[Kailana]

This is mostly for sparkling dreams.

You mention that you think of me as being sad
" But sadly you both seem very close minded in this post, as have so many in the IS community because of your sudden awareness that not everyone with any of the DSD is IS. Indeed statistically most of us are not IS. As much as IS people need & cry for acceptance I'm constantly surprised how lil understanding & acceptance you all have for girl(in the case of CAH) who, like me, are born with one of the DSD and though we are often incorrectly mutilated we aren't intersexed. Maybe someday this community can accept us as the woman(in the case of CAH) that we are. We get judge & hated like almost everywhere else it just like way sad that we have to be judged here(& in the IS community at large). At least now I have an idea of sites where I am now find support. You are both quite sad"

apparently there is some confusion here. I see that little girl as a perfectly normal little girl. For you Katey the same goes. I do not judge people. My comment about the father who seemed to hate me from the get go and our short round of emails all occured because i asked the simple question. "I was diagnosed CAH, then with XY/XO chimeric mosaicism, is anyone else familiar or know anyone who has CAH and another condition?'

Your statement about me and Priestess i think is quite harsh. I don't understand what has made you upset. CAH is a well known and documented to be considered female psuedo hermaphroditism. whether a person is a true hermaphrodite or a psuedo hermaphrodite it really doesnt matter to me. The term intersexed is a medical term that has been used for a very long time and replaced the terms Hermaphroditic. You almost never see that being used anymore at all. The new term now as DSD, well its the same thing as before, essentially applying to anyone who for whatever reason has or was born with an anomoly to there genitalia. With the new DSD standards that you support, you are DSD, Doctors have debated for years what is or is not a true case of intersexuality. I simply do not care much one way or the other. What i do care about is the continued forced gender assignments on children with atypical genitalia, Boy or Girl, Man or Woman, you are what you are beacause you believe so. I would ask that you cut the accusations about people who think a little differently then you. Just because i prefer intersexed over DSD doesnt make me a monster. That is not what this thread was about anyways. This thread was about why an administrator got mad when the term intersexed was brought up in a blog? post? I simply gave a sample of what i experienced when i first started looking for help and information. Had i experienced the same type of response when i first came to BLO over 4 years ago i wouldnt have stayed. I do have some Knowledge of CAH, Thats the first condition i was ever acknowledged to have. Though i dont spend much time anymore on it. Its not my particular area of need, interest. I have lived nearly all my life without my right adrenal gland. While some of my worries may coincide with yours when it comes to CAH, I have others that are more pressing. I still understand what you have, and how difficult it is living with at times. I am living with multiple problems. And i am doing quite well, thank you kindly.

But why are you so against the word intersexed, all it means is that this person is, is someone who for whatever reason was born with genitalia neither clearly male or female, but somewhere in between. As far as what i have read in the DSD, they pretty much mean the same thing. with DSD a few more conditions get added to it, so now there are even more of us out there in the world. If someone really wants to know what i am, i will let them ask. I simply cannot understand what your gripe is about what me and Priestess were talking about.
This thread was not about DSD versus Intersexed.

Thanks all for reading, my apologies should anyone find anything i typed offensive, It was not intended too be.

Now then back to CAH- I have it, what so i am not a normal little girl, nor am i normal little boy, I still have it. Surgeries, woohooo, you know what upsets me the most is that in almost all the talk about genital reconstruction, genital reassignment, is that its usually girls with CAH that get talked about the most. Even from here, the handouts that i have read are pretty much about little girls with CAH as there main example. Well you know what i had reconstructive surgery as well, and nothing is normal, most people see me as a man, great for them, horrendous for me. what i have ovaries, oh that cant be, becuase of the way i look, people assume i am male. Genetically, ok maybe i could of gone that way, there is a Y chromosone, but hey how i was born, people saw me as a girl, Dorothy Maree, thats me, a name stolen, an identity stripped away. I have an understanding that you dont. I know quite well what its like to have doctors asking you year after year if your happy, and then ignoring you when you telll them "no, i am one of the most miserable people in the world", "I should of been a girl."
I do not see myself as a normal man, or as a normal woman, I have been and always will be me. Intersexed, transsexual as an infant me, meaning my gender i have had to live with was assigned to me,so i am me, me, me, me,ME. And ME is a little angry at the moment.
With all the posts i have made over the years i have tried quite hard to let people know me, and attempted to help those i could. Share what knowledge i have and learn what i dont know about other conditions that are in all aspects different but then again similar to my own. I know what its like to be 20 years old and have doctors pull you aside and ask you about your blood that says your female, i know about having to see psychiatrists because once again your labs say your a girl, and again with an MRI shows you got Ovaries, I have been told so many times that I am not what i Appear to be, and then now these last 5-6 years i get a complete flip-flop, I guess im delusional, that by the way is a very hard diagnosis to have to live with. Fortunately i also have the pleasure of having one very good Endocrinologist who understands me quite well, and others both within the intersexed and transgender community. Now then i accept i am a rather unique individual, Perhaps some day You Sparkling Dreams will find that place too, and when that day comes give those of us who are able to comprehend that they are intersexed a break, maybe then you might find a little piece.
Now then no apologies, as this is my anger talking, its meant to sting