Hello... I'm trying something new

[JOS]

This is the first forum I've ever been on so I don't really know the correct etiquette.
I recently (five months ago) found out that I had a malignant tumour in an internal teste which I was told three years ago was removed when I was 12 months old.... I was confused! I'm assured that I now don't really need any follow up treatment (chemo- or radio- therapy) except for blood tests bi-monthly and CT-scans every six months to check that nothing has come back. However, you can understand why I may be a little skeptical about what doctors tell me.... Has anyone else had a tumour associated with their intersex condition that can tell me if I should be more worried than I am?

JOS :???:

[sparklingdreams]

I was told I had a uterine cyst,

I was even scheduled for a hysterectomy, as having the 'cyst' biopsied would be useless based on the size and location of the 'cyst'. However it turned out that the supposed cyst was actually one large clot from periods' from when the father was attempting to change my puberty. So instead of a hysterectomy my urologist simply increased, only slightly, my vaginal opening and was able to slowly get the clot removed.

For weeks I had the worst periods of my life, but now with my larger vaginal opening and medications my menstrual cycle is now much more regular and less painful. Although I do have regular Sonograms and CT scans just to make sure that no clots are 'growing'.

This isn't exactly what you're going through but similar, kinda I guess, so I felt I'd share my experience with you (and everyone else here :shock: ).

I'm sure most of us here relate to your 'instinctual' lack of trust in basically any one in the medical community, but we have to rely on them. If you're worried enough you could always seek a second, or third, opinion. Something I'm sure most here have done as well, I know I have done several times in my life. As recently over the last three months.

Take care & good luck.

[Kailana]

I just wanted to say "hi,"and "welcome." And as far as ettiquette goes try t be polite. You can rant and rave all you want, but keep it clean, A great many of us has needed to do that. Try not too roughle too many feathers. There are lots of views here, lots of knowledge too, lots of support.
Take care ok