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| General CAH Forum Connect with others that are interested in congenital adrenal hyperplasia. Any topics related to CAH may be posted here. |
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You really don't know anything about CAH. I've seen an endocrinologist my whole life ...have to .....see born with CAH and this condition is life threatening besides affecting your growth . People WITH LOCAH might see someone latter. My endo that I have for CAH was the one that diagnosed the hashi's. The Hashi's is harder to treat because of the CAH.
You telling me to go to an Endo shows you don't know a darn thing.....sir I've seen endos my whole life as I don't make cortisol and need cortef perscription to live and yes to me your book outline is freak show seeking. Next section animals that give birth out of penises.. step right up And you also told me basic info about Celiac and Hashi's that I've had for three years. I was looking for a different type of info.....a little more indepth as I thought you studied the immune system. The connection of Hashi's and Celiac is on the front page of the Celiac Sprue ORG I also am a three year survivor of andendocervical carcinoma. The subject you want to write about has been done forever and it's proved false ala John Money and it's sad that you don't know for sure if someone has the conditions you are wrting about but yet you want their input . The thing that really gets me is that your topic would make someone think if you used it in the realm of people that don't have any conditions. People like you have been coming here all the time and I would like to know what you think CAH is? If you want real info from real people about CAH please call the number on this site http://www.caresfoundation.org. Also get the numbers for Susan Baker and Sherri Brenbaum as they are into your topic and have interviewed people for years. Thank me for giving you their names as this is what you want for your book. It's sad that nobody yet wants to write about CAH yet as the Endocrine condition that effects males and females but it's always good to look toward the future. People with CAH run the gamet in gender expression and no different from those without CAH but you have a certain stereotype that you are looking for that sells books and the Mom with Cah that has four kids isn't your thing or that we have adrenal crisis and the educational info about this condition isn't taught. I have a messed up adrenal gland and my sister without CAH is the one that can change car oil as I'm shopping. And YOU are telling me these are complex conditions? SOMEONE THAT HAS NO IDEA ? Have you read any of my posts? You seem to be telling people instead of actually learning about CAH. Did you know that CAH is part of Newborn Screening? Wonders of the world? Do you think diabetes is a wonder of the world? Would you like to be thought of as a wonder of the world(freak)? I think you are dated in how you look at CAH and the topic as women are in all sorts of careers - do all sorts of things men do but you need to look toward these conditions when your topic really can stand on it's own. But, I go into an ER needing extra solu-medrol becuase I'm ill and nobody has any idea. Gender is fluid and always has been. Also,the perception of gender is based on the needs of society at that given time period. What about CAH do you think has to do with sexual development? Why do you think my life is any different then your wifes? Why do you think I has the answer to gender? Why should I see a Rhuematoligist? Last edited by Sunshine1 : 08-30-07 at 04:51 PM. |
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