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General CAH Forum Connect with others that are interested in congenital adrenal hyperplasia. Any topics related to CAH may be posted here.

 
 
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Old 04-27-07, 04:07 AM
Rycharde's Avatar
Rycharde Rycharde is offline
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Join Date: Apr 2007
Posts: 53
A member suggested I may have CAH

Ok so I described my situation on my intro post.

Someone read it and suggested I look into this so I've been reading and hmm well some bells go off.

I was in a coma May 05 said to be brought on by flushing my sodium levels to rates that caused me to go into seizures and almost die.
They said it was because I drank so much water that I had no sodium and I was restricted from drinking water when I woke up from my coma!
So how much water does it take to flush all the sodium out of a person my size?
I was told 86 liters, but don't quote me on it.

I have been sent for Rheumatoid testing because my joints are gone. I'm only 24.
I've got a million other health issues too.

The condition of my body is "Stopped at 12" no puberty, no masculine features, no feminine features.
Mom, #1 Aunt and Grandma physically resemble me, Aunt #2 is short fat and curvy with huge breasts. Not like us at all.

I have been living as a boy all my life, I have taken supplements to raise my testosterone levels and on a scale of 1-10 my doctor conveyed man as 10 and woman as 1, he scored my level as a 5.9.

I've had 2 live full term births, both conceived on birth control pills. My current pregnancy was conceived while taking supplements, the supplements I took also raised my estrogen. I don't know how but my doc said that I was ovulating normally and I got a period so I had intercourse and yay I'm pregnant. Otherwise I don't get periods and I had been in a relationship with a man for 5 years of unprotected intercourse with no conception, although he and I had a baby when I was on the pill.

Now I want to figure out if CAH is something I might have. But I want to be masculine. I want to be a man the rest of my life, as I have always been (aside from lapses in sanity where I actually tried to be a woman LOL)

BUT if I DO have CAH does that mean that I'm going to have doctors trying to level me out by giving me ewww estrogen and making me female! I'd rather die a man than have someone help me turn into a woman.
I can not express my hatred for being thought of as a woman enough in words except that my inability to express how much I hate the idea of living as a woman makes me want to destroy things and hurt myself and others. That's how seriously I do not want anything to do with being female.

I LOVE being feminine. I am a gay man,I am a flamer and I do drag and I get called a lady because I'm one of the girls but get it right that when it comes to who I am, I am a feminine Man, with a vagina.

Other key points hmm- no real clitoral enlargement. It's kinda big but not really, the big part is where I urinate from which comes out an inch or two when erect.
Pregnant and muscle walls still in tact, females muscles move to the side when they get pregnant, I'm 6 months, no change in their position, they never separate. My hips are still where they always were, they never separate and my joints pop and hurt like hell.
Lately I am having trouble urinating. Slow and steady. It takes a good 10 mins to get the job done.
No vaginal orgasm, anal orgasm, clitoral and the area around my urethral opening are sensitive, but nothing up in the major cavity.
My jaw didn't grow and my teeth got too big for my jaw.
I have seizures that cause my whole left side to go numb and I lose all ability to speak in normal sentences.
EVERYTHING feels better when I have high testosterone. No more Manic Depression, joints feel better, no seizures, healthy feeling.
I have a light and soft spoken voice by choice but can belt out bass if I barrel it from my chest, I don't because I'm a sweetie and it scares people when I yell because I'm so cute and little...I sound like Ross the Intern!!!!
My voice got really low when I took supplements, really fast too but I can still speak lightly because of my natural way of speaking.
I was supposed mentally retarded at age 8 and found to be top 98% IQ (over 160) and then they said I have ADD, then they said I have Aspergers, then they said I don't and they don't know what is wrong, I don't like "them" at all.

So what does it sound like to you, people who have dealt with CAH for how long and know a lot about it?

And again I don't want to get tested for CAH if it means I won't get testosterone if I have it.
If I don't get my T I don't want to be alive. So risks, ah well, die happy. I just want to grow up as a normal man.

I don't know what else to say or ask but I hope someone can point me in the right direction and broaden my understanding, I have read the pages in the links on this forum and I don't see anything that answers "what if I like being a man and have CAH?" So I'm asking.

If it sounds like I have something other than CAH to you, what is it? Point me please!
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