The D.S.D. Guidelines are making their way into the medical community through various streams. The most obvious two are of course, like first, from us going out and putting it in front of them and then like secondly, is them asking, or looking, for new guidelines. But they're also getting into the offices of the many Doctors who treat us because many Doctors do desire a standard model of care and with the D.S.D. guidelines they have it.
The D.S.D. guidelines has been written with input from caring medical professionals at every turn, which is another thing that helps with getting the D.S.D. guidelines into Doctors hands. One other simple thing that is getting these guidelines into Doctors hands is the Parents' Guidelines. These guidelines are written with input and contributions from many parents who have been through various periods of raising children with one of the D.S.D.. Some made their contributions because of their success others because the realized their mistakes, and both wish to help children & parents faced with these conditions. Doctors who actually wish to help their patients and their parents end up finding the DSD guidelines and now the benefits are two fold. Of course this scenario can work out the other way too.
These are two other very effective ways of getting these guideline passed on. The last is prolly the most effective. Its pear support, which the DSD guideline do have. Indeed the very wording "Disorders of Sex Development" was coined by Doctors. So the medical establishment's overall more open mind set toward a new treatment model. Sadly this is mostly because they are being confronted by the problems with the old model.
These are just the initial ways that the DSD guidelines have made their ways into Doctors hands. Though I'm sure that we'll find many other wys to continue to further spread the treatment guidelines. And Dana, thank you for being open to changing how you feel, that's awesome. I guess since I've always just seen my CAH as nothing more than a disease and my GD is another disease I have and its a neuro-muscular disease, or movement disorder, so think of my CAH as just being one of these disorders hasn't bothered me. I had to work through my personal stigma of that word long ago. I just think its cool to have someone else here who has worked through their emotional issues about words used in the DSD name when I'm sure that anyone who opens themselves to the DSD guidelines would see how much better they could make the future for anyone living with any of the DSD.any body has question every body can feel free to ask me an I'll reply as soon and as best as I can. Thanks again. *Hugs*
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