are there any XXY persons here? please raise your hand!

[OkieDokie]

Hi! I am an XXY person living in Oklahoma. There is also Graeme, in New Zealand. Any others?

BTW you get bonus points for knowing what my avatar image is. :)

[roguekiwixxy]

Hi! I am an XXY person living in Oklahoma. There is also Graeme, in New Zealand. Any others?

BTW you get bonus points for knowing what my avatar image is. :)

Can I say what the avatar is or shall I keep it a secret? I'll keep it a secret just for now.....or I have no idea and I'm just kidding! :-)

[fraulein_Maria]

[QUOTE=duckslammer;17854]Hi! I am an XXY person living in Oklahoma. There is also Graeme, in New Zealand. Any others?

BTW you get bonus points for knowing what my avatar image is. :)

>>> i'm not XXY.... just two X's :) but i believe the image is a game of othello :) <<<

[OkieDokie]

>>> i'm not XXY.... just two X's :) but i believe the image is a game of othello :) <<<
Not XXY and you missed the bonus question... Ah well, we love you anyway. :)

[JOS]

Also not XXY.... i am XY (with a misfunctioning Y i guess... making me more X LOL?)

and I think the game is a Japanese game called Go... played also on Star trek :-)

please put us out of our misery after 2 or 3 more posts .... assuming I guessed wrong :wink_smil

[roguekiwixxy]

Also not XXY.... i am XY (with a misfunctioning Y i guess... making me more X LOL?)

and I think the game is a Japanese game called Go... played also on Star trek :-)

please put us out of our misery after 2 or 3 more posts .... assuming I guessed wrong :wink_smil


I am XXY, I think you'll find, and I couold be wrong, :rolleyes: , that the game Othello and the game Go are the same game playing in different countries.

Such as, the world calls it 'Football'. Assocition Football evolved into 'Soccer' in England, which has now reverted to 'Football' but the USA still refers to 'Football' as 'Soccer'.

[melonade]

I looked up Othello and Go, Othello is supposed to have been invented in 1971 and been inspired by Go, but designed with simpler gameplay than Go.

Wikipedia isn't an unbiased source of information for many subjects, but I suppose they can be trusted for some things. http://en.wikipedia.org/wiki/Reversi

[OkieDokie]

Also not XXY.... i am XY (with a misfunctioning Y i guess... making me more X LOL?)

and I think the game is a Japanese game called Go... played also on Star trek :-)

please put us out of our misery after 2 or 3 more posts .... assuming I guessed wrong :wink_smil
Close! Prince..es got it too.

It wasn't used on star trek though it should have been, because go is infinitely more beautiful than 3d chess. My guess is that in another couple hundred years everyone will play go and chess will be pretty much unknown.

Two places I do know it was used was in the movie "a beautiful mind" (because the protagonist of that movie developed some really complex math theories based on his knowledge of go, but in the movie you only see just a brief flash of the board and they don't explain any of the background) and the other is in a novel called Shibumi, where go is part of the central theme and there are go metaphors throughout the story. In Shibumi, a character is asked what the difference is between go and chess. He answers, "Go is to chess, as philosophy to double-entry accounting". That is soooo true. Actually I know of some other references but they are so obscure you aren't likely to run across them.

I call it a mindsport. It is so much more than just a game.

http://en.wikipedia.org/wiki/Go_game

Go has inspired three other games: go-mo-ku, and from that, othello and pente. The latter two are commercially produced, while go-mo-ku is another traditional game that is very loosely based on go.

[fraulein_Maria]

[QUOTE=JOS;17886]Also not XXY.... i am XY (with a misfunctioning Y i guess... making me more X LOL?)

>>> no, over-riden by a very strong X ;) <<<

[roguekiwixxy]

[quote=JOS;17886]Also not XXY.... i am XY (with a misfunctioning Y i guess... making me more X LOL?)

>>> no, over-riden by a very strong X ;) <<<


Or, it's the cells of Jos's body that can't respond to the Y, so the Y is just fine.

[JOS]

just the rest of my body that is not doing as it's told hehehe... hahaha :teeth_smi

Close! Prince..es got it too.


so... it is Go.... or it's only something like Go.... ????

[OkieDokie]

Hey kiddo, read the whole post, it's all there, but ok, you're right it IS go. Play, play, night and day, if you don't you'll go away! lol

So now, being as your Y might as well be a WHY, what's the significance, how does the X express itself, is this like monosomy X? But under your name it says AIS, which is a whole different thing from monosomy X, so I am confused. But that's part of why I'm here, to learn. Oh, and feel free to send me URLs if you think I need to read up on things. I am no stranger to RTFM.

[JOS]

I am CAIS and it is my cell receptors that don't respond.

... I tend to be a bit flippent because those are the sorts of comments doctors have made to me over the years.
AND YEAH.. it confuses the hell out of you.... that is a verbatum quote..

"only your Y doesn't work properly so it's like you are just X"

DOCTORS eh? :smash: whatta they know! LOL

[OkieDokie]

I am CAIS and it is my cell receptors that don't respond.

... I tend to be a bit flippent because those are the sorts of comments doctors have made to me over the years.
AND YEAH.. it confuses the hell out of you.... that is a verbatum quote..

"only your Y doesn't work properly so it's like you are just X"

DOCTORS eh? :smash: whatta they know! LOL
I've met my share of ignorant, insensitive doctors myself. But we don't have to be flip to each other, ok? I'm asking because I want to understand, CAIS in general and you in particular. I looked up CAIS on wikipedia (http://en.wikipedia.org/wiki/Androgen_insensitivity_syndrome) and while the article is long and full of diagrams, the disclaimer at top warns that it isn't complete. And you can't really trust wikipedia anyway since it can be edited by anybody and often is. So tell me if this is good (or biased) info and what else I should read.

[peaceandparty]

xxy and my oh my!

i am also xxy
i can be referred to as having klinefelters syndrome-tho i do not display all parts of that syndrome!

so yes...i am an xxy individual
with many youtube videos about all sorts of things!

i thought the game in your avatar is called suduko!sodoko!
something like that!!

i think many people on this planet are a mixture of characteristics from both of the supposed only two sexes and genders
but as we all know
there is more than meets the eye
with people like us who are definetely considered intersex

i am glad that EVERYONE has a chance to express themselves
and i am here to encourage the encouragement of people truly being theirselves throughout this short but eventful life!

gavan coleman
peaceandparty

http://www.youtube.com/watch?v=c8pSKuzuACc

http://www.youtube.com/watch?v=oGVkhZItE2Q

http://www.youtube.com/watch?v=uxnZ522tRS0&NR=1

[OkieDokie]

Hi Gavan,

I have listened to your music vids. You are very talented.

The board in my avatar is an ancient asian game called Go, possibly the oldest game in the world (over 4,000 years).

We have shared on other forums but it was years ago. We will share here.

[fraulein_Maria]

[QUOTE=JOS;17909]just the rest of my body that is not doing as it's told hehehe... hahaha

>>> yes, but would you really want to be bullied by all that T? and T is such a bully, glad you have it caged in a gel pack :)

wish i could! even if i took enough cortisol to totally stop my adrenals from producing androgens (which would surpress my immune system so badly i'd be sick all the time.... :doh: oh yeah, i AM sick all the time these days!)

my ovaries would still produce some... and it seems, quite a bit more than i like.

i'm at last thinking of going on spiro (oh Godde, i hate that thought) but i hate even more the stupidity that T' goads me to..... :whipg:

JOS, sometimes i want to rip out my eyes.... because i cannot hide what i feel... it scares women to see that i like them :cry:

To rip out whatever body part it is, adrenals or ovaries... or both if necessary...

that pushes me to tell them how i feel.... even when its not wise. :cry:

[fraulein_Maria]

[QUOTE=duckslammer;17916]I've met my share of ignorant, insensitive doctors myself. But we don't have to be flip to each other, ok? I'm asking because I want to understand, CAIS in general and you in particular. I looked up CAIS on wikipedia (http://en.wikipedia.org/wiki/Androgen_insensitivity_syndrome) and while the article is long and full of diagrams, the disclaimer at top warns that it isn't complete. And you can't really trust wikipedia anyway since it can be edited by anybody and often is. So tell me if this is good (or biased) info and what else I should read.

>>> wikki is terrible with AIS and CAH and refuses to be corrected. the best info for AIS is www.aissg.org

www.caresfoundation.org

is the best for CAH if you can stomach there "OFF with HER CLIT!" bias.

[fraulein_Maria]

[QUOTE=peaceandparty;17920]

i thought the game in your avatar is called suduko!sodoko!
something like that!!

>>> nope. :) suduko is a math puzzle game. you see it in the papers all the time, not far from the crossword.

i prefer cryptograms myself. :)

[peaceandparty]

well whatever the game is called...i have played it....but to be honest i would prefer tetris or something like that!
hello by the way
i think we have talked sometime before eh!!??

peace be with you always

[fraulein_Maria]

[QUOTE=peaceandparty;17943]

i think we have talked sometime before eh!!??

>> perhaps. don't remember. one of the really sucky things about ADD is having 30 first dates. <<<

peace be with you always

>>> shalom.. salaam... pax... lumen rectis. <<<

[peaceandparty]

oh yeah....my memory is absolutely brutal too

i am surprised i remember my own name....hahahahahaha

nice to talk to you anyway!
whether its the first or the last time!

[OkieDokie]

>> perhaps. don't remember. one of the really sucky things about ADD is having 30 first dates. <<<
>>> shalom.. salaam... pax... lumen rectis. <<<
I save soooo much money on novels and movies - just wait 6 months and it's like seeing it anew. LOL

Aleichem shalom!

[roguekiwixxy]

>>> nope. :) suduko is a math puzzle game. you see it in the papers all the time, not far from the crossword.

Suduko was invented by a Kiwi BTW just like the aeroplane, refrigerated shipping and the right to vote for women, although voting isn't really an invention. And Suduko means...nothing it's a made up word.


So how do all those connect?

:bounce: ABSOLUTELY NO IDEA :bounce:

I luv dem bouncy ball green things

[OkieDokie]

Who invented the aeroplane is open to interpretation because it depends on how you define "aeroplane" however the first powered aeroplane with control surfaces was an American invention.

The US state of Wyoming granted women's suffrage years before it was done by the British colony that would later become known as New Zealand.

Kiwis didn't invent refridgerated shipping; that was also done by an American, but kiwis did perfect it.

And sudoku was invented by an American in 1979 under another name but it was exactly the same game.

And the sun, the moon, and the stars... LOL

[roguekiwixxy]

Who invented the aeroplane is open to interpretation because it depends on how you define "aeroplane" however the first powered aeroplane with control surfaces was an American invention.


Tch tch tch....I see you do take bait! :wink: A fellow buy the surname of Pearse flew a heavier than air, motorised, contraption that might loosly be described as a aeroplane a few months before a couple of fellas in the USA with the surnamke Wright, but postage the way it is, well it always was! :-D



The US state of Wyoming granted women's suffrage years before it was done by the British colony that would later become known as New Zealand.



Sorry, not right....ohhhh might be, but I'm referring to a Nation and NZ was a self governing Nation when the right to vote was graciously given to women, before the Nation of the USA. So without your family code being applicable, you could be right.


Kiwis didn't invent refridgerated shipping; that was also done by an American, but kiwis did perfect it.


Yeah, you could be right, probaly are in fact.


And sudoku was invented by an American in 1979 under another name but it was exactly the same game.


You could be right.


And the sun, the moon, and the stars... LOL
................................:gulp:

[OkieDokie]

Flight: apparently there's no proof about Pearse: http://xenophilius.wordpress.com/2008/03/05/richard-pearse-a-powered-airplane-nine-months-before-the-wright-brothers/
Also see http://www.first-to-fly.com/History/History%20of%20Airplane/wannabees.htm

Suffrage: no, sorry, NZ was still a colony then. http://en.wikipedia.org/wiki/Women%27s_suffrage

LOL

[fraulein_Maria]

[QUOTE=roguekiwixxy;18000]

The US state of Wyoming granted women's suffrage years before it was done by the British colony that would later become known as New Zealand.

Quote:
Sorry, not right....ohhhh might be, but I'm referring to a Nation and NZ was a self governing Nation when the right to vote was graciously given to women, before the Nation of the USA. So without your family code being applicable, you could be right.

>>> LOL. The native tribes of north america ALL had women voting... the right was never "given" it came as naturally as breathing.

but it doesn't count unless males of european ancestry do it, right? ;) <<<

[OkieDokie]

Not by what I've read, though it might vary by tribe, but aboriginals did not have any kind of democratic system. Decisions were made by tribal elders.

[fraulein_Maria]

[QUOTE=duckslammer;18004]Not by what I've read, though it might vary by tribe, but aboriginals did not have any kind of democratic system. Decisions were made by tribal elders.

>>> who were elected by.... :) and the decision to go to war was ALWAYS presented to ALL. the women had to agree, or it didn't happen. ;) <<<

[roguekiwixxy]

[quote=duckslammer;18004]Not by what I've read, though it might vary by tribe, but aboriginals did not have any kind of democratic system. Decisions were made by tribal elders.

>>> who were elected by.... :) and the decision to go to war was ALWAYS presented to ALL. the women had to agree, or it didn't happen. ;) <<<


Elected, yes, elected, very nice, this is how someone got 'elected' in NZ prior to colinisation.....'hey that looks like a tasty head, lets eat it!" :omg_smile

Oh, by the way, I'm of Maori descent, and I'm allowed to laugh at my own society. Just in case there's anyone who thinks there's anything untoward.

[OkieDokie]

>>> who were elected by.... :) and the decision to go to war was ALWAYS presented to ALL. the women had to agree, or it didn't happen. ;) <<<

Bureau of Indian Affairs recognizes almost 700 different tribes - each with their own traditions.

But I am too lazy to actually research it being as the answer isn't gonna be on the net, so I guess I will have to say, "you could be right!" :)

[wally]

Well, for what it's worth - I'm here. I'm an xxy mosaic from Canada. Some of my friends call me Wally.

[fraulein_Maria]

[QUOTE=wally;19195]Well, for what it's worth - I'm here. I'm an xxy mosaic from Canada. Some of my friends call me Wally.

>>> nice to meet you. :) we could use a few more Cannucks around here. :)

[Anis789]

Hi OkkieDokie

Am not xxxy

there seems to be a few different variations in Genotyoes;
xy (male)
xx (female)
xxy (KS)
xy/xx (Mosaic)
xo (? not sure what the 'o' menas')

Question;

You know the types with extra letters i.e 3/4 instaed of 2 do they have anythig to do with twins? Are thier chances that somebody was going to be a twin so they got the extra letters? Am just really intersted is all,

so if there are 3 i.e xxy does that mean one of the X doesn't work right? form the XXY people I have come across online it seems most if not all are raised or coose to be male?

In my case they can not find a 'gene' that makes me insnesitvity to andrgones to some degree nor the one that makes me visuallly impaired, also

1 brothers has ichthyosis a skin condition
2 habe heart condtions 1 of which has Noonan's

My family is rare n special I owe to myslef and family to find out as much as possible about our condition, who knows youz'all I could have an condition unknown sorry for saying I had PAIS thats what i was told well told all kinds of condtions sorry i upset some of you

love anis x

[peaceandparty]

Well, for what it's worth - I'm here. I'm an xxy mosaic from Canada. Some of my friends call me Wally.

its worth a lot!

welcome to BLO!

[Paul(a)]

Hi! I am an XXY person living in Oklahoma. There is also Graeme, in New Zealand. Any others?

BTW you get bonus points for knowing what my avatar image is. :)
Yup, I'm xxy!

[Dianne]

Not by what I've read, though it might vary by tribe, but aboriginals did not have any kind of democratic system. Decisions were made by tribal elders.

You might be interested in reading about "The Six Nations" (a.k.a. "Iroquois Confederacy") who had a representative form of government that predates Columbus by more than 100 years. Although the Council was made up of men, the men were selected by the Clan Mothers who also retained to right to recall their representative at any time. (The Iroquoian culture was matriarchal and the Clan Mother was the eldest woman of each clan.)

Na-ya-whe!

[LovelyPaula]

We are in a state that is genetically not quite yet up to speed to much. Ive tried contacting genetic experts here, but most seem too vague for me to bother driving 60-70 miles to hear basically nothing. I moved here, after living here for 6 months prior to this. I may go back to Montana where my family support is just a tad bit better than here. Im independent now and will stay that way, but see some things, that need improvement. Like doctors close by who are qualified in more than one area.

[mrp5760]

Hello my name is Michael and i am a 49 year old 2x loser, i was diagnosed in 1997 at age 37 but didn't start treatment until after 2 mastectomies.
I have Klinefelters syndrome, I am still confused about my life in general and my future. I suffered most of my young life with Wild mood swings, then learned how to self medicate. Please reach out I am open for all of the support I can get.

[Kailana]

interesting intro, I do hope you find some sense of self while here browsing the BLO forums.

Honestly though i must add that support usually works best when you also participate. You would be amazed at the little bit of information you have learned over your life, that might just help another out when they need some guidance.

So please do not think that you are only in need of support. Many times the small bits of wisdom of others has helped me out and offered some very important advice that I had no way of understanding without them. I do believe everyone has a few bits of knowledge others can learn from.

Just remmember I am always right,:grin: And we will get along great.

best wishes.

oh and LovelyPaula are you Paul(a). My apologies if i had missed your post. I swear this server is acting funny with messages.

[peaceandparty]

Hello my name is Michael and i am a 49 year old 2x loser, i was diagnosed in 1997 at age 37 but didn't start treatment until after 2 mastectomies.
I have Klinefelters syndrome, I am still confused about my life in general and my future. I suffered most of my young life with Wild mood swings, then learned how to self medicate. Please reach out I am open for all of the support I can get.

hey michael!
no need to think you are the champion of losers
many people think i am the biggest loser xxy!
hahahaha
we both know thats just not true
when you go to youtube
i am peaceandparty there
here is a link
http://www.youtube.com/user/peaceandparty

[peaceandparty]

excellent post and words kailana as usual

[mrp5760]

I was diagnosed in 1997 when i started growing Breasts one at a time.
My case is unusual, but im looking for simular cases anyone with answers get at me.

[Kailana]

just wondering what answers are you looking for?

While many posts or cross post in all threads, we do not always share the same conditions or the same symptoms.

Answers though often are easiest to find, when others like me know what the questions are being asked.

Generally I would say, just do your best to find yourself. Regardless of the conditions we have, or the side affects due to them we still are perfectly normal, Or I should say there are far more normal people with far more serious problems then we have. Ie some people are infact perfectly average peeps, with some serious issues. For most of us, our issues may be confusing for a little while, but we can generally figure out why once we know what conditions we have. With that information we can also share ways to help each other out.

Sometimes life can be crappy when there is an issue over our conditions, yet many people fair far worse then us, and have far more serious problems. Hell most of our problems are really just self esteem issues due to some body parts that arent all that common. Hope know one is thinking im taking this question likely. Meaning self-esteem can take some knocks when we see ourselves different then those around us. In time we can find our self esteem and self worth and be happy. Happyness is a good goal to strive for. Sometimes all it takes is finding enough courage to just be ourselves and when that happens life just seems to straighten itself out. There will be some struggle, but then all things worth struggling for, takes some effort.

Timinig right now may not be ideal but remember your not alone ever. Your condition is not unheard of. There are many people who have the same and do have nice productive happy lives. All we need to do is find out how they managed to get past the hard parts. Some of us have done so, some of us are in the middle of doing so, and some of us are not quite yet ready to find themselves amongst the masses. But when you do, life will be a whole lot better. Time is the real issue.

Is there enough time left to be happy?

Answer "Of course there is". There is time a plenty, smile be happy work on a positive attitude. Smile when meeting new people, Do not be afraid to talk to people, and if asked to help someone, help them. Overtime the people around you will see you as a happy person, stable and reliable, and often when others see you as happy, stable and unreliable you will see yourself as happy, stable, and reliable. Self esteem recovered, you will then be much better to be around. People will want to be around. Oh and don't be pushy lol. Take your time, work on yourself, find alternative ways to relieve stress.

I do hope the lil advise helps some. If you have questions ask, cause while we may not all share the same experiences, often we can understand one another and help one another understand ourselves better.

Best wishes.

[mrp5760]

First im a little hurt to find out that my posts are now all public domain, just google (mrp5760) Second, I thought i found a place that i could discuss my EFFing condition and not get bashed for it. People can really Hurt you when you leave your guard down. Now Here's what makes the third one the real charm-I think i am having anxiety issues with rashes on my hands and feet, although i have not had a traditional anxiety attack since i started (HRT) 4 years ago. :party:

[Kailana]

when you look at the main page.

I actually never bothered to worry about such things, honestly if you feel you want to ask a specific more personal question then PM someone or wait to get to know people and the exchange email addie's.

I actually like the open forum, some do not. But in my opinion with it open there are additional opportunities to get my interests out and I do think any good presence online is beneficial.

[miriam]

First im a little hurt to find out that my posts are now all public domain, just google (mrp5760)

http://bodieslikeours.org/forums/announcement.php?f=2

Second, I thought i found a place that i could discuss my EFFing condition and not get bashed for it. People can really Hurt you when you leave your guard down.

I've re-read the thread and I don't understand why you would think someone is bashing you. Why do you feel someone bashed you?

Groeten, Miriam

[Kailana]

Miriam I am thinking someone recognized his/her post outside of BLO, and made comments elsewhere. that is one of the problems with an open forum like this.

[Merc]

Yep I am one of youse lot too, nick name is Merc, registered in the other XXY forum but dont see to be much happening over there, found this site on that other site. Found out I was XXY when I just turned 45, after going through all kinds of stuff like everybody else in here I am proud of who I am and don't give a monkeys what other people think. This is me, don't like it, well, get over it. Now that I got that off my mind, how is everybody else doing.

Ralph

[galens47]

I'm XXY 34yo in Sacramento, CA

I like your avatar.

I've used the Female/male image of the circle with cross and arrow to explain myself in the past.

Cheers,

G