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Billie Q.
01-10-04, 06:01 PM
I can relate to "differentness," although I am not intersexed. My body is not like those of most other genetic females. Please bear with my story. It's long, but there are things here I am sure many of you can relate to.

At age 12, my mother took me to a doctor to see why "a girl of 12 had such a growth of pubic hair." Can you imagine my embarrassment? Other girls did not have pubes yet, but I did. I hated my breasts when they started to grow, too. The boys I played with started to make fun of me, and I wanted to be just like them, flat-chested. I remember trying to lay on my tummy as I talked on the phone (it was my habit) and my growing breasts hurt so badly. They grew so quickly, they seemed to explode out of me, and I carry the scar tissue of that explosion, still.

Fast-forward to age 14, and my first sexual feelings for another female. "Why," I asked myself "would a girl who had previously been quite sexual with boys suddenly want another girl?" I told one friend and she told me I was "crazy." I thought so, too. But the feelings persisted, and I decided rather than to fight them, to accept them. This was 1974. There were no "Gay and Lesbian Youth Support" groups, there were no Gay centers, there was nothing. I was a self-taught Lesbian.

Over the years, I wondered why I had so much more hair than other women. I have it everywhere: my sideburns, my chin, my moustache, my neck, my buns, heavy growth on the forearms -- just like a man. "Why is my voice so much deeper?" I wondered. Most notably of all, why do I feel no urge whatsoever to have a child? The baby craze for Lesbians that started in the 1980s confused me. I am not a breeder, I thought. Why would a non-breeder want a baby? Then I noticed that Lesbians who wanted babies tended to not have deep voices and lots of body hair, as I did.

Now to 2002. Three years of intense pain in my lower left abdomen that occurred with no discernible regularity, so I passed it off as food poisoning or stomach virus. It is horrible, this pain. Lasts four to six days, and is more incapacitating than the worst menstrual cramps I have ever had. As bad in fact, as the appendicitis attacks, which necessitated the removal of my appendix at age 16.

I went to a gyno, a male I had seen only for pap smears previously. I was in the throes of an acute attack and he put one hand inside me, and one on the outside, mashing my left ovary area. I covered my mouth to keep from screaming, the pain was so bad. I started to cry (which I never do in front of anyone I don't know VERY well). I know the m.f. saw my tears, but his attitude was abrupt, and he refused me any pain medication. He threw a sample containing 3 pills of Bextra (not much better than Aleve) at me, and left the room. I called his office and made it known to several nurses I would never see him again. He called a couple of times, sounding irritated, and urging me to come in for another visit. I asked the nurses for an appointment, and saw a female in that same office. She had the insight to do an ultrasound. And there they were -- the cysts on both ovaries, and a small uterine fibroid tumor.

She only offered birth control, even though I told her I cannot take it, due to a history of migraines, hypertension, and depression. This seemed to make her angry, and she just shrugged her shoulders at me, and said there was nothing more she could do.

I started to chart these attacks. Ten days before my period, they began. I went to my family physician, who gave me narcotics, but said he could not do that regularly for this problem. I asked him for the name of a good doctor who would not hurt me, as Stuart Pancer had. He referred me to an Indian female, who I hoped would be as sweet as him, my family doctor, who is an Indian Sikh, and a big teddy bear.

I arrived at (the doctor's office--actual name removed) office and told her nurse of my experiences with the other 2 gynos. (name removed) breezed into the room and interrupted my retelling of my pain, to ask "When did you last have intercourse?" I knew she had judged me, and I told her "None of your business." She replied "It is my business because I am your doctor and you need to be tested for AIDS." I replied "I take care of my business and I have already been tested." I knew then what I was dealing with. Once she had me undressed, in exam position, she commented on my hairiness. I guess I don't need to tell you how unprofessional that is. Then as she removed the speculum, she said "Did I hurt you?" I knew she said this in reference to my labia, which are large. I should have walked then, but I was desperate because of pain.

She told me to go to an ultrasound room where I waited 40 minutes, freezing, in pain, and needing to urinate. She came in and started fishing (there's no other word to describe it) around inside me, and mashing all the while. She was not competent to do an US because she could not even find the tumor the US technologist had found and shown me previously.

She had me dress, and her manner was still very abrupt, and condescending. I could tell she was pissed off at my setting the tone at the outset that my health care was in my hands.

We had the same birth control conversation I'd had with (another doctor). Only (bad doctor) openly showed her anger and irritation, telling me "Go find another doctor," when I refused birth control due to my medical history. She browbeat me into an injection of Depo-Provera. That was May 13th. By May 15th, I was unable to get out of bed. I felt drained of all energy. I had aches and pains all over my body. I was so depressed, I considered checking into a hospital. When I wasn't sleeping 12-16 hours a day, I was eating. I called her to ask why she had done this to me, and was there an antidote to the poison she had injected me with? She replied "How do you know it was the shot that did this?" I let her know she would never get any more referrals from my doctor and that she was unprofessional and incompetent. She couldn't have cared less. I took a whole bottle of activated charcoal within 48 hrs. of the Depo, hoping to counteract the effects, but it was too late.


I had my first regular period in 4 months a couple of weeks ago. Pain. Followed by incompetence, followed by neglect. The pain of the cysts is good enough, I can live with it!

I educated myself about my POD, and interviewed my mother to find out if anything weird had happened while she was pregnant with me. Indeed, she said she was "very sick with virus" for the first month or so of her pregnancy, a fact she'd never shared with me. That did it, that set the genetic malfunction that is my hormones. Oh welll.

(bad doctors): you can both rot in hell, because you both hate women.

And Rita, you thought the Depo would "change" me (you homophobic bitch), but it didn't! I love my different body and sexuality, and wouldn't have it any other way!

Jules
01-10-04, 07:53 PM
Hello. I wanted to say the I read your post, twice. Your story is very much like the story of a girl who I dated. I will call her Mary. Mary clamed to be streight and said that she liked men. But I could realy feel inside that she was attracted to me sexualy. Mary had heavy hair on her back, arms and buddocks. Mary was bald on the top of her head like balding men. Mary grew a beard (a short one) so she need to shave her face every day like a man and wear heavy make up. SHe also had problems with her period and would only menstrate four times a year for weeks at a time.

Mary was very ashamed of her body untill she met me.

Now Mary is not intersexed, but her overies produce almost as much testostone as a man. She too had to see a doctor very regularly whom she would get very fustrated with. What I exsplained to her was, sometimes even the very best doctors don't know the answers. Most doctors don't like to admit that and will be very rude about it. But for every three rotten doctors, there is one realy understanding and helpfull one, who will admit, "I just don't know"

Now Mary taught me a few things. It is far more important who you are in the inside then on the outside. Mary was a very beutifull person on the inside and as soon as I saw that, and opened up to her, her gayness came out and we hooked up for a while.

Me and Mary still call on each other for support. She know I'm intersexed and values my friendship as I value hers.

I guess the point is : Forget about those asshole doctors, it was good to vent your feelings but what you realy need are friends who show you the good and warmth that you have inside of you.
I'm very sorry to hear about your pain and suffering but they are other ways of dealing with that without going to unsimpthetic doctors.

First thing is first, you need to get your depression in check.
there is no way your body can heal or recover from such things because deppression suppresses your ammune system which makes you feel more tired and less able to carry on with your day.

Try deal with that first by seeing a theirpist and talking out your problems, that first step is the biggest.

I hope we will chat soon
and keep your chin up!!



:D

uriela
01-10-04, 08:27 PM
And a lesbian-friendly therapist!!!

Billy-Q, those doctors are really sick! Didn't they subscribe to the Hippocratic Oath? They should be made to copy it over and over and over until they get the point.

Best of everything, Billy-Q, and I hope to the heavens above that you get the help you need.

Billie Q.
01-10-04, 08:37 PM
Originally posted by Jules
First thing is first, you need to get your depression in check.

Try deal with that first by seeing a theirpist and talking out your problems, that first step is the biggest.

I hope we will chat soon
and keep your chin up!!



:D
Thanx, Jules (my nick, also!) for your good thoughts & wishes. I don't believe in "therapy" have had alot of it, and am currently taking Lexapro for "depression."

The story of my attempt to "get my depression in check" is another story very similar to the one just told.

Yes, I'm depressed. Who wouldn't be, these days?:)

Billie Q.
01-10-04, 08:39 PM
Originally posted by uriela
And a lesbian-friendly therapist!!!

Best of everything, Billy-Q, and I hope to the heavens above that you get the help you need.

Thanx, Uriela for the good wishes. You hope to heavens above? Wow, I guess I came off pretty badly...lol.

This is a pretty bad time of year for me, the Christmas season and all, I promise I cheer up in the spring:)

Jules
01-10-04, 09:54 PM
My therapist is not my best friend.

My theripist is not the closest person to me.

Yet she is a great mirror for me.

She mirrors me back to myself with out judgement so I can see my thoughts, my hopes, my fears, and my flaws.

I can tell how much progress or regressing I do month from month by listening to her, listen to me.

You see a good therapist does not tell you how to live your life or how to feel about it.

A good Therpist allows you to see youself as though your looking at yourself from the outside in.

I have made the biggest steps in my life durring these times of looking inward from the outside.

Medication for deppresion helps to break the spell so that you can get on with your day. BUT the whole idea of self-help comes from "insite" and there is no medication that can give you that.

Yes, "Life is over rated" There is a lot to be deppresed about even if you don't have our types of problems.

You have to "find" value in life and it starts with finding the wonderfull vaule you have in yourself, just for yourself.

If life is worth nothing more, it is worth the value that I find in it.

Billie Q.
01-10-04, 10:28 PM
Jules, I LOVED that last post! I have three therapists, but they have no office, and they don't charge.

The mirror analogy is so right-on. Do you believe in synchronicity? My buddy T.J. just yesterday compared trust in relationships to a mirror, once broken that can never be repaired.

Coincidence? I don't believe in those, either!

Namaste,
BQ

uriela
01-10-04, 10:44 PM
Um, Billie Q,

I just did a web search on Depo and I see what you mean. It can have some really bad effects on some women and you seem to have developed most of them. You were lucky to have stopped the shots at the first one. I never realized it could be like that! With your first period, it sounds like you are coming out of it though.

I know I came out of depression when I took some drastic action to address my hormonal imbalance.

I do have a therapist too, but my best therapy has come from the friends I have. too.

Sai ram!

Billie Q.
01-10-04, 10:49 PM
Originally posted by uriela
Um, Billie Q,

I just did a web search on Depo and I see what you mean. It can have some really bad effects on some women and

Um, "bad effects?" Try "poison."
Yes, good friends are the best therapists because they are motivated by love, not money.

Thanks for caring enough to do a search on Depo.

BQ

uriela
01-10-04, 10:54 PM
Billie,

Didn't anybody suggest a surgical solution? Is that out of the question for some reason?

:confused:

Billie Q.
01-11-04, 08:22 AM
Carmichael did, but she said it probably would mean getting in there, and finding no cyst to excise, or cysts that reappeared after surgery.

I'm going to take a natural health approach (as soon as I have the $).

Honestly, I did not want shoulders to cry on, but it sure feels good that you all have offered them. Let me synopsize my long "bitch" of a post this way:

1.) Your health care is in your hands

2.) Depo-Provera is poison used to control and modify women's bodies

3.) Homophobia and medical neglect are alive and well in 2004.

Jules
01-11-04, 09:26 AM
Originally posted by Billie Q.
Don't think for a moment that you will ever be forgiven for being diffrent, you wont.
[/B]

I don't need forgivness. I have been through enough pain and suffering and rejection to earn my stripes of courageand I'm really happier then what I call normal people.

I have been through many things in life that give me far better insite then some people would have if they had two lifetimes to live ther lives.

People need my forgiveness!

and my understanding of the world!

Becuase anybody who has taken the time to get to know me is always better off for having me in their life;)

P.S: I liked the :Love all, trust few, and pattle your own canoe better.

Billie Q.
01-11-04, 10:33 AM
Originally posted by Jules
I don't need forgivness. I have been through enough pain and suffering and rejection to earn my stripes of courageand I'm really happier then what I call normal people.

I have been through many things in life that give me far better insite then some people would have if they had two lifetimes to live ther lives.

People need my forgiveness!

and my understanding of the world!

Becuase anybody who has taken the time to get to know me is always better off for having me in their life;)

P.S: I liked the :Love all, trust few, and pattle your own canoe better.

How true, Jules! They certainly are lucky to know you!

"Love many, trust few. Always paddle your own canoe!"

Glenn
01-12-04, 08:37 AM
It sounds like you've had more than your share of clueless doctors. I'm glad urelia asked about surgical options - I'm generally not a fan of such things, but was also wondering the same thing.

As for holistic help, you might want to check out my wife's nutritionist. A biochemist rather than an MD, he has an interesting perspective on nutritional control of many "medical" conditions. A partially revised web site is at http://www.birdandbear.com/van/vantest.cfm. He's based in central New Jersey, but he can do a lot from just a few visits, many weeks apart. Be warned that he often recommends eliminating meat, dairy, and wheat (grains with gluten, more to the point) from your diet.

Oh yes, and my stepdaughter tried Depo, and had horrible side effects too. Dreadful stuff.

At first I liked the "Love many, trust few. Always paddle your own canoe!", but I started to wonder how it's possible to love without trust??

Glenn

Billie Q.
01-12-04, 08:53 AM
Hi Glenn,
Thanks for the kind words and the source -- I'll check it out. A naturopath at the family-owned health store where I shop (he's one of their sons) has offered to do saliva testing, etc., at cost for me. He said that it will take a couple of years to get me close to balanced, hormonally. He thinks I'm "estrogen-dominant," and I agree. Too much estrogen allows too much testosterone to roam freely. It's a delicate balance between the three: Estrogen, Progesterone, and Testosterone.

If you are starting with a shaky (genetic) foundation, the rest is just propping up the foundation, you know.

And you are so right -- there is no real love without trust. However, I try to "give away" love -- even when it hurts. I open my heart (too much, some say), and give love away. Because I believe it comes back. Somewhere, somehow.

I don't think there's any worse feeling in the world than to have your offer of platonic love rejected. The rejection of erotic love has a short recovery time, but the rejection of the platonic-- is a shot in the heart. Although I'm a believer in the theory that what doesn't destroy my heart (spirit?) can only make it stronger!

Dana Gold
01-12-04, 12:35 PM
quote: "It's a delicate balance between the three: Estrogen, Progesterone, and Testosterone."

Dear Billie Q.

DepoProvera is essentially medroxyprogesterone acetate, a progestin, NOT progesterone, and it can have androgenic (masculinizing) effects. IT IS a sh*t compound and alien to the human body....when you visit the naturopath, ask about Natural Progesterone, as it used to balance estrogen excess. As for medical "doctors": They (most of them, not all) suck, only look at the clinical, not the person as a whole...deal with symptoms "relief" , not causes and effects of body imbalances...to them most everything is a disease or disorder, whereas in reality things that negatively affect the body and mind are disruptions (whether physical or spiritual, or psychological) of the harmonous unity of the WHOLE person.
It might be worthwhile for you to follow up with the naturopath, this person may help you more than other practitioners of medicine. Ask him about herbals, I have been taking them for a couple of years: German and Canadian brands are best (I rely upon Natural Factors from Canada, found at most health food stores like Mother's Market), Chamomile tea is good for relaxation. Ask him also about Pomegranate juice. . Anyway, I better stop here, I just wanted to let you know Naturpathy and Alternative Medicine are viable sources of health care....BUT , that doesn't mean you should give up traditional medical sources, I just got over a double ear infection and herbals certainly wouldn't have helped that! Everything is a balance, even traditional and new age systems of medicine.

quote: " be forgiven for being different."

As Jules said, and I do also: You did NOTHING wrong for which there is a need to be forgiven (as in sin, break the law etc) BUT you might need to forgive yourself for the perception that you "don't belong", because you are part of this universe regardless of how you are in body and spirit . As said before, the Universe does not judge, humans do...please don't be too hard on yourself and learn to heal (by the support of others who understand what it's like to be gender/body variant...like the folks here at BLO.., as an additional word of advice: Living as and dealing with being different is very stressful:confused: , somehow learn to manage stress ( I know, I know, it is damned difficult!) because stress results in elevated cortisol levels which sets off hormonal imbalances, not just sex hormones (elevated tesosterone:eek: , but other regulatory ones for blood pressure, kidney function (pee too much:rolleyes: ) Depression,like Jules said, skews these also:( . Take care of yourself for your sake, be yourself, noone else is more qualified to be such.

Bye,:)

Dana

Glenn
01-12-04, 12:55 PM
:rolleyes: You're having way too much fun :D with smileys!!!:p



Glenn

Dana Gold
01-12-04, 01:48 PM
Yes, I know.....the server told me to remove some prior to sending the previous post;)

I love smilies:p

Dana:)

Billie Q.
01-12-04, 04:09 PM
Dana,
Thank you for the insight, kind words and advice. I agree, noone else is qualified to take as good care of me, as me. However, I don't reject mixing Western medicine w/alternative healing modalities -- I don't reject anything that works.

And I stand by my original statement, it is a delicate balance that must be maintained by the three hormones. I am well aware of what Depo is, although, I unfortuantely was not, prior to injection. As the kids say "My bad."

I don't quite know how I came off with that original (and subsequent posts). Angry? Ignorant? Clinically-depressed? Naive? Stupid? (Don't answer that:) ) I can assure you good folks, that I am none of the above. I'm just a chick who has taken a few licks -- and keeps on ticking.

And trucking.

Keep on trucking, everyone!:cool:

uriela
01-22-04, 07:46 AM
A link that might apply:

http://www.medscape.com/viewarticle/466573_1