Thread: Well.
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Old 07-18-07, 07:15 PM
TracyL1975 TracyL1975 is offline
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Join Date: Oct 2005
Posts: 21
I am going through the henry ford health system.. They seem to have their crap together. My new endo has run a battery of tests.. She lowered my dose from 40/day to 30/day.. + the .25mg dose of dex. So far, I have had 3 ad. crisises and counting (I am going for the high score).

At this moment, my thyroid has been tested. Seems to function properly. I go in front of the entire board of doctors at henry ford in a few weeks.. (Run the little maze like a good lab rat, but at least my clothes remain on).

The osteo-arthritis is purely caused by the high dose of hydro I am on. I have the spine of a 60 year old, according to them. The diabetes is scary as well. I am on a specially designed diet of adult 'baby formula' for the last 2 months.. Ie --- VERY calorie restricted diet. I still weigh over 300lbs. This diet, as calorie restricted as it is, is more food than I am used to.. (I have had my goings around with weight management and got a diagnosis of anorexia just recently).

A side note, since I did never have the corrective surgery done - they are going to do it.. (its a matter of plumbing at this point) -- I have never been treated with as much respect as the doctors at henry ford have treated me. Like you I still deal with the crap that this life brings.. I have had exactly ONE consensual sexual experience, and that one caused me to become so violently ill, I do not care to repeat. I only get thru every day because of the 'tricks' I have honed so well.. (The tricks I have are coping mechanisms purely related to autism, but they work well enough for the CAH stuff).

Last edited by TracyL1975 : 07-18-07 at 07:26 PM.
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