New to Forum

[Shari]

My daughter was just diagnoised with CAIS and She and I would both like to join any support groups available and find out when and where any meetings are held. We live in Ohio. Thanks, Shari

[miriam]

Hi Shari,

It's a bit quiet here lately. There are several people with AIS here, but if it remains too quiet here you can also contact the AIS support group in the US: http://www.aissgusa.org

Groeten (Dutch for 'regards') Miriam

[Kailana]

I do hope your visit is enlightening, though I would like to mention that often this forum is a bit more open about thoughts and feelings. Some posts might be more then you really want to know about, but please don't feel threatened.

Typically in this forum you will read personal thoughts that doctors will not share with parents. Most of our issues generally run along some pretty crappy experiences at the hands of doctors.

I do hope you and your daughter have a better time learning and finding her way in the world. Typically though CAIS women tend to be better treated then other conditions. <---that is a personal belief, there are some advantages to having a female phenotype and having a body the world allready sees as woman. Just remember that all belief's thoughts on here are infact those of the individuals who write them. We do not always agree on all things, but we general find that those who are interested will stay and continue to contribute in ways seldom found on other sights.

Oh and I hope my comment above upsets no one, just a personal observation when CAIS affected women are mentioned many have an easier time, then some affected by other conditions. Now don't think I am being judgemental, as there are still many pitfalls with CAIS, just think for an intersexed condition there are advantages many are not so fortunate to have.
hope this helps some understand my perspective.
1. family accepts their daughters with AIS as girls.
2. Most of society accepts and sees their daughters as girls.

now thats the easy part. The rest is alot harder and is where I see the similarities between conditons.
1. Self acceptance takes awhile.
2. Finding ourselves takes time.
3. Finding a lasting relationship can be troublesome.
4. learning to trust ourselves enough to share with those we care about?
5. infertility which many of us share.
6. Marriage, boyfriends and yes girlfriends too can be issues.
7. Family planning, adopting can be an issue.
8. Trusting doctors is always an issue.
9. generally just finding a goal and not losing track of it throughout life can be burdensome, challenging when issues with depression pop up.

I do not want anyone to assume i think CAIS is easier to deal with then other conditions because its not, but there are a few advantages that some of us aren't so lucky to have.

take care.