searching for xxy/xxxy's

[CC]

A friend of mine who is mosaic xxxy has asked me if I know of any people with this karyotype,it is a very rare chromosomal make up,so much so that,my friend is only aware of one other person in the world with such an anomaly.

If you are,or if you know of anyone who is xxy/xxxy please contact me here at Bodies Like Ours.

Thank you in advance

Canice.

[1~N~A~Million]

I to have this karyotype, and PAIS, and along with that Ehlers- Danlos Syndrome. What i'd like to know is how many intersex people have accompanying problems such as marfan's syndrome, EDS, polysistic ovarie syndrome, ect.?.....EDS is mostly hereditary but there is one form that is X linked as i am, is there anyone else in the world with this?

me

[mohnblume]

@<hidden>:

I published your question in the German Klinefelder Forum http://www.klinefelter.de/forum/index.php?board=4.0

[CC]

Thank you Mohnblume,I really appreciate this

Canice

I published your question in the German Klinefelder Forum

[mohnblume]

I was told that in Hamburg Germany there is a boy living with xxxxy chromosome. Is that imprtant to know for your friend?

[CC]

Hello 1~N~A~Million:wave1:

I to have this karyotype, and PAIS
I've got an xxxy friend in Montana who,has been searching for many years for fellow xxxy's (3xy) his searching included placing adds in various newspapers,T.V and radio and in ten years of searching,has found only one other.

Would you mind if I were to give your contact details to my friend in order for him to contact you ? I know my friend (james)would be estactic to hear from you.

EDS is mostly hereditary but there is one form that is X linked as i am, is there anyone else in the world with this?

I am xxy and do not have any of the conditions you have mentioned but,I managed to find a Yahoo Group (edsers)This is a semi-moderated group for people with EDS (Ehlers Danlos syndrome) and folks interested in learning more about it http://health.groups.yahoo.com/group/edsers/

Best wishes

Canice.

[CC]

Hi mohnblume

I was told that in Hamburg Germany there is a boy living with xxxxy chromosome. Is that imprtant to know for your friend?


My friend (james) only wishes to contact fellow xxxy's or mosaic xxy/xxxy

Canice.

[Priestess]

My friend (james) only wishes to contact fellow xxxy's or mosaic xxy/xxxy

Canice.

If you've already got 3 x's, does the 4'th x change things very much?

[Az1]

Up yep I'm a XXy.

Hi Priestess, how are you today. I am Good.

Az1

[Priestess]

Up yep I'm a XXy.

Hi Priestess, how are you today. I am Good.

Az1

Hi Az, I'm glad you're doing well. I'm waiting to hear back about the results of the ct-scan the docs wanted.

[Danielle_Alicia]

I am xxy.

[CC]

Hello Danielle

My friend is a mosaic xxy/xxxy (very rare)and is searching for people with a similar karyotype.

I had a look at your blog http://spaces.msn.com/lilacdreams/ and I must say,you certainly do not come across as the average 'run of the mill' type xxy.Can I ask,when were you diagnosed and what treatment if any,have you been recieving ?

Canice.

[maximoomoo]

Hi Canice

My husband is XXY Mosaic and we discovered this while getting tests after we had suffered 3 miscarriages.

This was only in Dec 05 so we are very much at the beginning of our journey.

We have an appt at the endocrinologist this afternoon to hopefully figure out a way of increases his testosterone without killing his sperm.

[fraulein_Maria]

What i'd like to know is how many intersex people have accompanying problems such as marfan's syndrome, EDS, polysistic ovarie syndrome, ect.?.....me

>>>> I've only recently learned that a Dx of polycystic ovaries and CAH are not mutually exclusive, and that the former often accompanies the latter. I know of one IS woman with Marfan's (what's EDS? i probably know the long name) but that's it for now.