adrenal hyperplasia

[Amy (Aimee)]

Hi,
I am jewish from first day of infants school and had been told that I had 'hidding' surgery in childhood as boys / men have more money which I found to be not true regarding working regarding Psychology as working through various universities in europe and some (Many) others.

I am adrenal hyperplasia but told I am XXY and would like to meet other intersex - adrenal hyperplasia

Thanks

Amy (Aimee) Karen Dawn Brooks

[ptrinkl108]

Hi Amy (Aimee),

I read your post with some interest as you mentioned that you are both XXY and have Congenital Adrenal Hyperplasia (CAH). As I am Jewish, the fact that you mentioned that you are Jewish struck me. A form of CAH, late-onset CAH is very common among Ashkenazi Jews (Reported to be 1 in 27). Although I don't know what type of CAH you have, I think that there is a strong chance, given the odds, that you have CAH.

You also mentioned that you are XXY. To my knowledge XXY, is not generally associated with CAH, so I am wondering in what way your XXY condition manifests itself. I have done some searching of the internet, and cannot find any association between CAH and XXY. I find it interesting that you were apparently born with two different intersex conditions. Although I can imagine being born with two different intersex conditions, I also wonder about the quality of medical advice that you have been getting. I recommend finding a good doctor, who can hopefully provide you with more information.

There are many CAH resources on the web. Good luck in your search for other people with CAH.

Peter

[Amy (Aimee)]

I have Adrenal Hyperplasia but had been told that I am XXY but I know that I am not XXY as I found Info on internet to get correct words/spelling

Thanks

Amy Karen Dawn Brooks