I am 52, and new to my awareness of having MRKH. For me, it has been an amazing revelation to see that this is actually a syndrome, with characteristics shared by MANY people. I live in the Boston area, and am interested in speaking with others.

Thanks,
Trish

Have you been to www.mrkh.org yet? They have several support groups listed, and even if they're for younger women, they might have contacts for you.

We are everywhere.
Janet

I appreciate your reply.
At this point in my life, I am not really interested in a support group, as the medical and emotional "coping" issues are long passed. (What is "new" is my awareness of sharing a set of common physical traits with so many others.) I continue, however, to be very interested in the larger social/cultural responses to vaginal agenesis, how this affects family and other relationships, the medical community, decision-making, etc. I would enjoy discussing such things with other people with mrkh, to share and expand my own thinking, and possibly to participate in public education in some way.
Thanks again,
Trish

I noticed that your address is newton mass. I live in boston. Email me privately at info@mrkh.org and I will give you my home phone number. I am 47 and know how learning that so much information being kept from you can really do a number on your psyche.....
esther

__________________
esther
www.mrkh.org