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Allthelove
05-08-09, 06:37 PM
Hi All! I just found this forum today and I am thrilled! I've been looking for quite sometime. I'm hoping that I can make some friends on here and most importantly chat with other people with intersex XY conditions. I'll share a little information about myself!

I'm a new mother to a 3.5 month old baby boy. He's been wonderful and almost a perfect little baby! You're probably wondering if I have the XY condition? Well, my son actually does. We've been through a lot since his arrival. We were told while I was pregnant that we were having a baby girl and low and behold our baby was born. They couldn't tell us right away if our child was a boy or girl. This is the start of our story and after visiting two urologists and two endocrinologists, we still haven't gotten a diagnosis. The doctors have ideas but are not exactly sure. What we thought was a 1:1,000,000 condition turns out to be even more rare than once thought.

If anyone else wants to chat, feel free to contact me. I want to hear stories and share experiences. If you have a similiar story and would like to share, I'd absolutely love it. I also want as much information as possible to decide what is best for my child. Looking forward to meeting you all!

Blessings~ Allthelove

Aseras
05-08-09, 07:06 PM
Hi Allthelove, Welcome!

It's nice to see parents seek out help and educate themselves rather than just make arbitrary decisions.

What have the doctors told you so far? Have they done any tests and told you (or preferably given you a copy of )the results?

The general consensus for many of us is to wait and allow the child to make a decision unless there is a life threatening condition. That can be hard to do in a black and white, boy or girl world. Often enough if there is enough development of a penis, and a lack of or poorly developed internal organs the child is assigned to be a boy. If there is a poor or underdeveloped penis, or certain internal organs are well developed, they get to be a girl. Things get confusing when it is mixed together. Many of the decisions are based on appearances, and also possible fertility. What sexual organs they have, testes or ovaries, and genetics also play a large factor. The more complicated things are, the harder decisions get to be.

Educate yourself. Take notes on what the doctors say and get copies of the records and look things up. Make the doctors explain everything and defend why they should do whatever. Be very cautious at making a permanent alteration. Surgery can always be done later. It needn't be rushed into.

You and your child have a difficult road ahead, I wish you the best.

Allthelove
05-08-09, 11:18 PM
Thank you for your welcome Aseras!

They've told us that it's a strong possibility that our little one has Leydig Cell Hypoplasia and testicular regression. He was born with ambiguous genitalia, severe hypospadias and undescended testicles. After the karotyping they performed an HCG stimulation and there was no evidence of response. He's since received testosterone and has responed by evidence of his phallus growing up to 2cm. The urologists are telling us to assign him girl and endo docs boy. We're seeing one more urologist on Monday and will see what he tells us.

As you can imagine, we just want to figure out the best rearing for our son and we can think about surgery down the road. I've read many articles and it seems that XY females are happier later in life with their genitals after surgery and males are not. However, both sexes feel whichever sex that they were brought up regardless of the XY karotype.

Nice to meet you! Do you have a condition such as this?

~Allthelove

Peter
05-09-09, 03:35 AM
Hi Allthelove,

I read your post about your child with possible LCH. I was born with undescended testicles, severe hip hyperplasia, and a club foot. This is typical of another condition. But like contemporary photographs of LCH children, my father said that everything was sort of pushed up inside of me. I had infant genital surgery for the undescended testicles. I was born before the era of genetic testing, in the early 1950's, so the doctors did not have much to go on in the way of information when making medical decisions about my body. I think that it is interesting that some doctors are advising surgically assigning your child a male future, and some doctors are advising surgically assigning your child a female future. In talking with many people, there is a developing sense that surgery to normalize the appearance of a child's genitals (i.e. to make the genitals appear more male or female) when the surgery is not governed by an immediate underlying health issue is not something that should be rushed into. Indeed, in my life, the shame and secrecy following infant genital surgery that I did not consent to, caused many later psychological problems for me. I would advise going very slowly. Some of the most recent intersex treatment protocols, which are part of something called a Chicago Consensus Statement recommend taking a cautious approach to situations like the one facing your child. I recommend that you try to find other parents and their children, who have faced a similar condition, so that you can discuss your concerns. I would take the advice that XY children with ambiguous genitals are happier later in life when raised as females as opposed to males with a grain of salt. I think that it is best for that to be left up to the child. I would recommend raising the child in a somewhat gender neutral fashion, but that is what I would recommend for all children, not just intersex children.

Peter

Dianne
05-09-09, 07:32 AM
I totally agree with Peter and with the Chicago Consensus!

So many people seem to think that "gender" depends upon the physiological state of the body, whether the child has a penis or vagina, ovaries or testes, and that gender can be assigned surgically and socially but the truth is for a great many children gender was already determined during gestation and no one will know what that gender is until the child tells you. You will probably start to see indications of your child's gender between the age of 2 and certainly by age 5. Assigning a gender at this point has only a 50/50 chance of being correct and the consequences of a wrong assignment can be devastating to the child and have life-long ramifications. Please don't be in a hurry to make any decisions and don't let the doctors and their misguided dense of certainty push you to do so. Do only what is medically necessary for today and let your child guide you in what is right for him (or her).

You will find a way and we will all be here to support you.

Kailana
05-09-09, 11:28 AM
I unfortunately have seen way too many people who were forced surgery to an assigned gender who reject it, the gender assignment forced onto them, to give any credit to what studies say on how people are happy.

Many studies I have read, only makes assumptions, and often only includes opinions based of what they doctors say have been reported. A few of the more rescent studies however show that of the patients actual responses, their personal opinions contradict what has been pushed by doctos. They/we are not happy with the surgery outcomes forced onto us and those surgeries have only interferred with many differnet aspects in our lives.

Due yourself a favor and raise your child as your child. boy or girl shoudln't matter much, with or without surgery. Wait and I mean seriously wait for your child to say or tell you what he or she is. Do not assume that your child will have a normal life if surgery is done early. Most of us do not have normal lives, because most of us have been treated like LAB RATS. Our rights have been interfered with, ignored and honestly all that has done is left us with serious issue's about who and what we are. Sorry all, I am just very tired of people reading? where some report says we are happy. I know from reading that from as early as the 80's, those same doctors have known that intersexed people have been increasingly chosong their own gender regardless of what surgeries have been done. Meaning there is an ever increasing ratio of intersexed surgically assigned people, rejecting their surgically assigned gender, because they understand themselves well enough of what and who they themselves are.

nice intro otherwise. i will finish with just let your child decide it is in his or her best interest, after all it is his or her body you are talking about and only your child has the right to decide what he or she is.

Allthelove
05-09-09, 08:17 PM
I should have stressed that surgery for my child is not something that I want to do anytime soon. I was thinking years down the road when he feels he would like it. I would only do it now, like many of you said,if he had a life threatening condition. At this time, from all the information we've gathered thus far although no diagnosis is available we are comfortable raising him as a boy.

We've allowed our last urologist to setup another appointment with a new urologist in a clinic that is very reputable. I think the purpose for us going here is so we can tell our child down the road that we've gathered all of this information and that is why we chose to raise you this way at the time.

I forgot to mention in my previous posts that my child has had a laparoscopy surgery to find the presence of either ovaries/uterus or testes. He had an MRI and a pelvic ultrasound showing neither so the laparoscopy was necessary. After the laparoscopy was performed they did find two testicles that were much smaller than normal and no female organs. They did biopsies of the testes and found Sertoli cells only but they did see a vas deferens. This along with the XY genetic makeup and the obvious brain virilization and testosterone reaction is pushing us toward the decision we have made. He most definitely looks like a little boy in my eyes as well. As much as I've always wanted a little girl, a boy rearing seems to fit the best right now.

Thanks for all your response and I look forward to becoming an active member.

Cheers!

The Female Eunuch
05-09-09, 10:19 PM
Hi,

I was born with the same genital abnormalities as you mentioned, and lots of other abnormalities that were not really genital-related. Also I have a recollection that my pee-hole was much wider than it should be, but I can't confirm that.

I was raised as male, and doctors did 8 surgeries to make my penis more normal, the final hypospadias repair being when I was 15. In theory it is possible to repair a hypospadias in one go, but the scar kept splitting open or partially splitting open. I ended up with a small penis that wasn't such a weird shape, but was full of scar tissue from the surgeries. get quite a bit of pain in that area, though I don't know whether it's from the scar tissue, or from having to insert a catheter to empty urine from my bladder (something which was certainly made a lot more difficult by the scar tissue).

I had gonads in my abdomen, which I understand were testicles, but they were removed to stop them turning cancerous. Many people will tell you that undescended testicles can be lowered, but what my doctors told me was that that only actually works on partially descended testicles, and that if they have not descended at all they cannot be (though that was some time ago, so medical technology may have moved on).

As a kid, I said that I saw myself as a girl, but the doctors decided that was because I didn't yet have normal male anatomy to convince me that I was a boy. At age 8, I was sent to a psychologist to convince me to see myself as a boy. As an adult, I rebelled against that, and switched to living as a woman.

I don't feel confident to tell you what you should do, but I thought you should have that information.

cheers,
Caroline

Allthelove
05-10-09, 02:14 AM
Thank you for sharing! I really appreciate what you've written. I often wonder about this happening to my little one because it's hard to know how much virilization has taken place. The urologists are telling us that based on the looks of his genitals that there has not been much. When he was born he looked like a perfectly normal little girl with an enlarged clitoris and fused labia. After receiving testosterone, his phallus grew a little and he now has a small uncircumsized penis with severe penoscrotal hypospadias and and not to forget undescended testicles (inguinal and intra-abdominal). I keep feeling confident in the rearing of male but maybe it really doesn't matter until he can tell us how he feels?! I would just like to make a decision now to make things easier for him as he grows up. It's too difficult to try and explain this to family members, etc.

Kailana
05-10-09, 03:29 AM
Honestly it is a difficult decision to decide. To wait though is the only real way to ensure your child's own right to his or her own body.

Regardless of rearing, he or she will have a tough time at different times untill he or she learns or understands what he or she is.

that might sound confusing, but honestly truely believe waiting is a better choice. Regardless of developement, regardless of what condition or what hormone levels being raised as a boy without surgery isn't that big of a deal. Honestly your really are better off waiting. Allowing your child to decide later when he or she understands herself what he or she is, does provide him or her with at least the understanding that you have allowed him/her the right over his or her own body. That you love and care about your child is what matters most. Your child will understand that easily enough and respect that decision; to wait because you did feel it was his or her decision and not your own.

I really do want to thank you for posting. Really wish all parents understood just how confusing it can be for some of us. I know myself well enough, know most of my medical history and indeed know most of the surgeries that have been done, just don't know exact time; when they were done. I really do understand how confusing it can be. although I must say I do not understand why it would be so hard to explain to family members?

Can you not say or let them know that your childs body is your childs body and that you really do think allowing him or her to decide is what you care about most? I really do think that with all the knowledge available on intersex rearing, from all the different intersex support groups that the general opinions raised by us is that waiting is the only good way of allowing us to find ourselves. It allows us our own life, with our own thoughts and feelings being allowed to be expressed.

not sure if im rambling yet, midnight allready and deffinately tired.

Best wishes allways and really think you are doing the correct thing by allowing your child to be who he or she is.

The Female Eunuch
05-14-09, 09:17 PM
Hello Allthelove,

It occurred to me that there's another side to childhood genital surgery that I didn't mention in my earlier post. I'm referring to the psychological impact of having doctors and nurses fiddling around with one's genitals as a child.

I was seen as a bad child because of my instinct to fight against doctors examining my genitals, and to wriggle and scream when they were doing things like pulling stitches out. I learned not to behave that way, by switching off emotionally, but now as an adult if I want to be sexually active I have to unlearn my tendency to switch of emotionally in reaction to genital touching.

I find this stuff harder to write anout than what I mentioned in my first post to you, but I figured I should mention it. I don't know how similar or different it is for children who have this treatment at different ages.

If a child is raised as female and has an artificial vagina constructed, one of her paernts will have to stick a dildo up her vagina several times a day for a couple of months to keep it open. And it has to be much fatter in proportion to the width of the vagina than a dildo someone would use for pleasure, because it has to stretch to sides of the vagina. Being raised as male I didn't have this, but I have recently found out that I had something similar done with my anus to stop it closing over. I don't have any conscious memory of it, but I think I must have had a subconscious memory of it, because having things stuck up my bum was a common feature of bad dreams I had when I was a child (I don't think I had more bad dreams than the average child - just that that was a feature of them when I did).

cheers,
Caroline

Mitch
05-19-09, 05:16 PM
Welcome Allthelove. I too am a newer member. I was born in 1951 when blood testing was the only available means to determine SEX. We were refered to as WHITE BLANKET BABIES. I had 2 surgeries at the age of 2 yrs. I also suffered abuse and disfigurement by an alcholic mother at 7 yrs.
I had suport of my paternal grandparents and a GreatAunt.
I was 15 when I finaly learned the truth from my family doctor who was also the same person that delivered me. With little medical info and listening to my mind and body I decided to live my life as a male. At the age of 44 and a great GP I was finaly tested. I have had NO medical treatments, medications or steroids. I am very happy with my choice and my life. The numbers seem to be 1 in 2,000 a much lower one that you were quoted. Please don't rush to any decisions. Genitals have nothing to do with how your child progress' and grows in life. Wait until the child is 7 or older. Just love, protect, nurture and above all be honest ! The child will know what and when the timing is right.
Good luck. Suport from people who are living with and through life is the best education you can get and it won't cost you a dime .... or a child who could hate their body, life and you.
Mitch

witchy_woman
05-21-09, 02:52 PM
Welcome, wow. It's so amazing to see a parent who is willing to look further than the doctor's limited prescriptions and diagnosis of their child and seek information with the best interests of the child at heart. It truely makes me feel good to hear that the world is still turning and getting better.

I am a "normal" female with an IS best girl-friend and I fell for an IS boy recently. So in that respect I am on the level with you of sympathy but not first hand experience.

No-one can make these choices for you, but I am very glad to hear you arent looking at surgury immediatly. I think the others have already stressed to you the importance of waiting. However in my opinion hormones and such should not be continued just yet either. There is always the possibility that in coming years your child will reject the assignment of male. if this happens and you continue to try and keep his assignment, he will eventually rebel and later on in life definatly live as his heart or chosen gender. Its also possible he will want to be gender-nuetural. Alot of GLBT organizations will help for support and give him an environment where he can be openly himself reguardless. Making it a big secret that he is IS can damage his self asteem, but so can making a show of it. casual explainations to others and open discussions with him can make it easier I think. makeing sure he knows he's special and thats a good thing, and makeing sure he learns things like who to trust and how to let negative things roll off his back are good too. If he is positive through life that there are people that will stand by him no matter what happens, what he chooses to present and what he decides will be a big comfort. It starts with his family and as he gets to teenage years he will probably find friends who are faithful too.

his life is not going to be easy but it can be good, and the tough parts will make him very strong. I personally find every IS person so much more sound, spiritual and loving than most. Maybe its the nature of being both or maybe its just adversity that makes them that way, but I've never met anyone more beautiful and wonderful than my best friend.

Just a personal question, if on the off chance that your son were to present female or gender-nuetural at a later age, would you be okay with that? Sorry if I'm getting a little direct...please understand I mean no offensivness or harm.



I respect you sooooo much for seeking answers. You are truely an admirable parent. You will need support too, so please dont forget about yourself.

Please fell welcome to PM me any time if you want to. Im always happy to help and its kind of nice to know I'm not the only person on this board experiencing intersex indirectly ^^;

Bright blessings
~WW

Allthelove
05-26-09, 06:51 PM
Hi everyone! I wanted to thank you all for your kind words!

I have an update for you all! It's a bit shocking!!

First of all- we went and met with another urologist at one of the best clinics in the world. The urologist, who is a specialist in pediatrics and intersex conditions, took one look at our son and his medical records and said " you no doubt have a little boy." He was somewhat disgusted at what the other urologist had told us by the tone of his voice and words. He verbally sorted things out with our son's genitals and told us exactly what happened and what in his opinion needs to be surgically done in order for him to have sexual intercourse. He said that based on all of our son's normal MALE test results from birth until present and all normal male internal organs, our son is most definitely male. He also said that the disfigurement of the genitals is caused by 3-4 different genital conditions. They said his penis is normal size for his age but needs some correction. I was absolutely thrilled with the news from him, however I took things with a grain of salt. They gave us a ton of information and told us that they would recommend surgery at 10-12 months of age if he wants to have a normal size and normal looking penis. (I know I will get a lot of response to surgery but, I will tell you that it's medically necessary!)

Secondly- Just days before visiting this clinic, my son went to his endocrinologist and they did more blood tests. As much as I hate to see my little guy fight the lab workers for his blood, we went. They took blood for various things such as testosterone, LH, FSH and DNA. We just got some of the results back and he is producing testosterone! I cannot believe it! This just reassures the decision and makes it pretty clear! I feel so lucky that we are finally getting answers.

I just wanted to fill you all in since I haven't logged in for a bit. I thank everyone for being so informative. I want to tell you all that I've put myself in an IS individuals shoes everyday. I find it easier to understand things. I've done a lot, I repeat a lot of research and reading on all IS diagnosis'. If anyone has any questions, I would be more than happy to share information. We've visited many specialists and a few multi-disciplinary teams in the last 4 months. Much of the information is still fresh in my mind.

Cheers-
Allthelove

The Female Eunuch
05-26-09, 07:33 PM
Thanks for the update, Allthelove.

can you explain why the surgery is medically necessary?

cheers,
Caroline

Kailana
05-26-09, 10:26 PM
she only thinks it is.

all people make testosterone, Look at all the CAIS women, drop dead gorgous naturally developing women and each and every one of them makes tons more then i do. Yet they appear as women, me as male. <---that is phenotype what we look like.

Producing testosterone means didley squat, now being able to respond to that testosterone does mean something.

Now and this is the most important thing i am going to say to you Allthelove.

Surgery to repair and make a phalus appear as normal as possible can destroy any chance of your child of ever enjoying sexual intercourse.
I know first hand what a reconstructed penis feels like, and while what i have appears functional, It is damn near useless because actual penetration only causes pain. which only interferes with any pleasure those so called doctors thought I would have.

I also know exactly what it is like having a smaller penis and being mocked for its small stature buy gues throughout my entire life. ie which doctors again thought would be nice and healthy and adequate for those manly men to accept as normal. They were all wrong and what they rebuilt, has only been a source of shame, and in turn hate.

Now I see your happiness for a sensible solution, and I am hopefull that you will understand that what you decide for your child can destroy him or her. So please think carefully, Gender Norming Forced Genitalia Surgery to correct what another person thinks is in the best interest of in this case your child, May be the wrong choice, and I do hope that if you do go through with surgery and your child rejects it, rejects the male assignment, that you do your best to understand and accept that your little forced boy is and always has been a terrible hurt and betrayed little girl, who needs acceptance and help fixing what you have allowed doctors to do to her.

I honestly wish you the best and hope your child does not suffer a lifetime of misery because of desicions you made when you should of just waited and let him or her decide for hiim/herself.

Peter
05-27-09, 01:20 AM
Hi Allthelove,

Thanks for the update. I know that you may find it shocking that your child has a penis in the normal range of sizes, but from what you said in your initial post, I have always believed this to be the case. I did not say anything, because I did not want to interfere with your decisions, and I figured that you would eventually find that out for yourself. You mentioned that one of the options that you are investigating is penile surgery. There are many support resources available for people with either hypospadias or epispadias. I suggest that you contact the Hypospadias and Epispadias Association. I know a wonderful man with them, and if you PM me, I can provide you with his name. With hypospadias surgery, there are many potential problems with loss of sensation, the need for repeat surgeries etc. I recommend that you get several more first hand accounts of hypospadias surgery outcomes from people who have undergone hypospadias surgery before going forward.

What I find interesting is that several doctors recommended feminising surgery in the case of your child. You say that your child has male reproductive organs. I think that many medical ethicists would be disturbed by the possibility of the involuntary forced sterilization of your child in the name of preventing possible future shame over having a small penis. I was surgically assigned male, and grew up with a very small penis, and I don't regret having a small penis. As I have matured, I have found that ideas about the importance of a penis are often related in a negative way to ideas about women and sexuality. Even if the internal gonads of your child are not seen as being potentially fertile at this moment, there may very well be medical advances in the next five to ten years that promote possible fertility.

I am against intersex genital surgeries done on a non-consensual basis on intersex children. I suggest waiting until your child is older before surgery. Ethically, I do feel relieved to hear that you seem to get leaning against feminization surgery for your child, which would be an irreversable choice of sterilization. If your child wants to undergo feminization surgery later in life, it should be freely available as an option on a consensual basis.

Again, I am highly in favor of raising all children in a somewhat gender neutral manner. Also, openness and honesty are the best policy.

Peter

The Female Eunuch
05-27-09, 01:52 AM
Kailana wrote its not
she only thinks it is.

I thought it would be better to find out why she says there's a medical necessity for surgery before arguing that there isn't, or else the arguments might be irrelevant.

Kailana
05-27-09, 02:06 AM
from what she wrote, the only need for surgery is if to raise her child as a normal appearing male child. that is the only need for surgery that I see. Even her own doctors have reccommended putting off surgery untill the child is 10-12 months old. Which tells me right off the bat that there is no need for surgery. So why not just wait and see tell hes two or three. hell why not wait untill he or she is 6.

Why not just take a step back and think a little and go off of what Peter mentioned and make sure ie a surgury contract with those doctors and what ever hospital to ensure that if a male gender is infact found out later on to be the incorrect one, that they will fix what they have done and will do their best to make sure that her child is happy with the choice he or she is given and not what Allthelove is wishing for.

Lots of us have unique hormone levels that contradict what we are. Lots of us have genetic variations that makes us neither male nor female. And none that realy matters all that much when it is our own feelings and thoughts our individual belief in ourselves that tell us whether we are men or women.

Allthelove is looking for that Miracle cure fixall surgery and tada she has a happy healthy boy. I only worry that she is going to make that incredibly stupid horrendously disastrous decision and force a life onto her child that is not his or hers and will only make his or her life miserable when there was plenty of reasons to just let the child be and figure out for himself/herself what he or she is.

I fear for her, the child only because I allready see it is to late. Fetal development has a serious long lasting brain imprint. That is what My knowledge says, and as an adult intersexed person, I do not see Allthelove putting herself in an intersexed persons shoes, instead she is running away from our shoe's and ignoring the one sensible solution we have asked her to think of, ie wait damnit, and let your/her child decide for himself/herself and get over the fact that your child is not male or female until he or she tells the world he is a male or she is a female.

Allthelove
05-27-09, 03:16 PM
I just want you to know I had written an in depth long response and the server is down and wouldn't put my message through. I didn't save it so I will have to re-write it.

Anyway, It will be up later today. Check back.:outtahere

Peter
05-29-09, 01:08 PM
Hi Allthelove,

I look forward to reading your response. Unfortunately, in the past, I too have written long posts, only to see them disappear in a swirl of lost electrons.

Peter

Kailana
05-31-09, 08:04 PM
I honestly am looking forward to that post/response. I really hope you understand just how much it means to some of us that you are here and looking for answers. Your not the first nor will you be the last parent searching for the right answer?

Issue's though that people like me bring up are very important for others to read and understand. To learn from our experiences is what is really important.

There are a few doctors these who are actually listening because after years of pushing surgery they are hearing and seeing what those surgeries have actually done to us. ie Made our lives much more difficult, made our family bonding much more difficult and overall have torn many of us apart.

Now there are many different experiences we all have, some of us are treated alot different from one another and usually that treatment and or openness and acceptance by our family members differs because our parents are the ones who are more open, and accepting of our differences.

I never mean to sound cruel or intend to dismiss a parents worries. That is extremely hard for anyone to understand what a parent feels without being a parent. I have no parental experiences. I cannot have children, and any temporay dreams of me adopting children were long forgotten because my medical history and treatment by the medical profession has not been very good. <----that is the past, which unfortunately still occurs but I do have hope for a better future for myself as well as for others.

For all parents of an intersexed child, or an older intersexed adult. You really need to open and accept that you as your childs parent, do not have a right to give consent for any kinds of surgery that are not in your childs interest. The only way you as a parent can honestly say, yes my child at ? years of age said they were a boy. Or my child at ? years of age said they were a girl. When that happens that is when you as a parent should be bending over backwards doing everything you can that is possible to make sure his or her doctors are doing everything they can to make sure your child has the body they accept as theirs.

Now fortunately there are some parents who have the understanding that their children are infact intersexed. That they do have a right to their own body, and are doing all that they can to make sure that they their children understand what conditions they have so they, their children can chose for themselves what is in their best interest. The only way anyone else can say for another what is right or what is wrong for them is to first of all listen to what the child, teen, or adult says. This is what it means to love, and accept a person with an intersexed condition. So hopefully Allthelove and parents like him or her, will learn from this little forum that our experiences have been quite bad, and they will understand and hopefully chose a better path for their children.

Now a better path, is out there in our world. Eventually all will understand and respect our bodies just as many cultures throughout our history allready have. Which unfortunately many cultures/society standards currently have turned away from, ie the Christian out dated Victorian era standards of male and female just made life difficult and horrendous for many. I do not blame Christianity, nor any other religion, I do blame the idiocy of people who think they know better then another when they have no knowledge or experience's when it comes to being an intersexed person.

fraulein_Maria
06-07-09, 12:38 AM
[QUOTE=Allthelove;19856]Hi everyone! I wanted to thank you all for your kind words!

I have an update for you all! It's a bit shocking!!

We just got some of the results back and he is producing testosterone! I cannot believe it! This just reassures the decision and makes it pretty clear!

>>> i hate to break it to you, but the fact that your child produces testosterone doesn't mean much.

Complete AIS'ers and Partial AIS'ers also produce testosterone..... in super abundant amounts, but are insensitive to (incapable of responding to) the androgens they make... hence the name of there IS condition... but they look like, and are raised as, girls.

I'm not saying your child has that condition. I'm only cautioning you. The urologist that is SO SURE that your child is male is one to run from as far as possible..... because it is just not possible to be as sure as he is without a GOD complex.

Peter
06-07-09, 04:56 PM
Hi Maria,

You make an excellent point about testosterone and the body's response to it.
In addition to the possible future surgical non-consensual normalization of the child, I am also worried about medical and parental pressures for the psychological normalization of the child.

Peter

vintagedoll42
06-25-09, 05:53 PM
If you haven't already found it or had it recommended, I recommend reading Karkazis' "Fixing Sex," book. It is a good blend of medical information and and experience from parents and adults with intersex conditions. It is the most recent of all the books on intersex and medical ethics, and so the most current in its perspective.

I applaud you for being cautious about surgery...from my reading and my friend's experience with XX/CAH, this is the way to go.