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Sara Zeal
09-18-06, 12:18 PM
I've been lurking around for a day or two, though I've been researching information about intersex conditions (per my own curiosity) for at least a few weeks, with varied results.

I say 'per my own curiosity', because I'm not working or doing formal research of any kind, it's entirely personal.

My name is Sara, and I'm 24. I'm legally male, looked rather androgynous, leaning on feminine most of my life, and I finally came to term with my gender issues, after a few years of major depression (that were ultimately leading to suicide). I have no formal diagnosis of intersex, thus I do not claim to be intersex. My genitals look, well, about normal, from what I gather (no basis for comparison). My appearance is definitely more androgynous, and the time and extent to which I have had my puberty suggests maybe XXY, AIS or a similar condition. Until things are 'cleared', I simply consider myself MtF transsexual (and am on hormones).

However I've not been followed by doctors during 12 years (from 10 to 22), and have not had any karyotype done (that I know of). Well I do have one done, but it's recent (5 months and a half ago), and I still don't have the results. My family doctor (to whom I talked to about my gender identity issues, and who first diagnosed major depression, a year ago) has ordered the karyotype himself to ascertain of wether I was intersex or not. While I still don't possess those results (and thus cannot affirm anything), it did raise my curiosity, a lot.

I have symptoms that are similar, though maybe 'lighter' than exiled.

I'm 5'6" tall, and although I'm predicted to be the shortest of my siblings and me (3 younger brothers), this might not be cause for concerns and simply normal.

I weight 108 lbs, and while I can hardly gain any weight (especially a hard time gaining any muscles, not that I really want to though), it might also not be tied to an intersex condition.

Many of puberty's "features" have failed to affect me, or have had little effect (even at 24, hormones have only begun 4 months ago and therefore can only be accountable for little of my appearance).

This includes the dropping of voice, which didn't drop quite to a male register, the adam's apple, which is consistent with the voice, almost invisible.

Facial hair is almost non-existent, and before I was 19-20, it *was* inexistent. Now it just is very little (in surface, growth, and growth rate). Body hair I have no basis for comparison, so will not make assumptions.

Genitals look the right shape, the size I have no idea, it's not extremely small, but it's no doubt below average, however, as I said, I cannot account it for anything, since I'm no specialist.

I did not have gynecomastia at puberty (which started at 16 for me, mostly then a growth spurt to current height, and acne, the slight dropping of voice).

No muscle development, upper-body or otherwise. Narrow shoulders, and narrows waist (25 inch waist). Feet are seemigly small for a male (size 8 1/2 to 9 women - or 7 1/2 to 8 men). Hands are rather small, especially in thickness, including long slender fingers if it means anything.

My facial features are rather feminine also, all save maybe my chin, which like my mother's, is a bit elongated (not large by any means, just seems longer). Facial features which I include are eyes, eyebrows, browbone, cheekbones, lips, they all are 'unusually feminine', especially for my age.

Alright, now as I said above, those are symptoms which I think, might be associated to a condition like XXY (not necessary Klinefelter) and AIS (grade 1), because of a seemingly lowered response to androgens (while I had normal testosterone and LH levels before hormone treatment started, in March 2006). Another symptom is a low (near-absent) libido, which is enough to account for as asexuality.

I don't wish to claim a condition that which is not mine, and I will definitely seek to have tests to prove or disprove it in the near future (when that karyotype result finally comes in). However if you think my symptoms point to a condition in particular, I'd be interested to know. Litterature on intersex conditions seems pretty scrace and limited to medical resumes of a few lines, or long medical resumes that keep saying the same thing, so I no doubt might have missed many doing my personal research.

I'll be sure to inform you of whatever my karyotype result is, as I'm supposed to receive it in a few days now (or so the hospital says).

Sara~

Kailana
09-21-06, 07:38 PM
Hi there and hellos, hmm thanks you for your info. im not one to say what anyone has or doesnt have either. But i'd be curious about the karyotype, Was that 5 1/2 months ago? and you havent seen the results yet? or did i read that wrong? And also what kind of Karyotype was performed? blood?,bucceal smear? If you don't mind me asking. not that im all knowledgeable, just curious too. And many of us have had similar experiences.not knowing, there aare some who dont want to know. im not sure how old you are, my brain is kinda not working so good right now. i am trying to say hello though. anyways, try not to let the not knowing get to you. it undoubtly will, but should you neeed to talk or vent. The majority of us here understand. its ok

i have to go, but hope to be back soon.
take care

Sara Zeal
09-21-06, 09:00 PM
Hi Kailana,

I'm 24 years old (as stated in my first post). And yes the results are still not in, now after 5 months and 3 weeks. I'll try and see on Monday. I was told they had a major lag in treating karyotype requests. It was a blood test, I asked wether it was buccal and they said "No, no it's blood" when I went for the test. And they asked me for a reason, given my doctor had told me nothing I saidÈ My doctor's curiosity.

The hospital is aware of my demand is being treated (did not get thrown in the garbage or anything). It's paid for too (by national health insurance)...but the wait is soo long.

I went for the test on March 31st 2006 at 8:45 am at Cité de la Santé at Laval city in Quebec province, Canada. They say they do not do it themselves (and instead send it to an hospital/clinic that does it for them).

Thanks for the welcome, Sara ~

Kailana
10-04-06, 10:33 PM
I can understand some of your frustration Sarah. i have had a similar experience with labs. Although it has been longer. Not that it matters all that much too me anymore. My endo says my karyotype by blood is 46xy, from nearly a year ago, but i havent seen the actually lab results. Either way she put me on hrt, premarin and spironelactone. So i really dont care anymore what my blood says. i have asked a few times to see the lab report, but gave that up as im actually pretty happy now. A little tired from time to time. Anyways im glad you posted. And try not too worry too much. I have wasted alot of time worrying about what i am, and forgot who i am. That is what is important. Try not to forget that. It can guide you when your down. Best wishes. Take care

Kailana
10-06-06, 10:23 PM
Hiya Sarah.
Just wanted to say hi, I have noticed that the board has been a little slow lately with the hellos. im not used to seeing that. Usually theres a bit more hello's and how do you do's.

I hope your not too discouraged by me. I am curious by nature.

I was wondering if you'd mind me sending a pm or email, you can send either to me. I tend to prefer getting permission first. Sometimes, i fear being to rude.

Thanks and take care:wave1: