View Full Version : Finally
Finally, after 3 months of waiting, it has been confirmed. I am XXY. Low FSH, low LH. low T and low E.
Umm Congrats?
So how does "knowing" change things for you? Anything different?
It means a great deal to me, to finally find out there is definately a problem and I can stop feeling like a 'poser'.
I was never diagnosed properly and it wasn't a foregone conclusion. At least now, I can be prescibed the proper drugs and doses, with the insight, as to what is written down, instead of the hit and miss approach before.
So yes, there is a difference.
Kailana
01-20-10, 09:30 PM
Notodd,
just curious what meds your being prescribed, some forms of testosterone will lower your own bodies ie testes if you still have them from working, and some can improve your testicular function.
I am not so up to date on which are the better forms.
though panteston (testosterone undecanoate) supposedely helps increase what you have without causing your own production from being wiped out.
I believe Androderm using a similar formula, not sure just becarefull with what is prescribed, you might want to look up different forms of Testosterone that is available in the UK.
I know Panteston is a reddish brown pill, oral, and some people have isssues with oral as alot of it gets ate up by your liver first, but it does work.
Injectables and patches are better, just becarefull of what it is your going to take and that is if your going the Testosterone route, some XXY do go female so Estrogen therapy is possible as well.
joneyhits
01-21-10, 11:49 AM
Just curious, being an XXY, what does medication improve? What balance are you trying to achieve with them? I know that sounds stupid. Just curious as to what it improves or not.
Ok, I will not be going on the Testosterone route. I do not feel male as such. My testes are basically non existant. I'm not even sure if they are testes or not. They have never been hard and round, sort of squidgy and tube like and very small.
Meds.
Sandrena Gel.
We had decided on the Gel form, as there is no 'first pass' through the liver and therefore a smaller dose could be prescibed. I took a months worth of Estrogen (1mg/day) and had some surprising results.
Although only a small amount, I found that my depression left me for the entire time. I am normally 'very' on the depressed scale, sometimes suicidal. I had much more energy and I did a lot of work in the garden, until the snow hit. My self esteem returned helping me to be more outgoing. In other words, I felt like doing things.
I wonder if some of the E was converted into T by my body.
Other effects were, a quickening growth of evening shadow, super sensitive nipples and improved sleep patterns.
Once the treatment ended, 'normal' (for me) service resumed.
Ok, I will not be going on the Testosterone route. I do not feel male as such. My testes are basically non existant. I'm not even sure if they are testes or not. They have never been hard and round, sort of squidgy and tube like and very small.
Meds.
Sandrena Gel.
We had decided on the Gel form, as there is no 'first pass' through the liver and therefore a smaller dose could be prescibed. I took a months worth of Estrogen (1mg/day) and had some surprising results.
Although only a small amount, I found that my depression left me for the entire time. I am normally 'very' on the depressed scale, sometimes suicidal. I had much more energy and I did a lot of work in the garden, until the snow hit. My self esteem returned helping me to be more outgoing. In other words, I felt like doing things.
I wonder if some of the E was converted into T by my body.
Other effects were, a quickening growth of evening shadow, super sensitive nipples and improved sleep patterns.
Once the treatment ended, 'normal' (for me) service resumed.
Did you consider trying HCG to kick start things? HCG will "force" the testes into functioning. Only down side if you got to give yourself a shot twice a week or see the dr for it.
E cannot convert to T. T can convert to E though.
Handy steroid tree
http://www.ceri.com/q_v7n2q3.htm
E acts as a neurotransmitter and it is MUCH more powerful than testosterone. It also extends the length of time hair grows, so hair grows longer but thinner. It causes the skin to thin as well.
I too am generally depressed feeling. I took Testosterone cypionate 200mg every 2 weeks for nearly 4 years and my depression and lethargy got worse and worse. I did "resond" to it by developing body hair and beard and gained muscle and fat but I got none of the psychological changes I was seeking on it.
On estrogen I feel really great, however it makes me sick if I take it unopposed. I was lethargic on T, sleeping 12-14+ hours a day and always feeling wiped out. On E when I tried that I only needed a few hours of sleep a day, I even had trouble sleeping/insomnia. If there was any light I was wide awake. But I didn't feel tired and wiped out.
I hope you find what works for you.
That sounds like really helpful news
if you know what you're dealing with, you can start testing different things can't you :)
I've found that the gel form hrt is really good for working out what dose is appropriate but it gets a bit tiresome long-term. plus you have to be careful to keep the area you apply it to covered when in contact with others (ie my hubby :) )
because I'm using a quarter/a third of a gel packet, it is really awkward when travelling etc.... my bag got a really good dosing the first time :)
well anyway, good luck and I'm really pleased for you... well, ok not as pleased as if you'd had a life where you'd never had to deal with all this... but you know what I mean, at least you can DO something now
jos xy
Thank you Aseras, for the info, I'll have a good read when I'm not quite so tired. Been a long day. I assume that because of your situation, taking unopposed Estrogen is more of a problem than I have. As far as I know, I don't have anything 'inside' to worry about. What is HCG when it's at home?
And Jos, nice to hear from you again. I hope you are keeping well?
HCG is human chorionic gonadotropin. It's a chemical that's usually only present during pregnancy. It's what pregnancy tests look for actually.
Aside from that though it functions in the body as the hormone LH. They are nearly the same molecule and functionally are the same. Testes testosterone production is controlled by LH. So by taking HCG you induce the testes ( leydig cells ) to produce testosterone, and to grow to produce more if they are capable.
FSH the other hormones controls sperm production in the testes, so if the testosterone is being made properly after HCG for a few weeks then a shot of FSH will cause semen to be produced if those cells ( sertoli cells ) are working.
In ovaries the follicles are the equivalent of the sertoli cells. Sertoli cells are regulated by estradiol and produce estradiol in men as well. However the follicles are cystic and produce much larger amounts when they rupture an egg. Then the remainder of the follicle becomes the corpus leuteum and then LH controls that and the leutuem produces progesterone. LH surge causes the follicle to rupture so for women, FSH is given to induce follicles to develop and then HCG is given to release the eggs that have matured.
While HCG and LH are functionally similar HCG lasts about 3 days whereas LH and FSH only last about 1/2 an hour in the system. HCG is also MUCH cheaper to procure and make available.
USed to be that HCG was made from the urine of pregnant women. LH and FSH were made from the urine of menopausal women.
Now they are made from cells that are genetically engineered to make them with recombinant DNA.
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