about any of this stuff. I have pain in the clitorectomy but that is from the the radiation that was used to help reduce the cancer...so I'm OK with that pain but I was also offered pain pills for it and I declined those but good to know that they are always available.

I was given dalaudin (SP?) when I had my Gall Bladder out ....I was seeing people and things that weren't even there but I was in the hospital at the time.

I'm going back to school but I will try to post every so often.

take care,
Aimee

[Dana Gold]

Andre,

Thank you for bringing up the subject of "protective armor". I'd like to expand on that and suggest that, while protecting from "incoming external negativities", the "armor" may also deflect incoming postive things....(maybe even from oneself). Using my own experience, my anger and cynicism have, in the past, been like a "shield" that prevented "penetration" of my psyche and mental (and physical!) well-being from the "ugliness" and hurtful ignorance of others (mind fuck). The same mechanism has also prevented the beauty and goodness from my environment from being acknowledged. Needless to say, the entire "shield phenomenon" dynamics stem from personal intrinsic factors as well as my interaction with both positive and negative elements in the environment (both immediate and distant proximities). Therefore, I myself have found that downgrading the "impermeability" of my personal armor has allowed the good elements to be acknowledged and absorbed, while acknowledgment of the bad adds to my knowledge of "the enemy". Ironically, as in some warfare concepts, anger, hate, anxiety, and related emotions do not make for an effective (real) defense mechanism...in my case. I apologize for the , perhaps, "me versus them" mindset that I have professed to be a part of my reality...as it may cause some people to think I am an "Amazon" berift of humane feelings. On the contrary, I am, by nature, a warm-hearted and sensitive individual. However, some past and present "events" of a traumatic nature have left me "on guard".to the possibility and probablity of future "incursions" of both a physical and psychological nature....so therefore, for safety's sake, perhaps I shall still keep my armor operational...and render it more effective by upgrading my "sensory-detection apparatus" to accurately determine who and what represents a threat or a benefit to my life. And keep the "signalling channels" open to both incoming and outgoing energies, whilst modulating my signals to the environment and gauging my responses....providing both a protective mechanism and a means to elevate my life condition/mind (anger, etc have been depressive, self-erosive elements) through recogniton that there really are good things and people on this planet we call Earth.....things that would enhance my own (previously dwindling) humanity and life.....a redemption from the seemingly indelible scars of past phenomena....and a blossoming of my own embryonic happiness.

Dana :whipg:

[Sunshine1]

Dear Dianne,

Thought you were the lady with the kid. You're not and me fucking bad for that one .....do you even have an intersex condition? I asked the first poster questions and I am who I am. Why the fuck do people admire other peopel and why the fuck admire someone becuase of a flippin medical condition .... I'm just some boring person that can be an idiot at times but also looks for hows and whys .....as in what the fuck did she? or non gendered person really think or what goes on with conditions. Just to go admire? without why? admire those poor people with those afflictions .......fuck that stuff and enough to give me a stigma ... I wanted to know what she felt about genital surgeries done to people to make others comfortable.

I don't assume about anything and I accept peeps for who they be. I'm not hostile and this is nothing but my figure of speech and part of my identity.

I didn't grow up in the country club or the cookie cutter suburbs and yes I did go to college but I also look to be myself and write how things really flow at times. I had cancer and these women were you must be devestated and oh I admire you and I could never go through that .......what the fuck? one can through anything if they have to and these other gush with smiles relief in that they don't have that and use upper hand to gush oh admire you blah blah.

I'm just me and if you actually do have any condition that might fall under the intersex umbrella or otherwise ..yo that be cool and she is here to admire what issues you go thru.

She wants to admire put others on a sickie pedestal ....I'm getting a complex here but if you think that stuff is cool then chat with her ...everyone has their opinions and I'm just one idiot on the net. Take any of this personally? she doesn't know anything about any of these conditions and will not share with the scum that I am why she admires or even found this site. This is someone that would say if she saw me that she admired my eyes or hair ....it's nothing deep that I see yet.

me

[Dana Gold]

My post (about protective armor) before Aimee's I put in the wrong place...should have been in Andre's Galvanisation thread....sorrry... for the dummy error :embaresse :pat: :clown:...hope I didn't confuse anybody or cause a "mind fuck"...:rolleyes2

[Priestess]

Heya Aimee,

I contacted the NIH, and they had me fax them the lab reports from my ACTH stim test last spring. I'm thinking that chronic exposure to the rooibos tea I'd been drinking threw off my cortisol level. Which is one of it's known effects. Like licorice, it apparently caused the kidneys to not excrete used cortisol. Because other than that, according to one place I checked with, my results would have been the usual for 2 possible types of cah. The people at the NIH didn't say what they thought the problem was, only that I didn't fall in their guidelines. They did say they were mostly concerned with 21-h deficiency and some cases of 11-bh , and I definately didn't have those.

I think medicine should have some answers. They've done enough tests and took enough pictures. They just don't want believe their reports, they said it's all "impossible" because no matter what the tests show some old blood test supposedly says I have some sry-sensitivity. I told them about 5 different ways that the blood test only made it unlikely and not completely impossible, but they didn't care. At the time of that bloodwork, someone had also id-thefted me to get some free insurance, but that didn't count either, because whoever it was never got caught. All I know is that they were 10 years younger than me and 6 inches shorter.

The last doc to discuss my case recommended better dna testing and a very thorough physical exam, because even with "impossible" they couldn't be sure the tests weren't true. But my gp refused to order it, and now no one will see me or return my calls. They just keep sticking their fingers in their ears and shouting "impossible".

You wouldn't even need exploratory surgery anymore to see that my anatomy runs way unusual. Since Oct 24'th, my vaginal canal has been open and probe-able. But the doctors refuse to even examine me to find that out.
Sort of like the monkey with it's hands over it's eyes.

I was seeing a doc from a teaching hospital, before. Doc Laufer. He was the one last november who said he'd have me scheduled for surgery right away, if I was a child too young to make my own decisions. But being an adult left me out of luck. That was in Boston. I don't know any other teaching hospitals within driving distance.

Sometime last night, the two painful spots inside my pelvis took a break. This morning, my (new) discharge was a lot wetter than usual, and I feel like I've been shot-up with way too much estrogen. Unfortunately I know what that feels like. What's currently hurting is the tops of both my kidneys. I've been too nauseous to eat much.

I hope you do well at school. Wish I was someplace warm like florida. Everything feels so cold.

Melissa

Dear Priestress,

I hope this post finds you feeling somewhat better and I hope that you somehow are able to find medical help. When I'm not feeling well? i go to an Er but first call my GP and then maybe the Endo.

Sometimes medicine doesn't have the answers and isn't always right but is forever changing and learning. They didn't even know I had cancer until I fainted at home in a pool of blood and even then they thought I was just a crazy lady with anemia that also has CAH with a freaky part they like to call "interesting".

Tests aren't perfect or the cancer wasn't there at the time of the test and medicine itself isn't perfect - The best anyone can ask for is a General Practitioner through private or county based that tries to help you cope with any medical condition and can direct you to specialist if needed.


I'm just some shumk on the internet that isn't a doctor or nurse and I don't have answers to anything myself ...shit I've been curious as to what this person in Australia admires and even she can't tell me:smile:

You went to the National Institute of Health? I figured that woulda been the place for help or maybe even a place like John Hopkins .....fuck :smile: they have had tons of experience.

Is there a local hospital that could help you? Maybe attatched to a teaching community that has the knowledge base to investigate? I don't know and I am sorry things are anything and they do the tests that they can do but might not come up with the answers.

Would exploratory surgery help? I'm not a doc or nurse and have no idea about any of this stuff. I have pain in the clitorectomy but that is from the the radiation that was used to help reduce the cancer...so I'm OK with that pain but I was also offered pain pills for it and I declined those but good to know that they are always available.

I was given dalaudin (SP?) when I had my Gall Bladder out ....I was seeing people and things that weren't even there but I was in the hospital at the time.

I'm going back to school but I will try to post every so often.

take care,
Aimee

[Peter]

I think that Jane was trying to say that she "admired" the "bravery" of intersex people who are willing to be open and honest about our lives. Given the historic denial of intersex experience, I don't think her sentiments are bad. BLO is both a support site for intersex people and a general educational site for others. As one of the moderators, I think that it is important to remember the educational aspect of the work of BLO. I don't think that it should be necessary for the general public to purchase a flame retardant protective suit before they visit this site. As an intersex person, I have already purchased flame retardant underwear for my own protection when I am on the Internet.

Peter

[Sunshine1]

Dear Melissa,

Thanks....yeah school starts in Jan and it will be study, study. Florida is Ok but rather fucking expensive and was more fun a couple of years ago.

I don't know how to help you and I'm just some idiot on the net. But, maybe when you feel a little better then maybe one of these people can help you or direct you to someone else that can. http://www/isna.org/about/medicalboard/


( tangent on ) I don't give a fuck about the word Intersex because when it all comes down to it? Doctors realized that excessive adrogens came from a fucked up adrenal gland. If it wasn't for the pseudo- hermaphrodites back in the day ...the Victorian day that went to Doctors then none of this shit would of be figured out The DSD OR BMW OR BFE or what ever their rode show is calling it? I don't give a fuck .....shit most people with CAH aren't born with the physical definition of Intersex except for a small percentage of girls and Oh how I wish that adrenal crisis would be front and center with them because kids with CAH die in emergency rooms. (tangent off ) but just maybe someone from that ISNA medical board could help?

People can trade GP in or maybe someone from that board could talk to the one you have? I don't have the answers to help you and I am sorry. Medicine isn't always right and is forever learning and changing.

take care,

aimee

[JaneWilde]

Allow me to answer all of your questions.

I am not this endocrinologist's wife, sister, daughter, mother, or any such relation. Nor do i lurk in his study reading his patient files. Frankly, i find the suggestion atrocious.

I do not have diabetes. And i do not feel obliged to tell you anything about myself, because all you've done so far is denigrate my reaching out. Why on earth would I share with a person who tells me I must be sweet but aso a completely misguided and blithering idiot? You've no idea what I know or what I've read. For all you know I could have written that article you keep talking about.

So, why do I or should I admire you? As it happens, I think it is healthy to admire qualities in other people. I regard this to be different from putting them above me. I admire my grandmother, who has suffered tremendously in her lifetime, and yet managed to overcome it and make a life. I admire Beethoven, who went deaf and still managed to compose. I admire people like that, who overcome what i see as adversity. That's why I admire you.

I think child/infant genital surgeries are dangerous business and i honestly don't think I am qualified to make any judgements at all, particularly in an abstract form. I think all decisions ought to be made on a case by case basis.

Surgeons do a lot of strange things, many of them ethically dubious. Again, i am simply unqualified to give an opinion. I don't actually know personally what you or anyone else has been through. I don't know what is in anyone's mind, or what any surgeons' actual intentions are when they put scalpel to flesh, or when they analyse children's genitalia.

I think that medicine is an uphill battle. it is also a very very large field of research, and intersex is not at the top of the agenda at the moment. I think it is moving and changing. Comparing previous medical practice with what we are now familiar with always makes the past seem somewhat antqiuated and barbaric. Once upon a time bloodletting was the answer to almost every affliction medicine could name. Though not an excuse, it was usually done with the best of intentions.

And what is there to admire about me? my exemplary spelling and grammar. Or perhaps that i am trying.

And thankyou, Peter, you are dead on the money.

[Sunshine1]

Dear Student:

I never wrote anywhere that you are a "completely misguided or blithering idiot"

You miss your grandmother and I think you must somehow work for this Endo.

Why should I have to overcome anything? You don't have to answer that.