hello (and tries not to faint and stammer)

[krisalyx]

um hello? i'm kris devereux and i've got (gulp) Klinefelter's and through i've been doing a lot of leg work on the issue i've been trying to find the root cause of it and yes in case you do ask i do identyfy as female due to this and through i've struggled with this for years now but for the most part i'm happy and well adjusted (well as well adjusted as you can be) being handicapeted and all and having very wide hips (shakes her ass and hips like a kitty trying to catch her own tail)

[galens47]

Welcome!

Cheers

G

[Cheryl]

Welcome! I think most of us are familiar with how it feels to chase our tails. You are not alone and welcome to BLO. I can appreciate your being nervous about posting because I felt the same way my first time.

[Aseras]

Hi Kris.

Welcome.

Being nervous is normal. There are plenty of people here who can identify with you and really understand. I hope it helps. Sounds like you have most of your issues under control and know what you want. That's a big accomplishment.

[Kailana]

welcome to BLO Krisalyx, great to see you found this forum.

Just wondering what it is you are looking for about the root cause of Klinefelters, there is a handy online guidebook, though it mostly talks about XXY male. Many of us understand there are indeed XXY females as well, so it is not a shock to anyone who has been around long enough to learn that the condition alone doesn't make anyone specifically male or female though many researchers and some people affected by the condition may say so.

Oops. Sorry small barb to those who haven't yet understood the vast variation amongst the many conditions that exist.


Anyways, just asking or wondering if we can help in anyway. Even amongst klinefelters there is genetic variation. Such as SRY positive and SRY negative. So yeah it is possible if some are curious for someone to be XXY and still develope female, <--that is just rare but does happen. And there are Mosaic XXY's just like there are with other conditions so you never really know why one person might identify as male or another as female and yet still have the same conditon.

I generally just call stuff like that, The Way The World Really Is.

The world is full of unique individual people, and we all need to learn to accept and understand each, as each is special in thier own way.

best wishes always.

[krisalyx]

well to tell the truth i have done some legwork (as i said) looked it up on google health and wikipedia but as a friend of mine said "it's not genetic in your case it's the drugs you dummy" and i think he's right this is what i do know i was born in the mid 70's and my mom was given some sort of drug when she was pregnant with me and of course everytime i ask her she absolutly refuses to talk about it. and with her it's always "boy " this and "boy that sigh you'd have to be blind not to see that i'm a girl (gropes own 42D breasts) but honestly as another friend of mine said a lot "you NEED to get checked out" but my problem is finding a doctor that would NOT tell my mom 'cause if she found out i'd be DEAD very very dead so since i live out in the country it's not been easy what i would need is a ride to and from the doctor but it's gotta be kinda close to me but not close that the doctor would know me, so i'm in a very bad bind here any advice anyone could give me i would love that very much

[Aseras]

Well be careful chasing a reason why. What caused something usually is just an expensive waste. You mostly need to decide what you need to do about the way you are now.

How old are you? Are you still living at home? Doctors should not tell anyone about you unless you allow it in a written release or unless you are a minor.

I'm sure you can find help, but it may take traveling quite far, and it may take a lot of money to get the answers you are seeking, and they may or may not help.

How did you get your diagnosis?

[petra]

From reading your posts I gather that you are either a minor and thus live at home OR you are 'handicapped' (you mentioned that word in one of your posts) to the point that you must need ongoing attention and that is why you live at home. I am also assuming you got your diagnosis of KS from what you read on the internet.

The frequency of KS/XXY is about 1 in 500; for other variations, the frequency varies. It occurs randomly. You will hear that the cause is due to the advanced age of the parents, though this not always the case (my parents were in their twenties, I was first born, and there is nothing wrong with my sisters or brother). Your friend (a doctor, is he?) says it is due to drugs (maybe, but not necessarily). The only way to be sure you are KS affected is by getting a karyotype; it is a bit pricey but is better than playing doctor.

Generally, the way the 47XXY condition occurs is that one of your mom's eggs contained two X chromosomes, instead of only one OR the sperm that impregnated that egg contained both an X and Y chromosome instead of one or the other. There is a whole slew of variations, but the only way to know what you have (or don't) is through a karyotype.

[The Female Eunuch]

Hi Krisalyx,

you wrote: i was born in the mid 70's and my mom was given some sort of drug when she was pregnant with me and of course everytime i ask her she absolutly refuses to talk about it.

I was also born in the mid 70s, and my mother was given a drug called 'Debendox' while she was pregnant with me. For a long time she suspected my medical problems and other abnormalities were due to Debendox, because there was a lot of speculation that Debendox caused birth defects. Now the scientists seem to have soncluded that it probably didn't, and that the only rerason why researchers were abler to find a lot of babies with birth defects whose mothers had been on debendox was because debendox was so widely used ans a morning sickness drug, and that the rate of birth defects among people who were exposed to it wasn't actually any higher than among people who weren't.

[fraulein_Maria]

[QUOTE=The Female Eunuch;22937]Hi Krisalyx,

you wrote:

I was also born in the mid 70s, and my mother was given a drug called 'Debendox' while she was pregnant with me.

>>> it might also have been one of the many versions of DES. She would not be the first DES son with 47XXY aswell. You can find the other one @<hidden> in the DES forum. I'm sure she'd love to talk to you. :)

[Kailana]

Debendox(Bendectin) ie(dicyclomine-doxylamine-pyridoxine) thought to be a cuuse of:

During the period 1966-78 the total number of births each year and the overall incidence of congenital malformations per 10 000 births fell. The incidences of cleft lip, cleft palate, reduction deformities, and defects of the heart and great vessels fell from 1966 to 1976 but increased in 1977 and 1978.

I came across a variation in Poland apparently something abbout pectoralys failure of developement, lost that link during my searches but so far reading through around a dozen or so posted articles no mention of intersex conditions being caused by the use of Debendox. Could be that it is possible that Debendx was used but it may be irrelevant if XXY actually runs in the family.

Do you know if any of your relatives are XXY or have any simlar known condition's?

That might help clarify some things for you if you check with extended family.

Seriously, there are several conditions that could cause phenotype like features of Klinefelters, not just XXY, but if you have relatives with who know what they have it might make it alot easier as a place to start with, ie something to as your doctor about.

I am not sure why you would think asking a doctor about your body would be such an issue for you. Lots of us see doctors for many reasons, would it really be that much of a problem if you asked during one of your check ups ie physicals or your next appointment ie whenever you see your doctor just ask him or her about your body. Seriously I doubt it would be that big of a deal, especially if raised male, and that well endowed, i am sure your doctor would take at least some of your concerns seriously.

best of luck to you.

[krisalyx]

you could be right about the drug through and that could explain why my legs stiffened when i was 6 months old as well now i just have to prove it and that's the hard part sigh honestly i want to know the truth once and for all but with the records long since destroyed and my mom absolutly refusing to talk about it everytime i bring it up, and the point'bout if anyone else in my family is like me as far as i know (shakes head no) as my sempai said about me "when you were born they broke the mold"

[The Female Eunuch]

Hi Kris,

I wrote:I was also born in the mid 70s, and my mother was given a drug called 'Debendox' while she was pregnant with me. For a long time she suspected my medical problems and other abnormalities were due to Debendox, because there was a lot of speculation that Debendox caused birth defects. Now the scientists seem to have soncluded that it probably didn't, and that the only rerason why researchers were abler to find a lot of babies with birth defects whose mothers had been on debendox was because debendox was so widely used ans a morning sickness drug, and that the rate of birth defects among people who were exposed to it wasn't actually any higher than among people who weren't.

I think I need to explain the point of this anecdote.

After the Thalidomide scandal was uncovered, people became quick to blame birth defects on medication. It wasn't necessarily true, and people have since discovered that some drugs were wrongly implicated in causing birth defects. I'm assuming your friend has heard about birth defects being caused by a drug your mum was on while she was pregnant with you, but it's not necessarily true. Don't assume your problem must have been caused by that just because some people have thought so.

cheers,
Caroline

[sharonk868]

Welcome! I think most of us are familiar with how it feels to chase our tails. You are not alone and welcome to BLO. I can appreciate your being nervous about posting because I felt the same way my first time.


I also think so.