to be or not to be...crystal clear

[peaceandparty]

i want to have crystal clarity:idea2:

one member here has stated
that they regard me as being "disrespectful "towards this site
and its members!:wilted_ro

my question/s:

to be crystal clear where i stand in virtual blog life,
so i can stand proud as me or else feel i may aswell do it less with others..

am i being disrespectful in your opinion?:rolleye13

and

what do you think of my posts and my personality in general from also seeing some of my youtube videos?
and
do you think that my contribution and influence does not aid the intersex movement for the future?:applaudth

thanks to any of the replies,because as i say-i am an open book!
and i AM open to taking criticism always....as i often do.....who said i was perfect...certainly not me!

so i will presume that the amount of views and the amount of replies will be a good statistic for those for or against peaceandparty´s personal opinion on world intersexness!so if you dont like peaceandparty like one member would suggest you mostly all do,then -reply!....if not just look and smile because i am ........i am different....not just because of my xxyness but because of my sincerity and kindness and much understanding on issues of emotions and feeling on middle sexedness!
i will let the judges decide here in the open court!

[Sunshine1]

I do think you're Ok but you mix transexual and intersex together and thus we will never be our own.

Also, and this isn't bad but you lack knowledge about other conditions under the intersex umbrella. Do you know what an adrenal crisis is?

People with CAH have only xx or xy chromosomes and the medical definition of intersex only applies to a small percentage.

I do like your music and you remind me of an Irish poet from the 1800's

I'm sorry that you were booted from xxy talk? and I know first hand how it feels to be dismissed from people that you thought understood you without warning. But, maybe this is God's plan for you to move forward.

People with CAH don't like me much either.

I like artists and have been told that I'm artistic but don't use it.

I'm not really into how you talk about the USA but to each their own and free speech.

I think you are a good singer and I like the soup video.

I hope that this was Ok and if you weren't supposed to be here then the owner of this site would of said something.

oK and ......ummm something else that I've done as well ummmm you bash doctors and so much the better to find peace and build bridges. Yep, I understand about venting every so often but good to build bridges to.

Have you ever thought of opening your own bar?

It would be great to hear you do a cover to a U2 song.

[JOS]

You're pretty intense but life sure ain't boring while you're around.

I would like to discuss your anti-globalisation views a bit more tho'.... this may not be the right time as I think you're probably feeling a bit too rejected for this type of discussion but what-the-hey...
if you're anti-globalisation, by rights you must be pro difference and tolerant of peoples beliefs... so how do you square an anti-America attitude with that... everyone is allowed to have their own culture, religious and political views... as long as their views don't infringe others... which means that no-one can really have a stong view to one side or the other.... and so long as we all have equal measure of everything... globally.... so therefore pro-globalisation...... sorry I think I've just confused myself!!! :osigh:

Anyway... enough of this... nobody loves me, everybody hates me guff... who couldn't enjoy you repose? it would just be prudent to remember your tact duct every now and then..... by the way, how am I doing... this is my first experience of forums.... it's quite tricky:rolleye13

P.S. please don't say I'm really bad at it or I might cry.... I will I'll do it!!!
no really

[Kailana]

Please dont ask that again, i respect your opinions alot. And i love your Utube clips. You have a good way of expressing your feelings and i really appreciate seeing you and reading your posts.

as for Sunshine statement about people with CAH, she needs to adjust that statement, add a "most", gee i forgot how to do quotes :

People with CAH have only xx or xy chromosomes and the medical definition of intersex only applies to a small percentage. [Sunshine1]

Um exscuse me, i was diagnosed with CAH first after my MRI was explained to me, (having a juvenile uterus, two ovaries internally). Along with my unusual male hormone levels, being inbetween the normal range for male and female, and my female hormones, being low female to normal female. When the doctor pulled out the medical encyclopedia to explain what that meant, and i read it all. basically it stated "some girls as raised as boys as that is what they look like". I asked if i could get a test to see what my genetic sex was. They were just as curious as i was, and my karyotype came back XY/XO. So apparently Sunshines statement about only xx and xy having CAH is a misstatement of the truth. And as for me being XY/XO, that was kind of a shocker as I had never even heard of it before. It is one of the few Genetic variations that is known to cause true-hermaphroditism. So you see i am Intersexed, True Hermaphrodyte, With CAH, and i am assuming nonclassical CAH, as i am not a salt waster, i do have issues with low potassium levels. Apparently im one of the 17's CAH variations as its my 17OHprogesterone that is overproduced. I wish dr's would care cause its really not easy sometimes being confused about things. And yes i know 21 hydroxylase is the most common form of CAH. both are building blocks to make Cortisol, just as several others substances(i dont know how to word that better) are needed for normal cortisol production. other then living with one adrenal gland i am pretty much untreated, my whole life has been that way. I only have issues when i am sick, and in the summer, overheat easy, dehydration issues, most though i can manage with diet. Got to love V-8.

Perhaps someday i will actually know more, or have doctors who care enough for better detailed work to get done.