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View Full Version : Research on Klinefelters (xxy)


CC
04-21-05, 05:27 PM
This was posted today on the AAKSIS group at Yahoo,not quiet sure if there are any xxy's here apart from myself but,if there are,please consider answering the questionaire.
Regards

Canice.

I received the e-mail which I have printed below. If anyone who fits the
parameters of this research project is interested in participating, that is up
to you. AAKSIS is in no way endorsing this study nor does it accept any
responsibility for anyone who chooses to participate in this study.

Sincerely,
Roberta Rappaport
Founding President
American Association for Klinefelter Syndrome Information & Support (AAKSIS)
____________________________________________________________________________

Hello,

You are listed as a contact person for the regional support groups on the
AAKSIS web site. I am writing to let you know that
I am currently conducting research on KS as part of my doctoral
dissertation. I am actively seeking volunteers to participate in this
research and would very much appreciate your help. Please view the research
website

http://www.klinefelter-xxy.org/

and make it available to your members and associates.

Thank you!

Tom Duffy

Lou
07-12-05, 11:27 AM
I am an XXY male who also has a condition called Gynecomastia, also a war veteran of Vietnam with ten years of military service.

Unlike other wars, us Nam vets did not get the welcome home expected and so many who suffer with Post Traumatic Stress Disorder, recalling how researchers and students would write to me with questions, either out of curiosity or to complete a school assignment, quite a few vets feeling more like lab rats than everyday people who were soldiers and just wanting to try and take up where they left off but finding this impossible as nothing is the same as it was and having that added bit of aggitation of having our brains picked apart, not by caring people but rather by self serving people with their own interests in mind.

In spite of being xxy, people would never know it if I did not relate this, but certain that most are very tired of being typed or catagorized as some object of study, peer pressures being the thing that has forced so many into a box as if we were oddities or something other than an equal, hell, I have enjoyed the life of a cowboy, got to do some rodeo before getting too old for the sport, blending very well in society until the IS subject would come up and in learning that I am IS, things never the same again in the attitudes of other people, suddenly not one of them anymore, but very determed not to have a sense of shame put on me for being who I am and comfortable being who I am.

Won't tell you what to do with the research, but sure that others might who find another barrier to get past when placed under a microscope to see if we really are like other folks or not.