Sorry.. I've been away.
I guess the plan is to remove both. I meet with the board of doctors on Tuesday, so I will know more then. As an upshot, they are going to complete the stupid CAH corrective surgeries (hopefully -- I have had my hopes dashed before on this one). Aside from everything else, all I know is that its something different, rather than the answer to increasing cortisone.. (I was on 40mg/day hydro and .5 mg dex, and old dr wanted to increase that to 50mg/day hydro + the dex... I have pretty severe diabetes, and lots of bone loss. I hate my life the way it is now.
Quote:
Originally Posted by Kailana
I just wanted to sayhello and welcome to BLO.
I am curious about the adrenalectomy, are they going to remove both? or just one? I have lived most of my life now with only 1 adrenal gland. I was diagnosed with CAH but currently its still debatable whether or not i actually have CAH, It actually looks like i have Cushings, but at the same time am suffuring from Addisons. or at least Addison like symptoms, With Cushings, its very confusing when dr's dont actually talk/discuss my bloodwork.
Anyways, do you know what they expect to have as an outcome with the adrenalectomy? I am curious, but want to say best wishes as well. Surgery all surgeries can be dangerous. Keep your spirits up.
With love,
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