hi to u all

[surrealprincess]

Hi to all of u.
Just found this community and registered hoping I could make some new friends and get to know people who have the same problem I have.
I'm suffering from Swyer syndrome what means that I look like a woman but have a male karyotype (46,XY).
There aren't many people who know about that and I also don't know how to talk about it.

If you have any questions about me just ask.

So... I hope to get to know some of you :)

[Aseras]

Hi, Welcome. There's several swyer's gals here. You are in good company.

[valko]

Heyhey!!! I want to be your friend ) My name is Valenteena i`m 23. I have gonodal dyskinesia , sense of humor and creepy english u can laught on. GD means after all operations i look like a girl, but i have mutations in 46(i even don`t know exactly my cariotype (but i can find it if u want ))))) , u could Find me on skype as lolka431, or icq as 613296001 OR!!! lolka431@<hidden> on gmail chat. Wheeeew. That is all. And don`t forget, I`m w8ing. Whooopeeeee!!!

[XXYGuy]

Heyhey!!! I want to be your friend ) My name is Valenteena i`m 23. I have gonodal dyskinesia , sense of humor and creepy english u can laught on. GD means after all operations i look like a girl, but i have mutations in 46(i even don`t know exactly my cariotype (but i can find it if u want ))))) , u could Find me on skype as lolka431, or icq as 613296001 OR!!! lolka431@<hidden> on gmail chat. Wheeeew. That is all. And don`t forget, I`m w8ing. Whooopeeeee!!!

Hi, I looked up "dyskinesia" and it doesn't seem to fit with anything gonadal, are you sure you don't mean "dysgenesis."

I know a little bit about Gonadal Dysgenesis but nothing about Gonadal Dyskinesia.

[XXYGuy]

Hi to all of u.
Just found this community and registered hoping I could make some new friends and get to know people who have the same problem I have.
I'm suffering from Swyer syndrome what means that I look like a woman but have a male karyotype (46,XY).
There aren't many people who know about that and I also don't know how to talk about it.

If you have any questions about me just ask.

So... I hope to get to know some of you :)

I have a male karyotype, it's XXY. I grew breasts years ago after starting testosterone therapy, it's a side effect, and got rid of them pronto. They didn't quite match with my body image. :-o

Can you tell me what the difference is between Swyer syndrome and AIS?

[peaceandparty]

hi there
and welcome to BLO

can you answer us why you claim on your videos on youtube that mishakailana is not what and who they say they are?

all for one and one for all
we are all one but we are not the same
peace be with you xxyguy eventually:rolleyes1

[XXYGuy]

hi there
and welcome to BLO can you answer us why you claim on your videos on youtube that mishakailana is not what and who they say they are?:rolleyes1


I don't think that topic belongs here peaceandparty but all is explained in my video which you'll fine here:

http://www.youtube.com/watch?v=zDEYUv1YZpQ

So when you've watched it and digested it's contents and examined all the evidence including Mishakailana's own videos you'll understand.

[XXYGuy]

hi there
and welcome to BLO

can you answer us why you claim on your videos on youtube that mishakailana is not what and who they say they are?

all for one and one for all
we are all one but we are not the same
peace be with you xxyguy eventually:rolleyes1

How unfortunate, one of my channel was terminated today as I refuse to play the dumb game the YouTube Staff want me to play, so anyway, that video is now not there, but it re uploaded here, and for you information it looks like the fraudulent video Mishakailana made for HealthyPlace "America's Mental Health Channel" appears to be up for removal along with her personal blog. And fascinating the decision to remove all personal blogs came after I sent them the link to this video:

http://www.youtube.com/watch?v=w1m4WrbY-so

[Tyincc]

Hi,

I am new to this site and doing a lot of reading. After too many years of thinking I was a late bloomer as a male, hiding and embarrasment through my adolesence, as I was more interested in traditional female things, forcing myself to be someone I was supposed to be, and getting married to a woman (who I am still extremely close to) left me confused and alone. I finally concluded that I was a just a gay male and I had just fought it off as I had been called cruel names as a child by many including my father who claimed that I was not "his" because of what I was. ..a sissy etc. Yeah I threw and ran like a girl. Finally I met men I could communicate with. To fix my male "defects", I later had surgeries to correct things that I thought were just physical deformities, but nothing could change my curvy body or me. I never put it all together and was surprised that after years of doctors visits, nothing was ever mentioned to me, and, I was embarrased and afraid to bring it up. Tests of my testosterone resulted in reports that it was in an adequate range but homogenously described as "defective" due to any one of several reasons like my father's exposure to malaria and related medication, quinine. The sadness of rejection by other gay men who felt that I physically did not cut it made relationships difficult. It all came to head when I met my current boyfriend who is a family doctor. He thought I knew that I was fully aware of my situation. Discussion on my hypospadia started the discussion. My smaller than average penis, undescended testicles that, removed later in life, never produces ejaculate, development of breasts (reduced, but returning), characteristics like a curvy body and tendencies. Sexually I am drawn to men as it is easier from a cultural standpoint, but I have equal sexual feelings with a woman. I don't know if I am gay, straight, bi-sexual or if there is even a term for what I am. I also wonder if tags are necessary. Earlier in life people would sometimes approach me and call me Miss or Ma'am. ...I can go on but I am sure many of you know the picture. So, I am trying to figure out my next step. My BF says he loves me as I am, as does my ex-wife. He suggested I seek out website groups as my best first step. I have so many questions and so much to learn. Thank you for being here.

[Kailana]

surrealprincess

Welcome to BLO and hope you find some support and understanding here.
Typically some information on Swyer's has been posted in the AIS threads. Some of the AIS support groups also provide some additional support on Swyers and other similar conditions similar to AISer's.

[Tyincc]

Welcome,
I just recently found this site too. I am still trying to figure it all out after thinking for years that I was a gay man with some physical "defects" and feminine ways. After hearing years of how I act like a girl, throw like a girl and walk like a girl, among other characteristics, and being mistaken many times as a girl/woman, it finally hit when my recent boyfriend, a family doctor, opened my eyes to all of what I thought were disconnected issues. There have been times in my life I thought I was a freak and had moments when I thought I was losing my mind. Rejection has been the toughest part of this to me as well as thoughts of how nice it would be to feel 100% male or female, if there is such a thing.
It would be nice to meet with others like us some day if anyone knows of get togethers in different geographic areas.

[Kailana]

Tyincc

There are a few support groups though usually condition based that have yearly gatherings. Both the AIS and Turners Groups have conventions. I do not know of too many others though am aware of several for other genetic conditions(not dealing with IS issues) that get together.

[galens47]

Welcome to BLO,

There seems to be some heated discussions these days but it is a good place to meet other intersex or DSD variants.

Cheers,

Galens47

[peaceandparty]

:angel_smi yeah sorry to pollute your introduction with that!:angel_smi

excuse me please

it was my first post in a few months
i forgot where i was posting

welcome truly to BLO

a great site where we are actually a very large community of different species of human!
if we include men and women in that spectrum too,then we are all just people
we are all one but we are not the same

:idea2: we look forward to all members contributing what they can!:idea2:

it takes one drop of water to start a waterfall

[peaceandparty]

Welcome,
I just recently found this site too. I am still trying to figure it all out after thinking for years that I was a gay man with some physical "defects" and feminine ways. After hearing years of how I act like a girl, throw like a girl and walk like a girl, among other characteristics, and being mistaken many times as a girl/woman, it finally hit when my recent boyfriend, a family doctor, opened my eyes to all of what I thought were disconnected issues. There have been times in my life I thought I was a freak and had moments when I thought I was losing my mind. Rejection has been the toughest part of this to me as well as thoughts of how nice it would be to feel 100% male or female, if there is such a thing.
It would be nice to meet with others like us some day if anyone knows of get togethers in different geographic areas.
if there is such a thing..........exactly!
i felt very similar!
and still feel....literally