Looking for XX CAH Men

[RGMCjim]

Hi Everyone,

I'm a long time member of BLO (years & years). For those who don't know me, until I was about 40 I thought I was a partially developed male and had been referred to as being a pseudohermaphrodite and intersexed as a result of being exposed to progestin before and into my Mom's pregnancy with me. Neither I nor my parents really knew what that meant. I have a tiny hypospadic penis and no testicles and had no apparent vaginal opening. I was raised as a boy.

At 44 I had my first real medical workup to find out what my body contains and what my chromosomes are. That's when I found out I'm XX and have ovaries and a uterus that doesn't/cant' work and that I have a vagina that just had a closed over opening - easily fixed. The next year I got a referal to a new Physician who reveiwed my health records and realized I must have CAH too. Since learning I have CAH other family members have asked if their health problems might be a result of it too, and it has turned out to be the case. I've got a lot of health problems that have been shown to be related to CAH.

I'm looking for other XX people with CAH who were raised as boys and given testosterone to induce male puberty like me, or who started with an assignment of girl but later switched to boy/man, or who are questioning their assignment as girl/woman and are considering switching to man. I've met a few and figure there must be more of us.

Jim Costich