A member suggested I may have CAH

[Rycharde]

Ok so I described my situation on my intro post.

Someone read it and suggested I look into this so I've been reading and hmm well some bells go off.

I was in a coma May 05 said to be brought on by flushing my sodium levels to rates that caused me to go into seizures and almost die.
They said it was because I drank so much water that I had no sodium and I was restricted from drinking water when I woke up from my coma!
So how much water does it take to flush all the sodium out of a person my size?
I was told 86 liters, but don't quote me on it.

I have been sent for Rheumatoid testing because my joints are gone. I'm only 24.
I've got a million other health issues too.

The condition of my body is "Stopped at 12" no puberty, no masculine features, no feminine features.
Mom, #1 Aunt and Grandma physically resemble me, Aunt #2 is short fat and curvy with huge breasts. Not like us at all.

I have been living as a boy all my life, I have taken supplements to raise my testosterone levels and on a scale of 1-10 my doctor conveyed man as 10 and woman as 1, he scored my level as a 5.9.

I've had 2 live full term births, both conceived on birth control pills. My current pregnancy was conceived while taking supplements, the supplements I took also raised my estrogen. I don't know how but my doc said that I was ovulating normally and I got a period so I had intercourse and yay I'm pregnant. Otherwise I don't get periods and I had been in a relationship with a man for 5 years of unprotected intercourse with no conception, although he and I had a baby when I was on the pill.

Now I want to figure out if CAH is something I might have. But I want to be masculine. I want to be a man the rest of my life, as I have always been (aside from lapses in sanity where I actually tried to be a woman LOL)

BUT if I DO have CAH does that mean that I'm going to have doctors trying to level me out by giving me ewww estrogen and making me female! I'd rather die a man than have someone help me turn into a woman.
I can not express my hatred for being thought of as a woman enough in words except that my inability to express how much I hate the idea of living as a woman makes me want to destroy things and hurt myself and others. That's how seriously I do not want anything to do with being female.

I LOVE being feminine. I am a gay man,I am a flamer and I do drag and I get called a lady because I'm one of the girls but get it right that when it comes to who I am, I am a feminine Man, with a vagina.

Other key points hmm- no real clitoral enlargement. It's kinda big but not really, the big part is where I urinate from which comes out an inch or two when erect.
Pregnant and muscle walls still in tact, females muscles move to the side when they get pregnant, I'm 6 months, no change in their position, they never separate. My hips are still where they always were, they never separate and my joints pop and hurt like hell.
Lately I am having trouble urinating. Slow and steady. It takes a good 10 mins to get the job done.
No vaginal orgasm, anal orgasm, clitoral and the area around my urethral opening are sensitive, but nothing up in the major cavity.
My jaw didn't grow and my teeth got too big for my jaw.
I have seizures that cause my whole left side to go numb and I lose all ability to speak in normal sentences.
EVERYTHING feels better when I have high testosterone. No more Manic Depression, joints feel better, no seizures, healthy feeling.
I have a light and soft spoken voice by choice but can belt out bass if I barrel it from my chest, I don't because I'm a sweetie and it scares people when I yell because I'm so cute and little...I sound like Ross the Intern!!!!
My voice got really low when I took supplements, really fast too but I can still speak lightly because of my natural way of speaking.
I was supposed mentally retarded at age 8 and found to be top 98% IQ (over 160) and then they said I have ADD, then they said I have Aspergers, then they said I don't and they don't know what is wrong, I don't like "them" at all.

So what does it sound like to you, people who have dealt with CAH for how long and know a lot about it?

And again I don't want to get tested for CAH if it means I won't get testosterone if I have it.
If I don't get my T I don't want to be alive. So risks, ah well, die happy. I just want to grow up as a normal man.

I don't know what else to say or ask but I hope someone can point me in the right direction and broaden my understanding, I have read the pages in the links on this forum and I don't see anything that answers "what if I like being a man and have CAH?" So I'm asking.

If it sounds like I have something other than CAH to you, what is it? Point me please!

[miriam]

Rycharde, for a diagnosis, you'll have to go to a doctor. For more information about coping with a high IQ, you can read what Wikipedia is saying about High IQ societies.

http://en.wikipedia.org/wiki/High_IQ_society

Groeten, Miriam

[Rycharde]

Read, please. I don't want to go to a doctor and I don't want to hear you tell me I have an identity crisis.

And I don't want you posting an end all post like that which will discouage other people from actually HELPING me.

I'm not stupid. Obviously because I have a high IQ :pat: and thats not what I asked for help with.


If I got diagnosed with CAH would a doctor prescibe me testosterone if I wanted it?
I don't want anything but testosterone in me as I live as a male full time and wish to grow a huge beard, be hairy as a bear, smelly, sweaty and muscular. Not taking T would cramp that a little doncha think?

I'd never get diagnosed with anything that will prevent me from being prescribed my hormones.
So I don't want to go and have it checked if I might get told not to take T.

I don't care about my length of life or if I am sick the rest of my life as long as I can live as myself.

I hope this has been clearly stated that what I need to know concidering I have many CAH symptoms is if this will stop my FTM Transition.

[miriam]

Now I want to figure out if CAH is something I might have

If you really want to figure it out, you'll have to go to a doctor. I'm sorry if this is not the answer you want to hear. Even for a medical professional it would be impossible to diagnose you with CAH (or not) with only the information you gave in your post.

That said, I wonder why testosterone would be a problem for you if you would be diagosed with CAH. But I'm not an expert on CAH.

Groeten, Miriam

[Rycharde]

Thank you, then why don't we just let someone who is an expert answer that ok?:grouphug0

[apple]

Thank you, then why don't we just let someone who is an expert answer that ok?:grouphug0

Excellent idea Rycharde.

So then go see a doctor like Miriam so kindly and patiently has advised you.

It doesn't take a genius to know, that in order to obtain a real diagnosis, you must see a qualified physician.

Now lets see you use that big ass IQ of yours OK?



Heavens sake!

Your head: It's more than just a place to wear your hairstyle.

[Rycharde]

Well this big IQ of mine says that (although you may not like me being here because of it) that some people may consider me as trans.

I was raised to be allowed to be anything I want. And despite politics I don't want to grow up into a woman, I want to grow up into a man. I don't consider this being trans because it's not a transition.

I am here to LEARN about a condition BEFORE I see a doctor so I am prepared and have an understanding of what the condition implies prior to having medical treatment.

Also like I stated, no matter what my condition is, I feel that I need my testosterone.

The simple question I want answered is because CAH is an adrenal disorder, how would that effect being prescribed testosterone to further my masculinity?

The fact is I am very masculine in mind and quite masculine in body, I like myself this way and wish to continue growing as a man.

So if you feel like you are warding off another tranny until you see me come on here with some tests that say I'm IS from a doctor then that's just plain rude.
I know a lot of trannys get jealous of people who are born with some decent explanation for having wanting to be of the opposite sex but then why would I choose to pretend I have CAH to make myself justified, that is just stupid.

I wanted to be a little boy far before any disorder would have had a masculine effect on me, I'm just plain male gendered- regardless of medical condition and confident with it.

So here I go using that huge IQ of mine to cut that apart and I'd like to request that the community here help me in learning about how transmen with CAH are treated and the risks/medical issues involved in being treated with cortisone AND testosterone. If a doctor would be against that.

I have advised my mother who I have not spoken to for over a year of the existence of CAH through an aunt in the medical profession, she has been very sick the last five years and doctors can't figure out why. Sometimes she can't even breathe. She won't let me in on her conditions but I know she's been on a hundred different hormones and pills and crazy stuff that doctors can't figure out what is wrong with her.
Maybe she has CAH and maybe you just saved her life.

I'm here to learn, I'm not asking you to diagnose me. I know only a doctor can do that.

I want to know the consequences of this diagnosis on my life as a man and how it will effect me maturing into a normal male.

And I want to add, that it feels really crappy to be turned away and given a cold shoulder by jealous trans men and IS people who accuse me of being just another jealous tranny. It hurts you know. I'm human and I have a right to learn.

[apple]

Well this big IQ of mine says that (although you may not like me being here because of it) that some people may consider me as trans.

I was raised to be allowed to be anything I want. And despite politics I don't want to grow up into a woman, I want to grow up into a man. I don't consider this being trans because it's not a transition.

I am here to LEARN about a condition BEFORE I see a doctor so I am prepared and have an understanding of what the condition implies prior to having medical treatment.

Also like I stated, no matter what my condition is, I feel that I need my testosterone.

The simple question I want answered is because CAH is an adrenal disorder, how would that effect being prescribed testosterone to further my masculinity?

The fact is I am very masculine in mind and quite masculine in body, I like myself this way and wish to continue growing as a man.

So if you feel like you are warding off another tranny until you see me come on here with some tests that say I'm IS from a doctor then that's just plain rude.

I know a lot of trannys get jealous of people who are born with some decent explanation for having wanting to be of the opposite sex but then why would I choose to pretend I have CAH to make myself justified, that is just stupid.

I wanted to be a little boy far before any disorder would have had a masculine effect on me, I'm just plain male gendered- regardless of medical condition and confident with it.

So here I go using that huge IQ of mine to cut that apart and I'd like to request that the community here help me in learning about how transmen with CAH are treated and the risks/medical issues involved in being treated with cortisone AND testosterone. If a doctor would be against that.

I'm here to learn, I'm not asking you to diagnose me. I know only a doctor can do that.

I want to know the consequences of this diagnosis on my life as a man and how it will effect me maturing into a normal male.

And I want to add, that it feels really crappy to be turned away and given a cold shoulder by jealous trans men and IS people who accuse me of being just another jealous tranny. It hurts you know. I'm human and I have a right to learn.


Hi Rycharde,

I do understand your concern about the medical implications of CAH and, .... sorry I have to say it, because I can't even dream up a way to say it, without saying it, ..... your desire to receive transformative (is that a word?) testosterone treatment to become a man physically.

I am not "anti-trans", and personally I believe that applying gender deconstructionist logic to such affairs of the heart, psyche/soul, is rather pointless. However, .... since I myself am 'not smart' and lack fancy educational credentials, .... I will yet try to apply a touch of (what I call) logic, in a limited way, to "gender". I will however do so, in a way in which I intend as helpful, rather than merely dismissive.

From my perspective, gender is wholly insubstantial, having no objectively quantifiable substance, and really the sole problem with "it", is that society seeks to place objective criteria upon "something" which is subjective and deeply personal, as if "it" is somehow real, being even also oddly "sacred" and of immense importance, and in my book that is nothing short of stupid.

So then, there's "the rub of the green" as applied to ping-pong, which results in those whose "sexual appearance" and or "gender behavior" is at odds with any one of the many widely varying arbitrary "standards", .... being told that they may not enter the "country club" at all, .... or in "better circumstance", being forced to endure limited probationary membership.

I am, BION =), trying to be concise and brief, and yet I think it may be helpful to you if I add the following.

In my case, as one born 'other', to this very day I find that I am often unable to fit, within the narrow and artificial criteria for "correct gender behavior" arbitrarily designated, for either males 'or' females, and physically, depending upon how closely I am examined, I do not fit the "male or female" criteria "medically" either.

As you know, "behavioral standards" vary by location, and "appearance standards" do also. How my physical appearance will be judged, depends upon, how large a magnifying glass ->or<- how heavy an 'ax to grind', is being carried by the local Sex and Gender Paradigm Enforcement Agency [SAGPEA] agents, at any particular place in time.

Now please bear in mind that the SAGPEA recruits from among those of all "races", ethnicities, social "classes", and any sort of background one can possibly imagine, and they wear no uniform, carry no credentials of any kind, and they have no operations guidelines or even limitations upon their power or authority. They have no rules, no badges, and they can and will do to you, whatever they like and believe they can get away with, in any given time and place. They make the SS and DHS look like newly born kittens by comparison.

The following locations, are where one will find the highest ranking and most ruthless among SAGPEA agents, on high alert 24/7 365, and I have placed them in rough order of their potential ruthless severity.

Gay Space - Wimyn Space - Man Space - Tranny Space - Intersex Space - Normal Space - Special Undesignated Other Space - Left Space - Right Space- Middle Space - Traditional Space - Non Transitional Space - Religious Space - Non Religious Space - Theist Space - Non Theist Space - Atheist Space - Old Space - New Space - Rich Space - Poor Space - Middle Income Space - Urban Space - Suburban Space - Rural Space - Edge-u-ma-cated (sic) Space - Sophisticated Space - Spaced Out Space - Academic Space - Medical Space - Space Not Otherwise Specified Space .... and ... you know, the way things are in this stupid universe, very likely even - Outer Space - as well.

Rycharde, I really do also understand, that one may become somewhat traumatized, hence sensitized or even weaponized or at the very least a bit defensive, because of all the crap, anyone, intersexed or not, has to endure at the hands of SAGPEA agents. I apologize for this, even though it is not my fault, and I further understand it is not your fault either. It is just the way it is. Let us try to communicate therefor.

Miriam was just trying to tell you, that there really is no way to predict how a "doctor" will react to you, within your circumstances, and only a doctor can diagnosis you.

Please, try to understand, that many people come here seeking that which we cannot give. It is not that we will not, or that we refuse to, but rather it is that we simply can not.

I can offer, the following advice, about how to limit potential psychic trauma in your endeavor though.

Try not to mention your high IQ. It is not that anyone will resent you for actually being more intelligent than others. No really it is that others will immediately be flagged by such an, unintelligent and therefor self contradicting, assertion, even though you are surely more intelligent than that, and probably even more intelligent than even you really know. It's just so wholly unnecessary. =)

I advise against any statements, even remotely like, "don't hate me because I am more intelligent than you are", .... or ..... "don't hate me me because I am more beautiful than you are" ..... or .... "don't hate me because I am more legitimate, valid or whatever, than you, or even 'they', are".

Such statements tend to put others off from the outset, perhaps even especially more so here, because such really appear to come from someone seeking acceptance, in addition to legitimization, even also from among those of us here .... whom you aparently just presume to be both unintelligent 'and' stiffly snobbish.

See what I mean? We are not a bunch of stuffed shirts and bigots, who feel ourselves to be above trans people, having a "special club" we just refuse to admit you too. =)

I think we got off on a "bad foot", and a short breather is called for before resuming.

[Rycharde]

Apple, I am so tired right now and hardly grasped anything you said since I am half asleep.
I was not trying to say my IQ is higher because I'm better than anyone. Sorry if it sounded that way. But I just mentioned everything that I could think of about me.
I.E. High IQ- ADD and Aspergers misdiagnoses, enlarged meatus, coma caused by not having enough saline, only being able to get pregnant on birth control.

Thankfully I've learned SO MUCH from some awesome people, more links I've been sent more conversations and things.

I'm pregnant with a boy, and now I'm going to have him tested for CAH which might save his life *hard emotional hit* thinking if he does get a CAH diagnosis and what if I didn't know about this...what if he died one night?

I looked at the prader scale and my genitalia appears to be a number 2.

I was so shocked when I saw it. Like OMG that's what mine looks like, someone knows what this is! Finally!!!

My friend has convinced me to look into it medically for the sake of my children.
I don't know what else would cause the things that I have.
I am most definitely sure after discussing what prader 2 looks, feels and behaves like with a prader 2 individual that this is how my body is. I have no doubt in my mind that my genitalia is this.
It was a quite extensive and detailed discussion and I am thankful that someone had contacted me to discuss this who was not shy on the details.

If there is another condition that may have caused a prader 2 genital formation or something like it, please tell me. If you know.

It is an amazing thing, sex, gender, orientation.

Let me just close by speaking about differences and similarities. Many normal biological men can compare their puberty, their genitals, and their sexual sensations and be identical in those areas. One might be a female gendered transsexual who wants to be a woman and the other may be straight as an arrow and very masculine.
The person I talk to is the very same as me as far as the way our genitals are placed, the way we felt during puberty and many other things.
Separate from that, I wish to live as a male, my correspondent did not chose to live as a male. We have similar conditions, I just lead a different life and have different feelings about how I want to live my life. And just as we are different as we live in different countries and are of different ages, we still share that common tie.

I am sorry again that I came on wrong. I don't understand much at this point but the point is I want to learn, I will finish reading your post in full, Apple, when I am not so...taken by other desires such as sleep at this moment. I felt it important to express the above before retiring while it was fresh. Thank you for your attention and concern.

[apple]

I am glad you got some answers Rycharde. I am sorry also, for being so inadequate at offering support, and just like you I make mistakes. You will see, in 'Misunderstandings', that I am bit pissed off at the way you talked to Miriam in your thread 'Just Stumbled In'. I had not read it all until tonight, and boy did it make me mad.

All of us have many things in common, and all of us alike have our good and bad days. You are under pressure right now. I understand that. I have to tell you though that you have Miriam all wrong. She is just being herself. She was born female, and being female is all she knows. That should be good enough for you though really.

It really upset me, the way you just assumed that Miriam is about conformity to the binary, as if she is some sort of sell out or something. Those who have had to make hard choices, and had to work to find their way, are by no means superior. Miriam has had to confront the very same sort of ignorant prejudice that all the rest of us have had to deal with, and she has helped a lot of people along the way. She deserves your respect and understanding. You cannot justly ask for what you are unwilling yourself to give.

We just can't divide up by little groups, each smugly standing aloof from the other, well not if we wish to survive anyway.

I am glad you got some anwers, and I truly do hope that you get what you need.

Best of luck, and peace to you.

[Rycharde]

Honestly I'm sorry for offending anyone but I can say that anything I have said is out of ignorance and pain that people even here have made me feel.

What for the insults she hit me with, and she had no reason to assume anything about me either.
I don't care if she is Mother Theresa reborn, if someone is rude to me they lose respect.
I think it is FAIR to say that we were both in the wrong and that I know any time she messages on a thread I'm starting she's most likely got the agenda of trying to get me to leave because of something that is OVER.

I'm sorry if she's your friend, but if you look at the facts from a non bias view, we ripped each other's thoughts out, on one topic. That topic is done. I don't want her fighting against me because I ticked her off and got off to the wrong start. Look at it from outside, two people had an argument and thats that. She wants me off this forum because I'm a Troll. and I want her off my messages because I genuinely need help, not this BS.

In this case sorry to say, I'm ignorant, uneducated and unaware of things that might offend others, so sorry. But Miriam knows better and that's what upsets me.

I can be mature enough to admit I wasn't nice to her, I can say my REASON not my excuse as there is none was because I felt threatened and insulted.

Thanks for the pleasant message to wake up to, it's always nice to start your day with a little chunk of stress. She's still not gaining any points in my book but I don't hold grudges, I just don't want someone following me around trashing my threads to get rid of me.

[neko2]

An IQ score of 160 has a fairly large margin of error. If you're smart enough to get a score like that, then you ought to be smart enough to understand why it's BS.

For those with less background in statistics, consider the following: You give two very smart people a standardized test. One of then gets two answers wrong. The other gets one wrong. Is there a meaningful difference in the intelligence of these two people? Probably not.

Anyway, if you were to go to a doctor and ask to be tested for CAH, they'd probably test for 21-hydroxylase deficiency. If your testosterone and estrogen levels are low, you probably don't have 21-hydroxylase deficiency. So you might want to ask about other forms of CAH, such as 3B-HSD or P450-oxidoreductase deficiency.

[Rycharde]

Thanks neko, a friend suggested testing for 3B-HSD because of the many times we talked.

Any smart person reading would see that I said that my IQ was tested at the age of nine. From the ages under 6 we learn more than we do in our whole lives. From 9-14 we continue to build and then we start getting dumber!

But you obviously knew that, what am I talking about!

I was tested at nine. A 98% for a female at the age of nine puts the IQ over 160.

Are you just looking for something in my posts that could be BS to discredit things I'm posting?

I am studying to be an early childhood educator and I know my personal history, thank you.

I did not post here to have you doubt me, I take that as an insult.

[apple]

Thanks neko, a friend suggested testing for 3B-HSD because of the many times we talked.

Are you just looking for something in my posts that could be BS to discredit things I'm posting? ..............

...... I did not post here to have you doubt me, I take that as an insult.


Now now Rycharde. I am sure neko2 is every bit as above responsibility as you are.

The same goes for me also. In fact I am going to follow your lead on that and just quote you.

"Honestly I'm sorry for offending anyone but I can say that anything I have said is out of ignorance and pain that people even here have made me feel." - Rycharde

[Rycharde]

Well with that said I'm sorry for having a spine and stating when someone is trying to push me off the board when it's bothering me.

Sorry for having feelings too?

Does that make you feel better?

When are you going to stop trying to shoo me off the board and start realizing that I am in need just like you?

There are a thousand places I could make myself "fit in" because it would make me "feel accepted".

The LAST place I want to fit in is one where I am here because I have a disorder that may destroy my life and kill my kids, THANKS!

[Sunshine1]

I actually have CAH and I'm just a speck on the internet. I don't have 21 hydroxylase and I'm not a salt -waster either but i do have simple -virilizing 11 -hydroxylase deffiency CAH .

I don't know if you have any type of CAH or not and it's not my place to say as I'm not a doctor and not my business about gender things either.

But if you do feel that you might have some type of CAH an adrenal gland condition then not a bad thing to check out an endocrinologist when and if you are ever comfortable doing that.

I read from the other posts that you are CANADIAN and that as you know means universal health insurance so you are in a good position to go to an Endo if you ever feel up to it.

An Endocrinologist can test for whatever type of CAH and if by chance you have CAH then you and the Endo will decide what to do or if you have another type of condition then the endo can help as well.

As any adult it is your choice for treatment in any type of health care.

You mentioned how tall you were in other posts and that would make someone wonder if you had CAH but again I'm not a doctor.

http://www.savebabiescanada.org/Province.htm

[apple]

Well with that said I'm sorry for having a spine and stating when someone is trying to push me off the board when it's bothering me.

Sorry for having feelings too?

Does that make you feel better?

When are you going to stop trying to shoo me off the board and start realizing that I am in need just like you?

There are a thousand places I could make myself "fit in" because it would make me "feel accepted".

The LAST place I want to fit in is one where I am here because I have a disorder that may destroy my life and kill my kids, THANKS!


I am not trying to shoo you off the board.

Now that you mention it. Just this morning I realized that I really have come to admire your backbone, and I really am sincerely glad that you came here and got some answers.

When someone disagrees with you, or even just takes issue with the way you say something, it doesn't mean they want you to leave Rycharde.

I don't want you to leave.

I totally suck at diplomacy obviously. I wish that someone who is good at it, like Peter, would step in.


To all.

I just realized, moments ago because of something Dana said in another thread, that much of the communication here is now done privately in the background by PM. It really never occured to me that people would do that.

So is that why BLO seems to have changed so much? Apparently it is, and so I have wasted my time here and done nothing but cause "misunderstandings" and hard feelings.

What a dummy I am. http://www.bodieslikeours.org/forums/images/smilies/pat.gif

I never felt comfortable using PM's, and so I didn't use them much. It felt like I was one of those people at a public meeting, who constantly gossips under their breath to their immediate circle instead of honestly speaking, forthrightly, so that all can hear.

On the one hand, I guess I really misjudged people here, and then again it appears I was spot on all along.

[Sunshine1]

I actually have CAH and I'm just a speck on the internet. I don't have 21 hydroxylase and I'm not a salt -waster either but i do have simple -virilizing 11 -hydroxylase deffiency CAH .

I don't know if you have any type of CAH or not and it's not my place to say as I'm not a doctor and not my business about gender things either.

But if you do feel that you might have some type of CAH an adrenal gland condition then not a bad thing to check out an endocrinologist when and if you are ever comfortable doing that.

I read from the other posts that you are CANADIAN and that as you know means universal health insurance so you are in a good position to go to an Endo if you ever feel up to it.

An Endocrinologist can test for whatever type of CAH and if by chance you have CAH then you and the Endo will decide what to do or if you have another type of condition then the endo can help as well.

As any adult it is your choice for treatment in any type of health care.

You mentioned how tall you were in other posts and that would make someone wonder if you had CAH but again I'm not a doctor.

http://www.savebabiescanada.org/Province.htm

Dear R- I hope that you were Ok with all my postings and found some educational info.

If you have CAH ? then you are in good company but if not? you're fine as well.

I'm saying bye as I really post here only once in a blue moon as I have to deal with other conditions - my neck swells from the thyroid condition.


Anyway ....good luck

[Peter]

I never felt comfortable using PM's, and so I didn't use them much. It felt like I was one of those people at a public meeting, who constantly gossips under their breath to their immediate circle instead of honestly speaking, forthrightly, so that all can hear.

On the one hand, I guess I really misjudged people here, and then again it appears I was spot on all along.

Hi Apple,

I will speak honestly here. I did send Jon private messages after he contacted me privately about his situation. After several messages, where I stressed Jon’s past statements of love and concern for his partner, I gauged that I could say what I wanted to say without fear for the safety of his partner Chris. When dealing in cyberspace, we are dealing with possible problems that are much worse situations than the masturbation that Dana mentioned. There is the possibility of homosexual panic and violence. I believe in situational ethics, where the situation helps inform what is ethical behavior under the circumstances. If you see me as a dishonest gossip, then I guess that there is not much I can do to change your opinion of me.

Peter

[Rycharde]

Thanks Sunshine, I'm trying to get an endo right now, seems that they all want to treat people with diabetes and a lot of them specialize in certain disorders and only see people with those disorders. Hard enough to find a dentist that will accept my disability coverage, now I've got to find an endo >.<

Well I did have a lot of tests run on me by my nurse at my gender clinic when I was getting testosterone.
(again no I'm not a tranny, I like T because I live as a male and have most my life and I feel better on it)

I asked him to check and see if there was anything that would tell him for sure no, or maybe yes, and if he could send me for more tests. He is not an endo BUT he works solely with IS and TG patients through endos and doctors in the city without patients having to see several specialists on their own.

What does height have to do with CAH? Height is so variant depending on how tall your family is. Guys in my family are from 5'7 to 6'1 and girls are from 5-5'5. I don't know what you can personally determine from knowing that but if it helps to know. Most women don't break 5 in my family but mom and aunt 1 are 5'7

[apple]

Hi Apple,

I will speak honestly here. I did send Jon private messages after he contacted me privately about his situation. After several messages, where I stressed Jon’s past statements of love and concern for his partner, I gauged that I could say what I wanted to say without fear for the safety of his partner Chris. When dealing in cyberspace, we are dealing with possible problems that are much worse situations than the masturbation that Dana mentioned. There is the possibility of homosexual panic and violence. I believe in situational ethics, where the situation helps inform what is ethical behavior under the circumstances. If you see me as a dishonest gossip, then I guess that there is not much I can do to change your opinion of me.

Peter


Oh no. Not you too. No I don't see you as a dishonest gossip. In fact, I think you must have gotten my share of "social talent", along with many other people's as well. I see you as very socially adept.

No worries I hope.

I have come to the inescapable conclusion that I am so lacking in such that I must get out of here and stay out before I start or riot or something.

Really very sorry. I should make that my siggy, but I believe that what is there now is more important.

[Rycharde]

Thanks apple for clearing that up, I also too have misunderstood others. I think we all need to use my #1 rule in life. Never assume. Not gender, not sex, not purpose.
I honestly do believe I have CAH, I don't want to have it and I hope I am fine and normal.

I know I have prador 2 genitals. I know there is another cause for this now which (spelling) polycistic ovaries? Something like that?

Whats that? I don't know the spelling to look it up. I was told by a health counselor on the phone (medical crisis help line) that she doubted I had that because I have kids.

I am having several other major problems, pregnancy has increased my sex drive even more and I can not take my urges right now. I hurt myself to the point of severe tissue damage and bleeding. I'm scared because I can't control that. I can't control my apatite and I've gained too much during this pregnancy. Throw that in with constant, ever ever constant heart burn and my anorexia nervosa that keeps coming back and screwing with me, probably because everything I eat makes me want to be sick. I'm hungry and food disgusts me but I force myself. I'm not doing well at all. That added to the fact that my energy level goes from bed ridden exhausted to unable to relax and sometimes I can't even wake myself up.
To add to that I can't get to sleep sometimes because I pierced my labret and it ate a hole through my lip and it's so bloody infected that my lip is swollen. The post is like a T with a ball at the bottom and the top of the T ate into my lip and almost broke the outer skin in one night and I lost my stainless plug for my ear and I'm allergic to the acrylic one I have *cries* I am not doing good!
I have too much muscle on my stomach, my abdominal wall won't move, my hips hurt and haven't grown apart very much. The pressure on my back is too much to take and I just don't want to be alive at this moment but I know I'll be ok in 3 months.

I hope that if I get diagnosed with CAH that some of my problems will be lessened by treatment but I know a lot of my issues are totally not related, like my paranoia of a kidney stone * dies * It better just be extra pressure from the baby that is giving me trouble in the washroom. I am so sick and so worried about everything.

I just needed to rant, sorry, but that got a lot of stress out. Thanks for letting me get that out!

[fraulein_Maria]

I know I have prador 2 genitals. I know there is another cause for this now which (spelling) polycistic ovaries?


PCOS= PolyCystic Ovarian Syndrome. first, a Dx of PCOS does NOT exclude CAH, they often happen togther. You have had many ultra-sounds. If you had PCOS, it surely would have been seen on these. second, CAH's XX'ers are NOT infertile, they have difficulty maintaining a pregnancy (not the same as infertile) so your hot-line person is uninformed.

And your stones are NOT unrelated. salt-wasters typically suffer from them.

As for height, CAH's typically experience Adrenarche (the first sign of puberty in BOTH genders is body hair caused by.... androgens) extremely early; closing the epiphysis, and stunting growth. so you seldom see a CAH over 5'4.

The mistake folks make in judging a medical condition, is the erroneous assumption that an individual MUST have EVERY symptom, and that those symptoms MUST fall within a statistical average.

It is not necessary to have a temp. over 101 to get a dx of an infection of some sort, and be treated with an anti-biotic. Because 98.6 is a statistical average. therefore, for some folks, a temp. of "merely" 99 IS a fever..... and combined with other symptoms IS an infection...

and no doctor worth his salt is going to let you die of septicemia, just because you don't fit his pre-concieved notion of what a fever is.

[Sunshine1]

Dear R-

I wish you all the best wish this and you are really looking which is always good. I look into my Hashi thyroiditis just like you are looking into this stuff. Side note: I have PCOS and I'm not a Doc but I don't think you would be pregnant with that.

CAH is lacking the ability to make cortisol and adrenal crisis.

Early puberty starts from no treatment or lack or supression which causes short stature. People with CAH take cortisone to help make up for what the body wasn't able to make.

100 in a hundred people have late onset CAH.


1 in 12,000 have Salt Wasting CAH 21 hydroxylase and 1 in 100, 000 have Simple- Virilizing CAH besides other types of CAH.


I'm not a doctor or nurse as they in reality are the only ones that can help you explore this if you choose to. I'm just a security guard that just gave you some info about CAH and how cool if others could give you info about their conditions or experinces.


I did understand what you meant that you wanted more testosterone but still wanted female qualities as with CAH the testoserone is waht they want to limit. I went through menopause becuase of the cancer treatment and really it was great and I wonder if that was becuase of declining estrogen.

Maybe needing to be a dual gendered person is what you are looking for?

I worked with people that transed (they were just normal people that were born in the body that wasn't for them) and they were every bit the gender they were meant to be once medically helped like any other condition but you spoke of both which would say that isn't really someone that wants to trans but rather to me dual gender or even pan gendered.

I'm female with an adrenal gland condition but I'm not that insitent about gender although I could never be male or dual or pan - Although I've come across people like this and one is a peace with themseleves but also with those that fit the whatever gender norm is ....sometimes I'm sad that I can't always be like them but neather are they really becuase gender is a spectrum.


You have every right to search and ask questions and have a a journey to peace.

I come here every so often but my thyroid condition (hashi's) is at the place I am now but I hope that I've been a good positive guide for the time being.

[neko2]

Rycharde -
I'm a little confused about what you said... You want to be on T, but you can't tolerate high libido? If that's the case, maybe you'd want something other than testosterone.

What you're describing about being exhausted but unable to relax and get to sleep sounds like CAH. If you become hypoglycemic due to lack of cortisol, then your body will produce adrenaline and you will get into that situation where you are tired but can't sleep. Have you ever tried taking hydrocortisone when you feel like that?

[Sunshine1]

Hey R- :bounce:

Needed to add this one as it's my thing now :smile:

and you did write about being around the Toronto area which one could streach to the Goiter Belt of the Great Lakes ......and I'm getting there :bounce: did you ever have your thyroid checked for anything like Hashimoto's thyroiditis or Graves disease or even diabetes? cause then you could go to an endo and then get a little more confortable and also then bring up CAH or any other hormone related condition. Just be yourself Ok :bounce:

I think it is always good to learn about different conditions - this is a link to http://caresfoundation.org an organization for CAH - they might be able to recommend a CANADIAN Doc or answer any CAH questions that you have for yourself or your kids and this link is about adrenal crisis http://congenitaladrenalhyperplasia.org/people.htm

Also, the pictures of you and the kids were cute :smile:

take care....I'm off to thyroid land.

[Rycharde]

You have been an amazingly positive guide Sunshine!

About my gender, I would say it is male for certain, however, I don't care what my body looks like as long as it is healthy.

I do want to be seen as male. And I want my body to feel right for a man. So I think taking testosterone will help with my male secondary sex characteristics. I love the feel of the scruff on my face *blushes* and I get a kick because I'm pregnant and my friends are like OMG in shock when they see how hairy I am *giggles*
There are a few strong things like my hair and muscles that show I am very masculine that stick out despite my pregnancy. I do appear female right now apparently. That's fine if people want to assume, but they've assumed wrong!

I like my female body. I like my little penis and I like having babies. On T I like it even more, when I'm in shape I love myself endlessly.

I'm short, cute and sweet, but I have gorgeous compact muscles and I have a feminine waist with a masculine torso and shoulders. Big arms and small legs with many wonderful options for sexuality. I think I am the perfect person.

Dual gendered, no, dual sexed, Yes.

I like how having higher testosterone makes me muscular, how I smell like a man, how I am more man-like physically. I will never be able to close up my vagina, or mutilate my genitals to become something I am not, and a half-done job of it at that.

I would like one day to look into surgery to join my phallus and meatus into a more normal phallus but right now, let's get healthy! (and get a degree so I can get a job in Alberta where trans and IS surgeries are covered!)

In short yes I'm pretty much female, and I accept it as the body I was given. I was also given a male gender, and I feel best as a he, even if I have to live in a she. Put up some paint, make her look more manly and I'm at home right where I am.

[amy3000]

Doctors can be a nuisance and I can understand your fear of seeing one - It pisses me off when people try to make me do things I don't want to do. Doctors also have a history of doing injustice to intersex and people who are different./ - still thats not to say you might not find a good one who you can trust and who will listen to you.

I am not a doctor - this is not medical advice, but

I think who ever it was that told you to suspect 3beta HSD could have been on the mark.

I would be interested to know what birth control pills you took to get pregnant - still.



What I have done in the past when I have needed to see a doctor but have been afraid they would see my medical history and not listen to me, is to fake my name. i faked my name to a doctor when I went deaf once, because i knew something was wrong, when other doctors had said I was a loopy loop and not to be listened too... turned out I had a brain tumor and I could well be dead if I didn't take proactive action.... psychiatrists are worse than endos i tell you. I had to see five psychs after that to get a previous diagnosis reversed and complain about her to the doctors council....

anyway....

3b HSD, I would suggest that it would be interesting if you knew what your levels of different steroids were...

17 OH progesterone is commonly investigated in such things as polycystic ovaries, as well as CAH. In classical CAH it can be very high, and in other types very low. - normaly it is say 1-10 - 21 hydroxylase cah might have a number of 300 or even 3000 but 3b HSD CAH individuals may have a level of something like 1-2 or less. You could tell the doctor who you see with a fake name that you have polycystic ovaries, and your "mum had a weird 17 something OHB level or something, and told me to get tested"....

As well as 17 OHP they will probably want to check your FSH and LH levels, and also hopefully your oestrogen levels, and even better your testosterone levels.



If you take testosterone regularly you might want to skip a fortnight and then wait another couple of weeks before you go and see this doctor with your pseudonym. Also try and get them to do a cortisol test - they do cortisol tests for such things as depression - low energy and thin - or if you're shakey and anxious.



Now - if it's 3bHSD - then probably your 17 OHP levels will be low, likewise your oestrogen.



I would like to think that an endo will listen to you if you express your desire to take testosterone, and tell him that as far as you are concerned you're a boy - Who gives a shit what anyone else thinks really - it's you that walks around inside you every day.

bear in mind that testosterone carries risk. I would say the notable one for you would be ovarian cancer or cancer of the uterous. A hysterectomy could fix that.... testosterone can also bump up the immune system which is a pain in the ass as you don't want horrible alergies all the time and worse. And then their is that emotional side of it. Go gentle on yourself I would recommend.

If it is 3bHSD, then it would be really good for someone who knows to treat you as they could give you other steroids that could make you feel a shit load better - namley cortisol - or the synthetic derivatives made by currupt drug companies - namley dexamethasone or prednisone.

and wowee - life could feel a whole shitload better for you.
:beer:

It would be interesting to think about the way you smell on testosterone.... salt wasting that everyone talks about makes you stinky, and perhaps you smell different to yourself sometimes.

Oh, and CAH has been associated with a higher than normal IQ in the past. one of Moneys protege's tested a bunch of CAH individuals (non salt wasters) and found their IQ to be 108-118 or theirabouts.... doesn't sound that high but it is quite alot higher than average, and unusual. Some groups of people have selectivly bred with family members to enhance the prominence of this trait in their children... it's called eugenics.... sounds a bit fucked up to me, but I don't know the full gory details, and I think they feel quite justified in it and do it in what they consider a safeish way......

What is more important in my opinion is EQ - emotional quotent. You need to look after yourself and find your inner peace and stregnth.... wonder if anyones done a study on EQ and CAH... LOL

:)

ps = the views expressed in this post are from a rank amaetur and not to be taken as strict medical advice under any circumstance - I recommend finding a doctor you can trust and talking to him or her.

[amy3000]

I think you should have a chat to milton diamond if you get a chance. A very knowledgeable person. look him up on wikipedia... very experienced at debunking bullshit from doctors who should know better.

lives in Hawii.

I can send you his email address if you like, or you could contact him via

http://www.hawaii.edu/PCSS

Theirs a great amount of reading on the website too if you're interested. Very informative.
:)

[amy3000]

oh, and another thing, I would suspect from the information in earlier posts, and knowing a little about how DNA works, that if this is 3bHSD you have a very small chance of passing it on to your children - as long as you partner is not a relative.

[Rycharde]

Thanks for all the info. Unfortunately in Canada the first thing they ask to see is your health card. No fake names here. Almost impossible.

Keep that in mind.

But also I've got a sympathetic midwife who's able to order that tests be run for hair brained ideas. So if anyone has any suggestions on what tests I should get her to run and could tell me what they think of the tests...I know thats a hell of a lot risky. But if that gives me a picture of what is going on so I know then hey, I know.

I took a brand of pills called marvelon as birth control pills. I started my cycle within 2 months. In 5 months on instone forza-t supplements my estrogen peaked enough for me to have three very small cycles and then two longer ones. My estrogen showed as "normal" so I grabbed the nearest guy...nono well it was kinda like that...omg sounds so bad but yes, as soon as I saw that I jumped in the sack and made a baby.

SO what I'm going to do "long shot" since I want my testosterone more than anything I'm going to go to the Sherbourne clinic in Toronto, with my new legal name, and keep my old legal name on my stuff in Hamilton. And I'm going to see my doctor here for CAH and see if he can help me out. While doing that I'll be getting my approval for T from the people in Toronto. So I'll be able to "start T when I'm ready" theres my security. Get the midwife to test everything here just because I asked her to.

SO what do I ask my midwife to test and what do I look for? Then I can say:

My test results for "Test" came back saying "Result" showing that you should run "Test2" to see if I get "ResultA" or "ResultB" which could indicate that I have CAH. Give "them" a reason to look into me having CAH.

Because I tell you right now I'm going to go into the endo and say Hi I think I have CAH. They will test for the most common ones, say no I'm fine and tell me to bugger off.

So I want to walk in with you know, something !

I also want to know what to say to the psychologist who is going to diagnose me as manic depressive. Which I am not! Going after the gender identity disorder diagnosis. That way no matter what they find I can still continue to get my disability pay and they will make sure I get the hormones and therapy I need.

When I have T I do stink pretty bad but I noticed that axe smells awesome on me.
Quite frankly I don't care about the down sides to being a man. So what if I'm stinkier, harrier and die sooner? That would happen had I been born a man in the first place.
I'd rather die 25% sooner than spend a quarter of my life moody and bleeding.

I see what you're trying to say about being on testosterone sucking a little bit. But I feel like crap without it, even been suicidal, not being able to stand myself being peter pan with a 2" cock.
I just want my body to grow up with my mind. And being female is no part of it.
I moved away from my home town, where I was known as a male to try being a female in Bulgaria with my prince charming. I had a fairytale wedding and the perfect husband. I was where any woman would kill to be. A great husband, a nice home, a wonderful mother in law in an exotic country where my one months Canadian income could last for a year!

I got out of that as fast as I could. It was hell for me. I can't live as a woman no matter what. I got back into myself.
Another thing I can't stand is this eternal puberty. Having just that nice hair on my face that just grows in so long and won't grow into much more if I leave it without shaving for a week. My geeky, always cracking male voice that sounds like a teenage boy. The feeling like I'm just stuck here.
I want my voice to drop down and my facial hair to be normal.
I want to stink to high heaven! I don't care!
Allergies, oh well. Like I don't have em already? That's just part of life I can cope with. Take a tablet, get rid of the cats and watch the pollen/pollution alert on the weather channel.

Not really all too concerned with that.

And about the moods, they fit. They fit me. I'm male gendered, and my mood feels more stable and controlable when taking T.

What you have to bear in mind is that I'm supposed to be male, in my mind and in reality. I have a male gender, I have a male brain and frame of mind and having male hormones that match that pair up and create something that works.

I'd say estrogen makes me moody. On those pills I've severely beaten and abused several partners. I smashed a book shelf and punched holes in walls. I think we want to keep me far away as possible from estrogen or anything related.
On testosterone it was AMAZING. I could explore the full spectrum of my emotions.
Things that would cause me to be upset or cry or feel crazy would not make my body react like that, I stayed calm and was able to feel the whole feeling without snapping or breaking or going nuts.

When I first took birth control at 14 years old I threw an oak table into my father and smashed my mothers arm into 18 fractures, my parents were afraid of me. I would break down so easily and get so upset that I would physically harm anything in my path and I mean anything .

My strength was unreal and I was like berserk. My body would just do this thing like flip right out and I'd even hurt animals or children if they got in my way.
Those days are LONG GONE.
I get pissed now yes, but I'm an adult and I have a lot more control, I meditate and I make sure I'm doing ok or I just leave. Even if something NEEDS my attention I will leave the room before I allow myself to snap. I have a great deal of control.

Although I still kick that darned cat off my bed pretty hard when it jumps up while I'm having sex with my wife! (the lovely one on the right of my siggy who is actually a boy)

When I take supplements or rather when I don't take birth control I am so awesome. You can slap me in the face and I won't budge!
It's a total reverse.
With all that I have done to control my rage, when I'm NOT estrogen based I have less rage to control and wow when I use my full control I can handle anything! I was told I am the most patient, gentle and admirable person in the world.
Just one simple hormone turns the tides between man and monster.

As a woman, I am a monster. I hate myself and I would kill myself if I were not me. I despise people like myself. (cruel, abusive, violent)

But as a man I am a saint. This isn't a thing I can choose. With my hormones on the male side and yes a hysto will happen ASAP and I can't wait for that... And I will be taking T all my life, can't wait for that either.

My gender is male, my hormones need to be male too. My body can stay female, I don't care. That isn't what bothers me, I'm no tranny.
This is purely for my mental stability that I must live as this person who I love. I love me when I'm a man. I accept me. Other times as a woman I hate myself and take it out on everyone around me.

People say that cort will do it for me, that I won't be a freak anymore with just some cort, yeah I won't believe that all the way. I know I'll feel healthier and THAT is great but I still won't feel RIGHT.

So moody. Moody would be estrogen, keep it away!

Like you said EQ EQ EQ! All the way I'm backing you there. And you're right, I walk around as me and thats all that matters but you know that some doctor is going to say "its just these extra androgens messing with you, try some cort and then see if you can live as a woman"
Come on you know it! I've been told it a thousand times by the family. "Try something else first before you change yourself forever, you can always be yourself without being something you are not"

So thats why we do this with my OLD name in Hammertown and my NEW name in Toronto. Make sure I get the hormones, make sure I get the cort.
Take the hormones after I get the cort or at least until all the tests are done for my CAH. They have 6-9 months to do the CAH tests before I start taking T and if I push...

Like I said I'm pregnant, planning on nursing minimum 3 months (for baby), 6 if I get my cort. (that way I lose the breasts! and the ass!)

And if you're curious as to how I smell on testosterone you're welcome to come take a sniff sometime I should be on it by Christmas.

Now I know you said they'd want to check my ABC and DEFG's what the heck does that mean?

I am no idiot but I don't have a mind for this. What are those abbreviations for and should I get tested for them?

And I just did some stupid online bias IQ BS tests a while ago and scored like 132 and I only have my grade 12 with college entry English and Arts. How the heck am I supposed to know the countries Napoleon conquered and in what years...BS! BIAS!!! If I was taught that I'd know but who the heck knows this stuff. There was a question about Cathrine the Great, who's that? I'm sorry I'm not educated boo hoo that does NOT effect my IQ LOL!

Long chins? Like that family who married their daughters out to every major country in Europe to take over all the national bloodlines that ended up with strong genetic characteristics like very long chins? I read about that a hundred years ago in my past, not literally but I read about it a long time ago that since they had married out to every family in Europe that they were starting to interbreed to keep all the known world in their family's control or something like that.
Crazy stuff I say.

Regardless if there is a 1% or a 100% chance of giving CAH to my son, who wants to wake up next to a baby who isn't responding, dead. Not I no way. I'm only having one more child and he's going to be my special little guy! I have to make sure he is ok.

Well time to clean my house, ahh lovely I'm tired but here goes nothing!

[Peter]

Hi Rycharde,

You wrote:


"Regardless if there is a 1% or a 100% chance of giving CAH to my son, who wants to wake up next to a baby who isn't responding, dead. Not I no way. I'm only having one more child and he's going to be my special little guy! I have to make sure he is ok."


Due to the dangers of salt wasting CAH, hospitals routinely screen new born children for SWCAH. It is something that you should expect to routinely happen with your baby. If you are in doubt, I would recommend asking your midwife about the health tests that your child can expect to undergo.

Peter

[neko2]

Well, I'm having some trouble following all of this, and I'm definately not going to wade into the IQ score debate, but about testing for CAH...

The advertising material of forza-t claims it to be an aromatase inhibitor. If that is true, then it would stimulate ovulation. No wonder you got pregnant.

What you're saying about taking testosterone doesn't really fit with 3B-HSD deficiency. The normal regulation of 3B-HSD type II is to act as a sort of switch at puberty to increase testosterone levels. At puberty, 3B-HSD expression is reduced, which causes the adrenal gland to grow and produce more DHEA. In other words, a slight 3B-HSD deficiency is a normal part of puberty. More testosterone causes more 3B-HSD deficiency. So if you had serious 3B-HSD deficiency, why would you take more testosterone? It would just make things worse.

If I had to guess, what you're describing sounds more like 17alpha-hydroxylase deficiency or 17,20-lyase deficiency.

Anyway, a standard test for any form of CAH is the adrenal stimulation test. This involves measuring cortisol levels, giving an injection of ACTH (or sometimes insulin or metyrapone) and then measuring cortisol levels again. This isn't the sort of test you can order on the sly though, since you need that injection.

The other test would be to measure pregnenolone, progesterone, 17a-hydroxypregnenolone, 17a-hydroxyprogesterone, and DHEA. With 17alpha-hydroxylase deficiency, there would be reduced 17a-hydroxypregnenolone and reduced DHEA. With 3B-HSD deficiency there would be reduced progesterone relative to pregnenolone. Being pregnant will affect the tests though since the placenta produces these hormones too. I wouldn't even try to interpret such test results on someone who is pregnant.

[Rycharde]

Hi Rycharde,

You wrote:


"Regardless if there is a 1% or a 100% chance of giving CAH to my son, who wants to wake up next to a baby who isn't responding, dead. Not I no way. I'm only having one more child and he's going to be my special little guy! I have to make sure he is ok."


Due to the dangers of salt wasting CAH, hospitals routinely screen new born children for SWCAH. It is something that you should expect to routinely happen with your baby. If you are in doubt, I would recommend asking your midwife about the health tests that your child can expect to undergo.

Peter

I asked my midwife, I'm having a home birth, I hate the way I get treated at hospitals, they ask the stupidest questions. Well I don't need to deal with it when I'm having a baby.

They don't screen I have to buy a test for 86$.

*sigh*

[Rycharde]

Haha yeah thats why it made me ovulate! Duh why did they tell me to take it.
Would it cause my testosterone to go up? I want to understand why my testosterone was very high for a female last October.

I'm glad you understand this a little bit better with what I have said.

Still I am just starting to learn about all of these things.

I would like some information like CAH for Dummies please because you are speaking Greek to me, I don't understand much at all of what you are saying and I do have a learning disability, a screaming child and a joke being told about someone having a "fire crotch" in the background by my two friends. I really can not even think at all let alone begin to understand any of this.

I'm saying this because I'm genuinely having trouble as having ADD and who knows what else, in picking this up and understanding it.
I have tried to explain it to friends to get them to help me and they are more confused than I am. I don't understand, please help!

[neko2]

Haha yeah thats why it made me ovulate! Duh why did they tell me to take it.
Would it cause my testosterone to go up? I want to understand why my testosterone was very high for a female last October.
Ok, first thing to understand is that estrogen is made from testosterone. Your body first makes testosterone, then an enzyme called aromatase converts it into estrogen. There are some drugs which block this process, which are called aromatase inhibitors. These substances cause your testosterone level to go up. Which is, I think, exactly what you wanted.

So... what does this have to do with ovulation? The menstrual cycle is regulated by a structure at the base of the brain called the hypothalamus. This tiny structure monitors the amount of hormones in the blood, and when it's time to ovulate, causes a signal to be sent to the ovary.

The whole point of birth control pills is to add more estrogen so you don't ovulate. If you take estrogen then the hypothalamus will think that there's already an egg and won't try to make another. By taking all this anti-estrogen stuff, you are counteracting the effect of the birth control pills.

[Misae]

Please excuse me for replying in your conversation. If you have a CAH mutation, there is at least a 1 in 2 chance of passing it down to your child.
If you have an untreated case of CAH while you have been pregnant, your excess testosterone can effect your baby's development. If you know your little guy is a boy only from an ultrasound scan, he might be a girl.

[Rycharde]

Ok, first thing to understand is that estrogen is made from testosterone. Your body first makes testosterone, then an enzyme called aromatase converts it into estrogen. There are some drugs which block this process, which are called aromatase inhibitors. These substances cause your testosterone level to go up. Which is, I think, exactly what you wanted.

So... what does this have to do with ovulation? The menstrual cycle is regulated by a structure at the base of the brain called the hypothalamus. This tiny structure monitors the amount of hormones in the blood, and when it's time to ovulate, causes a signal to be sent to the ovary.

The whole point of birth control pills is to add more estrogen so you don't ovulate. If you take estrogen then the hypothalamus will think that there's already an egg and won't try to make another. By taking all this anti-estrogen stuff, you are counteracting the effect of the birth control pills.

Ok I never had a cycle for a very long time. I'll give you my times and you can interpret this.

Sept 2 2004 live birth. March 2006 Stopped nursing. April 06 spotting. June 06 Supplements. September 06 2 day cycle. October 22 06 start cycle, October 25 end cycle. Second week of November, Positive pregnancy test.

I have not taken birth control for ages. Not since October 03. I took it 2 weeks to start my cycle. I don't normally have cycles but if I take birth control I start my period.

[Rycharde]

Misae I am thus concerned. Who do I listen to? Everyone tells me something different!
Don't worry, he's fine, you don't have CAH if no ones diagnosed you and if you do you aren't going to pass it on said one person. I have to be with another carrier said another.

I'm getting the screening done, I don't know who is right!

I know I have some kind of CAH because I don't have PCO and I have a very large meatus that shares an opening with my vagina.

I'm very flexible and I can reach my own hand right up to the end of my own opening. I can get a firm grip on a large meatus all the way into my opening. ( I had to explore this and see how far back it went) I can actually grab onto it. So no one has offered any other way that this could happen to my body.
No other reason why my clitoris is always erect, no other reason for my coma in May 05.

I'm still open to suggestions!

But yes I am aware that my child has a phallus, not necessarily XY, possibly prader 5-6 XX Who knows?

I do need to screen the baby, but I will love it either way and I will do the right things when the time comes.

Thats why I asked other members to help me to prepare for the things that might lay ahead. The CARES people were really rude to me and told me I should talk to the hospital.

[Misae]

Rycharde sama, it is hard to see right knowledge through a crowd. You may listen to others, still it is best to study the subject also.

To be a carrier has many variations in severity. Some carriers are hidden and show nothing. Others have as much trouble as a full case. You could have a full case, or be a carrier with symptoms. The way you were born might be from your mother having a full case. Your baby's father could be a silent carrier, or safe.

This gives many combinations. If you test yourself and your baby, then you can both stay healthy. If you have a adrenal condition and then take testosterone, you could have more comas.

[Rycharde]

I have heard many people who have some forms of CAH are able to still live as men and take testosterone.
I know it sounds really stupid at this point, but I'd rather chance the comas then to live without the testosterone.

That is a personal choice, but I don't feel human or alive without it. I know cort replacements will make me feel healthier but I need to feel like a man.

No matter what my physical condition, I am still and always will be male gendered. I need to be able to grow into an adult male. It just has to happen.

I can watch my diet, see a doctor every day if I have to, but I can't live as a female, I would rather prepare for the worst and live as myself. I resolved that years ago, when I was certain that I would be able to live as a man.
If the worst is death next year, at least I would have lived a year as my self.
If it came to it I would use testosterone from the street and do have access to it.

Honestly I think my condition is not THAT serious. I have had a coma, seizures and blacked right out when I was anorexic, and I have a constant state of uncontrollable arousal and have a hard time staying awake and alert. However my electrolytes and all seem pretty normal now. I have a few cups of tea, my phallus goes soft for once and I feel good.

I've lived with few incidents for 25 years, I'm sure I will live another. Just concerned for the kids right now mainly. I'm going to get my T in Toronto , test for CAH in Hamilton. Let's see how this goes.

Just need to find more information on how I can deal with this and stay healthy.

[Misae]

You are off to see the wizard, because of the wonderful things he does?

I am sorry for intruding.

[Rycharde]

I don't get it? What's that supposed to mean?

[neko2]

Sept 2 2004 live birth. March 2006 Stopped nursing. April 06 spotting. June 06 Supplements. September 06 2 day cycle. October 22 06 start cycle, October 25 end cycle. Second week of November, Positive pregnancy test.
Lactation can stop your period. This doesn't seem all that unusual.

[Rycharde]

Neko, I was second in line for leadership at the branch of the le leche league in my community two years ago.
Lactation typically stops menstruation for up to six months. In some cases we had seen eight. Never eighteen. Never twenty. I did not have Any periods for two years. I spotted. This is unheard of if lactation is the cause.

I've had maybe four or five periods in my life. I haven't been lactating since I was 14.

Yes lactation stops periods, but not for long. Commonly 3-4 months even if the parent continues to nurse for years.

Don't think I didn't know that much.

WB to me my modem crashed, good to be back I guess.

[Misae]

Rycharde san,
You quote quran, which implies that you believe the passage you quoted. If a book which is holy to you says that you must be as nothing, how do you want to be a man?

[Rycharde]

I like you!


The quote is simply to state that whatever created humans (Mohamed says Allah) made both men and women and sometimes mixed the two together and that is a truly great thing, nothing more nothing less. It just happened to be stated by the prophet Mohamed and written in "holy" scripture.
If Captain Kirk had said it, I'd quote him too.

No disrespect made to any religion here but I simply agree with Muhamed in this case.

I'm a Buddhist.