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Welcome LuckyMom
Hi LuckyMom,
I like the your using the name "LuckyMom". That indicates to me that you love your child. You have related much material about your child's condition. As I underwent infant genital surgery myself, and my past was shrouded in shame and secrecy, I would just like to say that having a body that is different is not such a bad thing. I have wonderful friends, a nice job, and life is generally pretty good for me. You mention that the doctors want to do infant genital surgery in the coming months. In the past, it was common to sexually assign children with mixed gonadal dysgenesis as female, and to surgically re-enforce that assignment. However, I know some people with mixed gonadal dysgenesis also grow up to reject the female sex assignment. You mention that your child has a sizable penis and one testicle. I am not offering medical advice, and only your doctor knows the details of your child's situation. It seems that early infant genital surgery should try to do as little as possible, perhaps aiding in urination if voiding the bladder is a problem, or other procedures that address some immediate metabolic issue. I know that there is a growing movement among intersex people to advise that genital surgery generally be delayed until a child can have some input into the choice of sex assignment, if the child even wants to have a surgical sex assignment at all. I would just like to say that despite the confusion and concern about intersex children, that we grow up with the same wonder and energy for life as other children do.
Peter
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