Looking for XX CAH Men

[Priestess]

Agreed. The last specialist I saw, an endo who was supposed to be treating me for the apparent symptoms of adrenal insufficiency ... He openly lied about my test results, I have the lab reports and his report ... and he spent all my visits questioning my "gender" ... And thinking of mad-scientist experiments to try to raise my androgen levels, which failed but he lied about the failures as well.

[RSR23]

In early winter, I posted an introductory story about myself. All of the pieces seemed to fit, that I had been born intersexed, and that I had been subjected to surgery as an infant. Raised as a female, I even gave birth to a son (I awoke the morning after childbirth to find a group of interns staring at my crotch and writing in their notebooks, while their instructor said "A most unusual case..."

I could not find any actual confirmation about my condition from my mother (all I got from her were vague statements about a problem "down below" when I was a baby). I was afraid to approach my doctor, even though other doctors in the past had asked me "When did you have reconstructive surgery?"

You, the members of this group, have been very kind to me, and gave me much encouragement via posts and emails after my post in November.

The reason for this current posting, is that I wanted to relate the amazing information that I received this past week from my family doctor. I was talking to him about my 86 year old mother, who has been in and out of hospitals and a rest home this winter, after falling at home. She was diagnosed with paranoia while in the hospital...

I was a compliant child, who grew up to be a compliant adult, who constantly (at least once an hour each day) checked in with my mother. When my mother could not get in touch with me one day last month, while she was at the rest home, she went into a tirade, and, in front of my doctor, told him and all of the staff about my intersexed birth. She said that I was born as a punishment from God, and that she needed to keep me by her side, lest I be killed or injured in a hate crime!

The doctor says that she tranferred her feelings of paranoia (which apparently she has had since birth) to me.

This episode enabled me to have an honest talk with my doctor about my intersexed state. He says that I definitely had genital surgery in my childhood. I intend to make another appointment soon, to discuss health ramifications about my condition, and to finally find out for certain if, indeed, I have CAH.

I feel like my life has been turned completely upside down, yet, I am frankly relieved that all of my suspicions are in truth, based on fact.
I am also relieved that I can tell this news to people who understand my situation. Thanks for reading this very long post!

[RSR23]

In November '06, I posted an introductory story about myself. All of the pieces seemed to fit, that I had been born intersexed, and that I had been subjected to surgery as an infant. Raised as a female, I even gave birth to a son (I awoke the morning after childbirth to find a group of interns staring at my crotch and writing in their notebooks, while their instructor said "A most unusual case..."

I could not find any actual confirmation about my condition from my mother (all I got from her were vague statements about a problem "down below" when I was a baby). I was afraid to approach my doctor, even though other doctors in the past had asked me "When did you have reconstructive surgery?"

You, the members of this group, have been very kind to me, and gave me much encouragement via posts and emails after my post in November.

The reason for this current posting, is that I wanted to relate the amazing information that I received this past week from my family doctor. I was talking to him about my 86 year old mother, who has been in and out of hospitals and a rest home this winter, after falling at home. She was diagnosed with paranoia while in the hospital...

I was a compliant child, who grew up to be a compliant adult, who constantly (at least once an hour each day of my life) checked in with my mother. When my mother could not get in touch with me one day last month, while she was at the rest home (I was taking a class), she went into a tirade, and, in front of my doctor, told him and all of the staff about my intersexed birth. She said that I was born as a punishment from God, and that she needed to keep me by her side, lest I be killed or injured in a hate crime!

The doctor says that she tranferred her feelings of paranoia (which apparently she has had since birth) to me.

This episode enabled me to have an honest talk with my doctor about my intersexed state. He says that I definitely had genital surgery in my childhood. I intend to make another appointment soon, to discuss health ramifications about my condition, and to finally find out for certain if, indeed, I have CAH.

I feel like my life has been turned completely upside down, yet, I am frankly relieved that all of my suspicions are in truth, based on fact.
I am also relieved that I can tell this news to people who understand my situation. Thanks for reading this very long post!

[Peter]

As the old saying goes, "the truth comes out in the wash". The story of your mom's revelation is pretty remarkable. I don't think that you are a punishment from g-d. I am glad that you and your doctor have been able to have an open discussion, and that your doctor is open to helping you find out more about your body and your past.

Peter

[RSR23]

Thank you, Peter. After many years of wondering, and two years of intense searching for information about my birth, it was amazing to get answers in such a bizzare way.

I don't consider my birth a punishment, either, and actually feel much better about myself, now that I at least know the truth.

I realize that CAH comes with many related health problems, which will be a source of great concern, but I still think that it is better to know the name for my condition, than to have health problems without any idea of their cause, and how they interrelate.

I appreciate your kind words! Thanks again!

[Glenn]

"She said that I was born as a punishment from God"
you too?!?!? We should start a club!