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As an infant's genitals are being scrutinized, it is difficult for parents and medical professionals to think of that child as growing into an adult sensual being. The thought process is simply that these genitals are too severely misshapen for that child to feel and be either a boy or a girl, and subsequently grow into a male or female. There is also concern for the parents and caregivers, as medical professionals believe that bonding will be negatively affected if there are visible reminders of atypical genitalia. Parents are encouraged to consent to these surgeries before their baby reaches the age of two so that there is no memory of difference or surgical trauma for the child.

In the last 50 years, most adults who were born with atypical genitalia underwent a variety of early genital plastic surgeries. Many of us had further surgeries to correct the corrections. Some bodies like ours require additional surgery, such as vaginoplasty, at the onset of puberty or sexual activity. It was not unusual for us to undergo surgeries without explanation, as keeping us uninformed was thought to benefit our acceptance of self.

While adults with bodies like ours have been secretive about our true feelings, that is more than understandable when viewed within the historical context of the shame and secrecy surrounding early genital surgeries. We don't easily outgrow the feelings of being different and alone. Many of us have murky, vague recollections of things being done to us, but have suppressed these traumatic childhood memories. What we DO remember is that there were always lots of people looking at our "private parts". We remember people talking about us, but not to us. As everyone was chanting, "You're fine, you're normal," we instinctively knew we were not. We were not normal or average or fine, and to prove it we never ever knew of another with a body like ours.

Any childhood disease that requires hospitalization, invasive procedures and surgeries result in emotional and psychological trauma for that child. While children born with a heart problem or other illness over the past 50 years were allowed and encouraged to talk openly about their feelings, often children with bodies like ours were not. Society didn't talk about genitals and it certainly didn't discuss different looking genitals. The inability to discuss bodies like ours also discouraged our individual ability to accept the very real trauma we suffered as children.

As emerging adults, we only try to blend in. Clothed we appear normal. We aspire to be normal. Our sexual coming of age is a land mine of vulnerability, fear, shame and self doubt. How is it that one learns to be intimate with another if they can't and won't talk about their body? As teenagers in the 1970's, '80's and 90's we often were either reclusive or promiscuous. We didn't talk about our bodies or our feelings with family, friends or psychological counselors. We wanted so desperately to fit in, we didn't say anything to anyone. Our lovers and spouses ~ those who knew us best ~ often weren't allowed into the secret realm of bodies like ours.

To read personal stories from adults with Bodies Like Ours, click here.

 

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