Hi Tracy,
Do you have an Endo that follows your CAH?
What type of CAH do you have?
I've been tested for Cushings myself.
Also
What about thyroid conditions? Have you been tested for anything like Hashimoto's thyroiditis? What a name but a very common condition and I have this as well as Simple -Virilizing CAH.
and
I really don't care about weight in how people judge me but I need to lose weight for my health now. I've been 128 and hated it because of attention from men. I've weighed 150 and still the attention and so on ...know its guys that like chubby women as I weighed 180 and 209 but I had to lose some weight becuase it was affecting my health ...sooo I've gone from 209 to 195 with taking the Cortef 25mgs/day and the synthroid .125 for the thyroid.
I'm glad that you didn't go the adrenalectomy route until more consideration about that and it's good that you are going to the U of Mich as they really get the dosing part but all the genital exams by the students and Endo and that surgery to top of the surgeon and his finger dialation destroyed any sense of boundaries/self esteem that I had and violated my childhood/teenage years to where nothing matters but .....the only good point is yes can help you with this as they've had years of practice.
also
i was wondering what type of food do you eat? i touch pasta/bread/potatoes/corn and I'll gain weight no matter what.
I'll write more later