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General CAH Forum Connect with others that are interested in congenital adrenal hyperplasia. Any topics related to CAH may be posted here.

 
 
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Old 01-31-06, 12:31 AM
RGMCjim's Avatar
RGMCjim RGMCjim is offline
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Join Date: May 2002
Location: Rochester, NY
Posts: 184
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It has long been thought that my intersex was caused by fetal exposure to progestin, but I'm a little concerned that it might be CAH too.
For one thing, I never started female puberty. According to the literature progestin induced intersexed people do - although I suspect the literature to be wrong. I've heard from several of us who don't have completely formed uteruses or ovaries and therefore didn't start female puberty.
Can anyone tell me if these things sound suspicious? I've had "high adrenalin" problems all my life and have had several episodes of what my doctor called "adrenal exhaustion" from "hyper active adrenal glands". In a recent search for why I'm making kidney stones my nephrologist noted that although I don't eat huge quantities of salt, there is an abnormal amount of it in my urine - he's concerned. My sweat is impossibly salty. I do have abnormal parathyroid glands and this is causing my kidney stones - I'm going to have to have them removed soon and that's not related to the other problems.

Jim
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