surgery options

[jamis22]

Good Morning. . .I have been considering the operation for women with MRKH sydrome but it has been sometime since I have seen my doctor and was wondering if anyone knows of good websites or information about the operation. Or possibly direct me in the right direction! Thanks so much! Have a wonderful day!! -jami

[claraJane]

Are you thinking skin graft or colon section? There are quite a few options.

Kind regards,
cjs

[jamis22]

ClaraJane. . .I guess the only operation I have been informed about is the skin graft yet that was the only option 6 years ago when I talked to my obgyn. I was wondering what other options are out there for me. Do you have any info??

Much Thanks,
Jami

[claraJane]

There are quite a few options available now, including dilation, skin grafts, and sigmoid resection. Dilation, when possible, is probably the best. When surgery is necessary, dilation will still also be necessary, although less so after a sigmoid section than a skin graft.

There is a reasonably good article at
http://www.medhelp.org/www/ais/31_HPLASIA.HTM

[Dana Gold]

If you are considering surgery, then my recommendation (for what it is worth) is this doctor (both a urologist and surgeon, experienced in intersex conditions:

http://www.altermd.com/preview.htm

The left hand column has the various procedures, you'll see intersex along with various other surgeries.

He's expensive, but I have heard nothing but good news from his techniques and results. Maybe your insurance will cover most of the cost.

Hope this helps somewhat....PS : Dr. Alter is in Southern Calif.

Bye, take care.

Dana

[jamis22]

Thank you so much for the information!! It is wonderful to have women like yourselves who care so much for a stranger! Thank you and if you know of anymore info please do send it my way!!

Grateful,
Jami

[Sofie]

Did you try these websites:

http://mrkhorg.homestead.com/index.html
http://www.home.earthlink.net/~mrkh3/
http://www.surrogacy.com/online_support/mrkh/

You could also try to contact the australian AIS-Support-Group at
http://home.vicnet.net.au/~aissg/
(They have a special *contact sheet* on their website)

Sofie