Consensus statement on management of intersex disorders

[miriam]

FYI...

Groeten, Miriam

__________________________________________

The Lawson Wilkins Pediatric Endocrine Society (LWPES) and the European Society for Paediatric Endocrinology (ESPE) considered it timely to review the management of intersex disorders from a broad perspective, to review data on longer term outcome, and to formulate proposals for future studies. The methodology comprised establishing several working groups whose membership was drawn from 50 international experts in the field. The groups prepared prior written responses to a defined set of questions resulting from an evidence based review of published reports. At a subsequent gathering of participants, a framework for a consensus document was agreed. This paper constitutes its final form.

Hughes IA, Houk C, Ahmed SF, Lee PA.
Consensus statement on management of intersex disorders.
Arch Dis Child. 2006 Apr 19; [Epub ahead of print]

Hughes_etal_DSD_Consensus.pdf (http://www.netzwerk-is.uk-sh.de/is/fileadmin/documents/publikationen/Hughes_etal_DSD_Consensus.pdf)

[CC]

Thank you Miriam

Hopefully the changes mentioned will,at the very least,allow discussion to begin amongst the xxy communities,who up until now,have completely resented the notion that xxy was an "intersex condition"

Best wishes
Canice

[Sophie338]

Hi Miriam :)

Well in general that seems OK, Though Hughes has a bit of a history with regard terminology. I think that I do not fare brillaintly as a patient being a "DSD" (As in sex disorder). And still being someone who has "Gender issues"
(Does society want me to have "male privilege or female victimhood" which is sexist in the extreme).

Overall the Hughes paper seems OK, I just don't feel entirely easy about the pathologizing jargon I am going the get thrown at me the next time I meet an endo. I mean Conditions of Sexual Differentiation would have been much more helpful, surely.

Thanks for putting it up, it does clarify a lot in my mind :)

shalom

Sophie

[Fee]

Thanks for posting this, Miriam.

Fee