D.E.S, a nitemare..

[steve/lisa]

I am a D.E.S.child and have had a lot of problems from it,If anyone else has please let me know,maybe we can compare notes or some thing...

[fraulein_Maria]

[QUOTE=steve/lisa;19224]I am a D.E.S.child and have had a lot of problems from it,If anyone else has please let me know,maybe we can compare notes or some thing...

>>> hey! :) good to see you! i didn't know that you were a DES kid, but so many IS people have had the pleasure of meeting have been, i asked peter to set up a forum just for them.

If your in Ca (sorry i forget) DESactionpatty is the best one to contact, and she has graciously joined us here. :)

[steve/lisa]

Maria,thank you so much for that link,I will go to it this weekend and read it,As I personaly have had so many problems from D.E.S. that i'm a bit scared to go look,as whats next for me. Thanks... Lisamay...:-) :-)

[Kailana]

Glad you made it back,, and good to see your able to post now.

[steve/lisa]

Hi Maria,when I was born,I had both,But I had no scrotum,so they sewed the labia lips togetherand i guess hoped for the best,anyway mine never came down,at 9 years old to 12 years old they did surgery 4 times to bring them down but they kept going back inside,hehe,I guess they did'nt like being outside,to cold i guess,anyway,I got gondalblastoma's on the right side,had alot of surgery's to save it,but it turned into seminoma cancer,had to have it removed,and got cis-platinum kemo,and it really sucked,3 1/2 years later at 21 yrs old,I got really sick,lost 70 lbs went down to 118 lbs,no-one knew what i had but they knew it was'nt good,finaly,I got a new doc,and he did a needle biopsy,and my god that really hurt,wide awake and no meds to help with pain.

Yes it came back seminoma again,stage 3,I had it removed plus a few other spots to,and after biopsy,it turned out to be a ovatestes,anyway had cis-platinum again,and the DR got me an offer to get a full karyotyping at a med center,anyway thats how I found out I was a tr.herm chimera,of course mother and father knew,and it seems everyone in the family knew,it was their secret,it made sense to me after that,mother would call me lisa,and dress me as her,and teach me the ways of females,untill we had a falling out when i was 12 yrs old.

Father raised me as a boy,anyway i have a uterus and an ovary on the right side and now they think I have another ovatestes on the left,cancer again,I hope not,can't go threw that one again both of them are in the right place for ovary's,i have no testosterone,but I do have enough estrogen to keep me going,and they have me on estrogen now,anyway right now i'm in Missouri,outside of St Louis,and am trying to get back to boise Idaho,to my DR,who found this again,to get treatment,But part of me just wants it to take me,I don't know if I can fight and do this again.

May my creator give me the strength to do this,and last may I went threw the worst devorce possiable,so I kinda just want to give up,I'm scared,and alone,and most days just want to give up,crawl into a ball and die,But I know I'll try again,i must,my ex found some-one normal,as she never really excepted me sexually,I'm a little different,and she,oh well enough about her,as I said it's hard to see the end of this,whats next,who knows but I'll find out i'm sure.sorry for running on about this but,I've been away for some time from here,and this is why i've been away,I'm trying to deal with this card again.talk later folks,Lisamay...

[fraulein_Maria]

[QUOTE=steve/lisa;19259]But part of me just wants it to take me,I don't know if I can fight and do this again.

>>> listen careful hon, cause i been were your sittin right now.....

the part that just wants to go home is a gal that's just reaaallly very tired...

and listenin to the little guy with a pitch-fork whisperin in her left ear.....

gotta listen to the angel on the right.....

You were worth dying for.

You are worth living for.

You are worth fighting for.

You know who died for you. :)

The one living for you (and you for them) you probably haven't met yet.

Some of us are fighting for you, and ALL of us are rooting for you. :)

Get some well deserved rest hon. :) We'll be here when you wake up.

Promise

[steve/lisa]

thank you dear,yes I am very tired and I think it's bed time to,just wanted to say thank you,,,,Lisamay...

[boardwalk_angel]

Pleasure to meet you. Hope we can chat soon.

[Brianna XX/XY]

Hi,

I read your posting and thought it was heart-breaking. I have lived through something very similar and as we both know it is not fun, to say the least. I'd like to hear back from you, maybe you can send me a private message.
It's nice to make friends with other intersexed people.


Brianna




Hi Maria,when I was born,I had both,But I had no scrotum,so they sewed the labia lips togetherand i guess hoped for the best,anyway mine never came down,at 9 years old to 12 years old they did surgery 4 times to bring them down but they kept going back inside,hehe,I guess they did'nt like being outside,to cold i guess,anyway,I got gondalblastoma's on the right side,had alot of surgery's to save it,but it turned into seminoma cancer,had to have it removed,and got cis-platinum kemo,and it really sucked,3 1/2 years later at 21 yrs old,I got really sick,lost 70 lbs went down to 118 lbs,no-one knew what i had but they knew it was'nt good,finaly,I got a new doc,and he did a needle biopsy,and my god that really hurt,wide awake and no meds to help with pain.

Yes it came back seminoma again,stage 3,I had it removed plus a few other spots to,and after biopsy,it turned out to be a ovatestes,anyway had cis-platinum again,and the DR got me an offer to get a full karyotyping at a med center,anyway thats how I found out I was a tr.herm chimera,of course mother and father knew,and it seems everyone in the family knew,it was their secret,it made sense to me after that,mother would call me lisa,and dress me as her,and teach me the ways of females,untill we had a falling out when i was 12 yrs old.

Father raised me as a boy,anyway i have a uterus and an ovary on the right side and now they think I have another ovatestes on the left,cancer again,I hope not,can't go threw that one again both of them are in the right place for ovary's,i have no testosterone,but I do have enough estrogen to keep me going,and they have me on estrogen now,anyway right now i'm in Missouri,outside of St Louis,and am trying to get back to boise Idaho,to my DR,who found this again,to get treatment,But part of me just wants it to take me,I don't know if I can fight and do this again.

May my creator give me the strength to do this,and last may I went threw the worst devorce possiable,so I kinda just want to give up,I'm scared,and alone,and most days just want to give up,crawl into a ball and die,But I know I'll try again,i must,my ex found some-one normal,as she never really excepted me sexually,I'm a little different,and she,oh well enough about her,as I said it's hard to see the end of this,whats next,who knows but I'll find out i'm sure.sorry for running on about this but,I've been away for some time from here,and this is why i've been away,I'm trying to deal with this card again.talk later folks,Lisamay...