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J. David Hester, PhD. has published two recent articles about the rhetoric surrounding intersexuality. The first, Rhetoric of the Medical Management of Intersex Children has been published by the journal Genders. The second article, called Intersex(es) and the Rhetoric of Healing examines the role of on-line discourse that is a fairly recent phenomena in intersex advocacy. David Hester is a scholar and theologian based in Berlin. Both have been included here with the permission of the author:

Dr. Ellen K. Feder, of American University, has written an excellent and important chapter on parents and intersexed children in a volume on care and dependency. The work is significant in that it is the first account of intersex based on interviews with parents. Dr. Feder argues that the isolation of parents and medicine's failure to take account of their experiences is unfortunate; but more than that, parents' isolation and confusion are built into the treatment process itself:

  • Ellen K. Feder, 2002, "Doctor's Orders: Parents and Intersexed Children." Pp. 294-320 in The Subject of Care: Feminist Perspectives on Dependency, edited by Eva Feder Kittay and Ellen K. Feder. Lanham, MD: Rowman and Littlefield Publishers, Inc. Read the article on-line. (PDF)

Another groundbreaking study by Catherine Minto, Sarah Creighton, and colleagues was published in The Lancet, the leading medical research journal in the UK. The article examines the effects of clitoral surgery on sexual function:

  • Minto, Catherine L, Lih-Mei Liao, Christopher R J Woodhouse, Phillip G Ransley, Sarah M Creighton. The effect of clitoral surgery on sexual outcome in individuals who have intersex conditions with ambiguous genitalia: a cross-sectional study. Lancet 2003. 361:1252-57. Available online at:

Excellent article by Sheri Berenbaum, Dept of Pyschology, Pennsylvania State University examining the treatment protocols for intersex children, and the lack of adequate follow-up studies:

Recent article by Berenbaum and Bailey that indicates most girls with CAH have female gender identity regardless of surgical status:

  • Berenbaum, Sheri A., Bailey, Michael J. 2003, Effects on Gender Identity of Prenatal Androgens and Genital Appearance: Evidence from Girls with Congenital Adrenal Hyperplasia. Journal of Clinical Endocrinology & Metabolism. 88(3):1102-1106. Web access is pay per article from http://jcem.endojournals.org/cgi/content/full/88/3/1102

Dr. Nina Williams had a wonderful, yet disturbing case study about one of her clients. Nina is also on the founding Board of Directors of Bodies Like Ours. This case study was presented at the American Psychological Assn annual meeting, SF 2001:

Behavioral effects of prenatal versus postnatal androgen excess in children - Entrez-PubMed

Early androgen effects on aggression in children and adults with CAH-Entrez-PubMed

Effects of early androgens on sex-typed activities and interests in adolescents

Effects of fetal androgen on childhood behavior - Entrez-PubMed

Gender-related behavior and attitudes - Entrez-PubMed

Personality characteristics and platelet MAO activity in CAH women - Entrez-PubMed

Psychological findings in early treated cases of female pseudohermaphroditism - Entrez-PubMed

Psychosocial sequelae - Entrez-PubMed

Sexual behavior in adolescent and adult females - Entrez-PubMed

 

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