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General CAH Forum Connect with others that are interested in congenital adrenal hyperplasia. Any topics related to CAH may be posted here.

 
 
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Old 07-18-07, 01:41 PM
TracyL1975 TracyL1975 is offline
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Join Date: Oct 2005
Posts: 21
Well.

My doctor called me today.. She is concerned about the very high level of steroids I am now taking (20 + 20 hydro + .25 of dex). My body is a mess --- weight gain, bad arthritis, badly thinning bones, uncontrolled diabetes (despite 2000x mg of metformin a day). Apparently, the care I have been receiving over the last 10 years was shoddy. I got an inkling of this when I repeatedly questioned my doctor about 10+20 lb a WEEK weightgain, to which her reply was 'don't eat so many comfort foods'. New doctors are horrified by the amount of steroids I take.

Anyway, as far as the surgery, they are going to do the remaining corrective surgery piece, as well as the adrenalectomy in one shot.. Kinda scary.. Any thoughts or advice?
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