sparklingdreams
08-28-06, 03:56 AM
I rarely go into an Adrenal Crisis,
I manage my C.A.H. very well, but because of my GD's progression this year my immune system has been really weak this last year. So I just spent my weekend dealing with an Adrenal Crisis. I always wait to give myself my injection longer than I should. I know I'm going into crisis, but I avoid giving myself my injection until the last minute. Friday started with intense nausea and Saturday started with diahrea and then vommitting then I don't really remember anything from Saturday at like 10 am until Sunday at 8pm... I just kept nodding in and out of consciousness but I couldn't hold on long enough to give myself my injections. I tried to take more cortef tabs, but my vomitting just made it impossible, and I'd pass out then wake up either ready to throw up, or actually throwing up.
I finally called 911, because with my right arm all contorted I couldn't get my solu-cortef into my syringes. And you'll never guess, when the paramedics got here they said they couldn't give me my injection, or even just get my medicine into my syringe. Luckily the paramedics woke someone up here who was able to do it for me, so now I'm starting to feel better, after about one hour. My body temperature is what changes first. I stop sweating within15 to 30 minutes of getting my injection.
I did learn from this adrenal crisis, I'm not waiting any longer. From now on once I 'know' I'm having one I'm getting my injection. Because with this being my first crisis without being able to use my right arm and me continueing to pass out I was really afraid I was getting ready to fall off. I didn't know if I can keep going on, but the complete hell of an adrenal crisis is not the way I'd go... not given that I have other options.
But after going through this weekend I know for sure I don't want to die. I'm going to live, and heal the way I need and want screw any Doctors confusion with a confusing disease. If they don't or won't wrap their minds around what's going on with me than I'm just going to keep on fighting. Because I'm worth fighting for.
You and I and any Intersex person can get over any hope of Doctors fixing what they screw up on. There is just to much activism the needs to be done before insurance companies, Doctors, and the Government do what's needed to make that possible. We're going to have to pay for our corrective surgeries for a long time to come. That's why aside from saving ever penny I rationally can, I'm also going to setup a donation portion on my site where people who are truly compassionate may help me out.
But I just lost two more days of my life because of my disease, and even though I know I'll never stop loosing days to either of my diseases... I can stop them from taking my hope. I'll keep fight my GD and my C.A.H. and reguardless of what that beaurocrat does about my birth certifacate I'm not going to let any of this, or any of those I have to deal with because of them, define me or force me into things that simple don't help me. I'm going to fight for the help I need, even if some brain dead Doctor feels me needs are just wants or just doesn't get what life on this side of normal is like... sameday they might, but I wouldn't wish these things on them. I just wish they could expand their concepts and understanding. While I work to do the same.
I manage my C.A.H. very well, but because of my GD's progression this year my immune system has been really weak this last year. So I just spent my weekend dealing with an Adrenal Crisis. I always wait to give myself my injection longer than I should. I know I'm going into crisis, but I avoid giving myself my injection until the last minute. Friday started with intense nausea and Saturday started with diahrea and then vommitting then I don't really remember anything from Saturday at like 10 am until Sunday at 8pm... I just kept nodding in and out of consciousness but I couldn't hold on long enough to give myself my injections. I tried to take more cortef tabs, but my vomitting just made it impossible, and I'd pass out then wake up either ready to throw up, or actually throwing up.
I finally called 911, because with my right arm all contorted I couldn't get my solu-cortef into my syringes. And you'll never guess, when the paramedics got here they said they couldn't give me my injection, or even just get my medicine into my syringe. Luckily the paramedics woke someone up here who was able to do it for me, so now I'm starting to feel better, after about one hour. My body temperature is what changes first. I stop sweating within15 to 30 minutes of getting my injection.
I did learn from this adrenal crisis, I'm not waiting any longer. From now on once I 'know' I'm having one I'm getting my injection. Because with this being my first crisis without being able to use my right arm and me continueing to pass out I was really afraid I was getting ready to fall off. I didn't know if I can keep going on, but the complete hell of an adrenal crisis is not the way I'd go... not given that I have other options.
But after going through this weekend I know for sure I don't want to die. I'm going to live, and heal the way I need and want screw any Doctors confusion with a confusing disease. If they don't or won't wrap their minds around what's going on with me than I'm just going to keep on fighting. Because I'm worth fighting for.
You and I and any Intersex person can get over any hope of Doctors fixing what they screw up on. There is just to much activism the needs to be done before insurance companies, Doctors, and the Government do what's needed to make that possible. We're going to have to pay for our corrective surgeries for a long time to come. That's why aside from saving ever penny I rationally can, I'm also going to setup a donation portion on my site where people who are truly compassionate may help me out.
But I just lost two more days of my life because of my disease, and even though I know I'll never stop loosing days to either of my diseases... I can stop them from taking my hope. I'll keep fight my GD and my C.A.H. and reguardless of what that beaurocrat does about my birth certifacate I'm not going to let any of this, or any of those I have to deal with because of them, define me or force me into things that simple don't help me. I'm going to fight for the help I need, even if some brain dead Doctor feels me needs are just wants or just doesn't get what life on this side of normal is like... sameday they might, but I wouldn't wish these things on them. I just wish they could expand their concepts and understanding. While I work to do the same.