My Klinefelter Syndrome story!.
I have always kown from a very early age, that I was diffrent, I was an only child. Life! was very odd to me growing up in the late 70s early 80s. I was sent to an all boys school here in Dublin, 1977. It was a rugby school hard going schooling to be groomed into being a smart and tough young MAN!
I was sent to see a doctor at the age of 13, 1983 when I had started
growing brests. Of course the Doctor said that this was a NORMAL?
He never checked for Klinefelter Syndrome. As he was a total idoit!
As I got older I did not grow out like my friends did, But I am 6'3" in height. so I always just wonderd what was going on with me, I never shaved until I was 23, even then it was just fluf, and not thick growing at all. It was very tough growing up in Ireland, I had to deal with alot of emotional issues also. But I blocked it with anger insted. becauce back then if you showed any weekness, here in Ireland you are bullied & beaten all the time by small mined people!. So I became a quick thinker, & fast runner!.
I just thought that most doctors had not a clue, so I started to use the
Internet in 2001 to reserch myself, to find as much information as I could to present to a Doctor who would listan. To what I had to say about what I thought was rong, or right with me. After 2 years I did that.
And in 2003. I found a 25 year old young doctor, who did
read the file that I gave him.
In the file was information about people
with Klinefelter Syndrome and worse case crazy things to,
He then checked me all over my body, and sent me to
see a Consultant Endocrinologist.
And then I had all the blood tests and a Karyotype test done also. So the tests came back on the Cytogenic report dated 09/12/2003. All the cells examined were Klinefelter Syndrome, 47XXY Karyotype.
My family. & real friend. & also the Gods! saved me from total self distruction with Drugs and Drink, as I ran so far away from myself!.
Because I was told that I would never have my own children.
I just snaped my emotional issues all came out at once. And I could not deal with stuff that came out at that time in my life. I had lost the plot. I had lost it totaly. to the point that I made myself homeless and with out anyone.......who could understand me and my XXY Intersex diffrent mind set!.
I just felt like I was on my own island in this life, a life sentance alown.
I was booked into a Help! clinic for 6 months stay! for putting my life back on track again. There I had time to slow down my very speeded up mind, to a slower pace of logical thinking. by strong medcation.
After 4 years, I am just back on track with my Archiectural Design contract work.
And I am 6 months taking Nebido 1000mg of testosterone every 3 months injection. As my testosterone levels went from the normal range to the low range only last year. So I am getting the treatment, I need to stay in the healthy range. So I am looking forward to the future once again.
I also had a DXA scan of my bones. and its all good. That makes me happy, somthing positive for a change.
So there is always light at the end of the Klinefelter Syndrome XXY47 tunnel!
Thats why I am here. I am here to help others with Klinefelter Syndrome In the way, I was helped by many of other XXYs Klinefelter Syndrome people over the past 2 years on other International, Support Forums for Klinefelter Syndrome people.
This is my story. Justin
