Hi, everyone. Looking for someone to talk to.

[CAHgirl5]

Hello, I'm a 13 and a half year old female with CAH salt losing form. I was diagnosed very early, and was put on a high dose of hydrocortizone until the age of one, when we found my current endocrinologist, who has been great. Since then I've been on cortef and florinef, get bloods tests twice a year and bone ages once a year. I am 5'1 98 lbs. and participate it full contact sports. I had my reconstructive surgery when I was ten years old, and a few weeks ago they went back and fixed it up a little bit. I guess I'm just looking for someone a little older, preferably female, with CAH (preferably salt losing form) to talk to about what you've had to go through. It'd be nice if you could post back with an email or messenger name so I can get back to you. Thanks!

[adelina]

can somebody explain to me what CAH salt losing form means?
I know what CAH stands for ( congenital adrenal hyperplasia)
my appoligizes for my ignorence.

Ciao

the best for everyone

[Sunshine1]

Hi Adelina!

These two links are awesome and will explain for you everything-

for the salt- wasting, please direct your attention to the 5th paragraph down http://caresfoundation.org/what.htm/


and this http://caresfoundation.org/cah.html

best wishes

Aimee

[Sunshine1]

caresfoundation the link CAH in the information box will explain salt wasting - please look at 5th paragraph down http://caresfoundation.org/what.html

[adelina]

thanks sunshine :kiss:
your link was very helpfull for me :smile:
it makes things a lot clearer to me :smile:

[TracyL]

Hello, I'm a 13 and a half year old female with CAH salt losing form. I was diagnosed very early, and was put on a high dose of hydrocortizone until the age of one, when we found my current endocrinologist, who has been great. Since then I've been on cortef and florinef, get bloods tests twice a year and bone ages once a year. I am 5'1 98 lbs. and participate it full contact sports. I had my reconstructive surgery when I was ten years old, and a few weeks ago they went back and fixed it up a little bit. I guess I'm just looking for someone a little older, preferably female, with CAH (preferably salt losing form) to talk to about what you've had to go through. It'd be nice if you could post back with an email or messenger name so I can get back to you. Thanks!


Feel free to contact me at TracyL1975@<hidden>

[luna20_2]

Hi, I would like to chat with you some time, I'm a 23 years old female with CAH.

My e-mail is: luna20_2@<hidden>