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spacegirl
09-24-09, 11:09 AM
I haven't found any handbooks of what different scars mean. But I noticed that as soon a someone described their scars here, responders were quick to say what kind of surgery probably caused them. So the knowlege is there, maybe it would be a good project to collect those scars-causes into a faq or something? Then people could just look it up.

I only had one scar in my pubic region, after my first episiotomy it was pretty plain what had caused it. But I've always had 3 scars on one side of my face, which aren't all that obvious except to doctors who say it was plastic surgery. But I can't explain it, no one will give me any straight answers.

kristan
09-25-09, 01:26 AM
I think this would be a great idea. In my own online research I have not seen any sites go into scars that indepth. Maybe a user here has a descent relationship with a Doctor who knows a lot about the scarring involved with different intersex conditions.

PAISWoman
09-26-09, 07:32 AM
Well for me, I have genital scars due to my surgery and I've tried just about every remedy to fade them. I currently have one long scar on my left arm from surgery that put my arm back to together after shattering my arm into many fragments that it took 8 hours just to remove the splitters.

My genital scars are obvious because, well, I was born with PAIS and needed surgery. I currently use the highest vitamin E as this is supposed to be good for wound healing. I also take a multi-vitamin and 1000mg of vitamin C each day to help. I'm not sure it will help because I scar real easy.

I too would love to see a guide on scaring because there simply isn't enough information on this topic.

Glenn Bozman
09-26-09, 12:50 PM
I have 2 scars in my pubic region, one on each side. I would like to know what these scars mean. My mother always said they were from a double hernia as an infant. When I confronted her when I was older and showing other signs of being different she just said "well I always thought it was a double hernia". She now says she just doesn't remember.

spacegirl
09-26-09, 02:09 PM
oh yes, selective amnesia :) My aunt gets that a lot. Isn't it amazing, they can remember what they had for breakfast on the day they say you were born, but entire surgeries and the reasons why just kind of slip their minds.

Laura Robison
09-26-09, 11:05 PM
My mother is like that too. After her initial confirmation, she says she can't remember any more and doesn't want to talk about it.

Kailana
10-03-09, 01:33 AM
spacegirl,
I should get your aunt together with my mom, a perfect pair they would be. I bet they would get along great.

Denial is a tact only for the foolish and those two, ie your aunt and my mom are about as tactfull as a tick. they will bleed you dry and sometimes leave behind a wake of destruction. I am currently thinking of Lyme Disease.

spacegirl
10-03-09, 11:55 AM
Hi Kailana. Yes, it is very sad, their lies bring a disease into this world. My aunt's lies would have killed me if I'd ever needed a blood transfusion. Whoever she gave birth to was of a completely different blood type than me. They show no respect for our lives. Maybe they don't see us as people, maybe to them we're just cardboard characters to fill out their "family". :(

promed
10-04-09, 03:15 PM
But I can't explain it, no one will give me any straight answers.

Many types of lasers are available for Scar Removal The CO2 and Er:YAG lasers are best suited for acne scarring. The CO2 is an ablative laser that basically sandblasts the skin away; resulting in some substantial downtime. The Er:Yag is also ablative, but less so than the CO2; meaning that it is less damaging. Many different companies manufacture CO2 and Er:YAG lasers.

good luck :gulp:

spacegirl
10-04-09, 04:29 PM
Many types of lasers are available for Scar Removal The CO2 and Er:YAG lasers are best suited for acne scarring. The CO2 is an ablative laser that basically sandblasts the skin away; resulting in some substantial downtime. The Er:Yag is also ablative, but less so than the CO2; meaning that it is less damaging. Many different companies manufacture CO2 and Er:YAG lasers.

good luck


Uhh, I'm not trying to remove them. There's not enough money in my budget for cosmetic lasers. They've faded away enough over my lifetime so mostly no one ever notices them except for keen-eyed doctors. I'm just at a loss to explain them to those keen-eyed doctors. "You've had plastic surgery!", and then they want to know facts I don't know.

Whatever happened, it must have been while I was very young, because the facial scars were already there by the time I was 5 or 6. They used to be a lot more obvious than they are now. They resulted in a lot of teasing, but lasers now won't take away the memories of then.

fraulein_Maria
11-14-09, 12:47 AM
[QUOTE=kristan;20744]I think this would be a great idea. In my own online research I have not seen any sites go into scars that indepth. Maybe a user here has a descent relationship with a Doctor who knows a lot about the scarring involved with different intersex conditions.

>>> I usually visit a university hospital, go to the medical library, go to the reference section, and crack open a surgical text. cheaper and easier than talking to a doctor who will lie anyway.

that being said, i don't know of ANY IS condition that requires FACIAL surgery, much less CAH.

space, where exactly on your face are the scars?

mouth/nose region? possible cleft palate repair, and a common enough birth defect apart from any IS condition. With a skillful surgeon, no one would ever know but another surgeon... or someone like me who studies surgery as a hobby.

close to the eye? possible retinal blastoma

close to the ear/neck? possible simple eustasian (sp?) tube shunt insertion

its really difficult to say though, without knowing more precisely where they are.

if you'd like to send me a photo with a close-up of the area (which i will not save) PM me. <<<

fraulein_Maria
11-14-09, 12:51 AM
[QUOTE=Glenn Bozman;20794]I have 2 scars in my pubic region, one on each side. I would like to know what these scars mean. My mother always said they were from a double hernia as an infant.

>>> not likely. hernia's in male infants are usually singular and usually a hydrocele (water on the balls) that is not fixed that way. Can you tell us more? <<<

spacegirl
11-14-09, 01:08 AM
forehead, scar at where most people have a vein, but I do not.
on both sides of one eye, nosewards and towards side of head. that eye tends to drift outwards.
from edge of mouth through one cheek, section of lips appears removed and stitched shut.

I wouldn't say it was related to intersex, only that doctors insist it was plastic surgery.

When they first do a retinal blastoma surgery? It sounds after my time.

fraulein_Maria
11-14-09, 01:30 AM
[QUOTE=spacegirl;21512]forehead, scar at where most people have a vein, but I do not.
on both sides of one eye, nosewards and towards side of head. that eye tends to drift outwards.
from edge of mouth through one cheek, section of lips appears removed and stitched shut.

I wouldn't say it was related to intersex, only that doctors insist it was plastic surgery.

When they first do a retinal blastoma surgery? It sounds after my time.

>>> re:retinal blastoma...

no clue :) sorry... but if you like, i can find out. :)

as for the rest....

It sounds alot more extensive than a retinal blastoma. definately not the eustation tubes. It sounds like severre cleft palate AND.... damn. ADD brain fart! UGH! it will come to me.

This is how Godde keeps me humble... other-wise i'd be completely, instead of mostly, insufferable. ;)

Dianne
11-14-09, 07:20 AM
[QUOTE=spacegirl;21512]... other-wise i'd be completely, instead of mostly, insufferable. ;)

YOU??? Heavens no! :mrgreen:

Glenn Bozman
01-07-10, 12:04 PM
[QUOTE=Glenn Bozman;20794]I have 2 scars in my pubic region, one on each side. I would like to know what these scars mean. My mother always said they were from a double hernia as an infant.

>>> not likely. hernia's in male infants are usually singular and usually a hydrocele (water on the balls) that is not fixed that way. Can you tell us more? <<<

the scars are angular parallel to the crease of my leg when sitting about an inch and a half from that crease. The scars start about an inch from my penis and are about 4 inches long. They were smaller when I was younger. From what I understand the surgery was done from 0-2 Years of age.