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CAH educational info
About eight post down you will find a thread called CAH educational info. I hope you find that useful in learning about CAH. I don't know if you have CAH or another metabolic endocrine condition or any other condition as I'm not a doctor but I do wish you all the best in finding peace.
I have hashimoto's thyroiditis and celiac sprue to go along with the CAH. I'm just a girl with two endocrine conditions along with being an endocervical carcinoma survivor for three years.
I don't post as much because of my thyroid condition as I'm finding the adrenal gland conditon isn't helping it. And the researchers turned me off so I went cloaked if I'm even here at all.
Being tall and needing testosterone are two things that would make wonder about CAH besides all the pregnanancies but away I'm not an Endo and they are the ones that can give you real answers on all this if you want that or and it is your right as well to just keep writing on message boards and gathering info. You might have another type of condition or nothing at all but really have the need to talk with people on the that you think might understand your gender issues and although that isn't me......I do wish you well.
When it comes down to it? gender is a bore or a lot of fun. I'm a female with an adrenal gland condition and many times could care less about gender but to say no gender or Intersex ...nope sorry but Intersex is a physical description of externally a very small part of a small portion of my adrenal gland condition. People that need intersex as a moniker? that is cool and their business and mine is helping others learn that CAH is a metabolic endocrine condition similair to Addison's
My records back in the day stated female- pseudo hermaphrodite secondary to CAH.
I couldn't be mannish or a guy if I wanted to but I am a strong female and that makes me stronger than some men emotionally .
I imagine people with CAH merge to another gender a little more than it is reported in research even though there has been extensive research done on extremly vilized females like me and was found that mergeing to the next gender isn't much different then people without CAH and could that be different now? sure......but you don't know if you have CAH or anything else and on a seperate note it's your choice about what gender you need no doctor can tell you no ...becuase you are an adult and your medical care is up to you.
Prader scale of 2 is normal sorta larger.
I was born with as they say a prader scale of 5 and I voided thru a phallus clit ...... like a blow- up ballon ........ay that wacky adrenal gland. Thus surgery needed to fix what the cortisone lacking adrenal gland did. Surgery could of waited a bit but they meant well.
I wish you all the best in your life journey-
People can die from adrenal crisis and people with CAH have to naviagate the curious loking to see if this has to do with gender and maybe R you do have something or nothing and it's not for me or anyone to get upset as you are a soul just needing answers.
Last edited by Sunshine1 : 04-30-07 at 02:24 PM.
Reason: TYPO
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