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imysworld
02-26-10, 05:51 PM
It says there are three people viewing this group of posts, but no one ever seems to reply to the posts or write new ones, since i joined there have been 4 and i joint in september :s just seems to be so quiet!?

notodd
02-26-10, 06:11 PM
Ah, but how many of them are members?

Aseras
02-26-10, 07:22 PM
This place is usually dead unless there's some drama going on.

damaralenoire
02-26-10, 08:27 PM
I have posted on here, 40 times the post has been read and not one reply. So much for pleaing for help. Just glad you created the facebook page

louisev
02-26-10, 10:13 PM
I have posted on here, 40 times the post has been read and not one reply. So much for pleaing for help. Just glad you created the facebook page

I tend to read everything, and the reason why I don't reply to items in AIS forum is because I have no helpful information about it. I am looking for information because I suspect my own condition (CAH - newly diagnosed) may have eluded diagnosis for a long time due to being an AIS carrier and I'm looking for info. So it is quite possible others read for the same reason you posted - because they are looking for answers, but have none to give you.

Aseras
02-27-10, 02:06 AM
I have posted on here, 40 times the post has been read and not one reply. So much for pleaing for help. Just glad you created the facebook page

I saw your post but I dont know what advice to give you as healthcare here in the US is quite different than in the UK under NHS.

imysworld
02-27-10, 08:59 AM
I only saw your post after you joined my group, but by then i had already spoken to you so i didnt reply, this place doent have many people with the condition im so glad i created my facebook group! Met alot more since :) :wave1:

Kailana
03-01-10, 09:08 PM
My apologies, I generally post some information when someone asks for info, but another member asked me to not do so.

I tend to think it is best to provide what answers I can, as this is in the AIS area, sometimes Miriam will come along and delete and repost more accurate information, that usually doesn't happen often though.

Fact is I do think all members should try to learn about other conditions and offer something, at least a hello or warm welcome.