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Old 05-04-07, 11:02 AM
amy3000 amy3000 is offline
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Join Date: Sep 2005
Location: Wellington, New Zealand
Posts: 12
Hi

Doctors can be a nuisance and I can understand your fear of seeing one - It pisses me off when people try to make me do things I don't want to do. Doctors also have a history of doing injustice to intersex and people who are different./ - still thats not to say you might not find a good one who you can trust and who will listen to you.

I am not a doctor - this is not medical advice, but

I think who ever it was that told you to suspect 3beta HSD could have been on the mark.

I would be interested to know what birth control pills you took to get pregnant - still.



What I have done in the past when I have needed to see a doctor but have been afraid they would see my medical history and not listen to me, is to fake my name. i faked my name to a doctor when I went deaf once, because i knew something was wrong, when other doctors had said I was a loopy loop and not to be listened too... turned out I had a brain tumor and I could well be dead if I didn't take proactive action.... psychiatrists are worse than endos i tell you. I had to see five psychs after that to get a previous diagnosis reversed and complain about her to the doctors council....

anyway....

3b HSD, I would suggest that it would be interesting if you knew what your levels of different steroids were...

17 OH progesterone is commonly investigated in such things as polycystic ovaries, as well as CAH. In classical CAH it can be very high, and in other types very low. - normaly it is say 1-10 - 21 hydroxylase cah might have a number of 300 or even 3000 but 3b HSD CAH individuals may have a level of something like 1-2 or less. You could tell the doctor who you see with a fake name that you have polycystic ovaries, and your "mum had a weird 17 something OHB level or something, and told me to get tested"....

As well as 17 OHP they will probably want to check your FSH and LH levels, and also hopefully your oestrogen levels, and even better your testosterone levels.



If you take testosterone regularly you might want to skip a fortnight and then wait another couple of weeks before you go and see this doctor with your pseudonym. Also try and get them to do a cortisol test - they do cortisol tests for such things as depression - low energy and thin - or if you're shakey and anxious.



Now - if it's 3bHSD - then probably your 17 OHP levels will be low, likewise your oestrogen.



I would like to think that an endo will listen to you if you express your desire to take testosterone, and tell him that as far as you are concerned you're a boy - Who gives a shit what anyone else thinks really - it's you that walks around inside you every day.

bear in mind that testosterone carries risk. I would say the notable one for you would be ovarian cancer or cancer of the uterous. A hysterectomy could fix that.... testosterone can also bump up the immune system which is a pain in the ass as you don't want horrible alergies all the time and worse. And then their is that emotional side of it. Go gentle on yourself I would recommend.

If it is 3bHSD, then it would be really good for someone who knows to treat you as they could give you other steroids that could make you feel a shit load better - namley cortisol - or the synthetic derivatives made by currupt drug companies - namley dexamethasone or prednisone.

and wowee - life could feel a whole shitload better for you.


It would be interesting to think about the way you smell on testosterone.... salt wasting that everyone talks about makes you stinky, and perhaps you smell different to yourself sometimes.

Oh, and CAH has been associated with a higher than normal IQ in the past. one of Moneys protege's tested a bunch of CAH individuals (non salt wasters) and found their IQ to be 108-118 or theirabouts.... doesn't sound that high but it is quite alot higher than average, and unusual. Some groups of people have selectivly bred with family members to enhance the prominence of this trait in their children... it's called eugenics.... sounds a bit fucked up to me, but I don't know the full gory details, and I think they feel quite justified in it and do it in what they consider a safeish way......

What is more important in my opinion is EQ - emotional quotent. You need to look after yourself and find your inner peace and stregnth.... wonder if anyones done a study on EQ and CAH... LOL



ps = the views expressed in this post are from a rank amaetur and not to be taken as strict medical advice under any circumstance - I recommend finding a doctor you can trust and talking to him or her.

Last edited by amy3000 : 05-04-07 at 11:17 AM. Reason: mistake
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