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General CAH Forum Connect with others that are interested in congenital adrenal hyperplasia. Any topics related to CAH may be posted here.

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  #1  
Old 04-28-07, 02:17 PM
Peter Peter is offline
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Hi Rycharde,

You might want to check out the Google Intersex Forum. Only your doctor can give you a diagnosis of CAH. A significant number of people who are XX CAH live as men, and have only recently become the subject of serious medical research. You might be able to connect up with them through that forum. I think that both BLO and the Intersex Forum are valuable sites, and I can see you casting your net as wide as possible in the search for information. There are also CAH specific support groups, but they seem geared more towards the parents of children with CAH or people who have a diagnosis of CAH.

Peter
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  #2  
Old 04-28-07, 03:26 PM
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Rycharde Rycharde is offline
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Thanks for the help Peter.

I am still scared to get a diagnosis but I think talking to some CAH XX men would help. Now that you mentioned where I might find some I will try to connect up with more people in more places.

I will see how these guys have dealt with being male and wanting to have high testosterone and be healthy while dealing with CAH.

After I learn a bit more about that I might feel secure enough about this to go for a test and see if I have CAH.

My first step when I feel more secure is to call my clinic that did my bloodwork and ask him about my test results and CAH. Get his response on it and see if he wants me to get more tests done.

OK-Pregnancy, how does it effect CAH testing?

Can someone who is pregnant or nursing be treated for CAH?

If I DO have CAH maybe I can stabilize my condition without testosterone while nursing my baby so I can nurse for longer than 3 months.

My Social services worker wants me taking testosterone as soon as I can because she knows my mood without it is unstable. I refuse to nurse for less than three months with my baby because he deserves a good start and I just happen to be the best parent in the world.
But what we don't need is me being mentally unstable after my pregnancy hormones cool down.

But I could nurse for 6 months without taking T, lose the baby weight, lose the breast weight and start my kid off super good if I could take cort or something to make me not such a mean freak. (thats how I describe myself, short of using the B word when I'm not on T!!!)

DON'T SAY GET DIAGNOSED FIRST. I WANT TO THINK ABOUT THIS BEFORE HAND!
I KNOW I NEED TO SEE A DOCTOR, I NEED YOU TO HELP ME GET THE FACTS FIRST BECAUSE I AM AFRAID!

If I learn everything about CAH and I don't have it then at least I learned ok, I want to know, please, just help k?

Thanks again Peter!
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  #3  
Old 04-28-07, 04:04 PM
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Rycharde Rycharde is offline
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Peter can you tell me where to find the other one on Google. >Lost< Thanks!
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  #4  
Old 04-28-07, 05:34 PM
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apple apple is offline
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I am sorry you have been misunderstood Rycharde, but really you have have misunderstood some of us also. Basically, I found it offensive the way you so rudely dismissed Miriam, when all she did was try to help you.

Please go here and see what I mean. I think it may help.

http://www.bodieslikeours.org/forums...3194#post13194
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  #5  
Old 04-29-07, 01:04 AM
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Rycharde Rycharde is offline
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I'm sorry I dismissed her. But she was VERY rude to me before. I know she is just trying to shoo me off.
I know she thinks I'm just a messed up tranny and I know your experiences with transsexuals being rude to people who are IS. I know Miriam feels this way about me and I know I will never change her mind.

She has insulted me and called me wicked names and I won't hear anything from her.
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  #6  
Old 04-29-07, 02:09 AM
Peter Peter is offline
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Google Groups

Hi Rycharde,

In the Wiki article on Google Groups, you will probably everything you would want to know about Google Groups, including how to join etc.

The link is: http://en.wikipedia.org/wiki/Google_Groups

The forum is the Intersex Forum.

I hope that this helps.

Peter
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  #7  
Old 04-29-07, 02:58 AM
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Rycharde Rycharde is offline
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Stayed up a little longer...yes Peter it did. My membership is pending approval.

Wish I could find an XX CAH who identifies as male, perhaps even in Canada to chat with about having XX and CAH and being male.
I know Alberta Canada covers surgeries for intersexed and transmen (grouping them as one) because my friend did that. He was not CAH he had undescended testes and I don't know what that makes him but different from most trans men.

I am just scared that getting a firm IS diagnosis will prevent me from heading in the direction I see myself heading in life.
But after tonight especially I need to look into treatment and diagnosis. Things are getting out of hand in some areas and becoming ever more serious in others.

Thanks for all your help.
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  #8  
Old 04-29-07, 03:21 AM
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apple apple is offline
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Quote:
Originally Posted by Rycharde View Post

I'm sorry I dismissed her. But she was VERY rude to me before. I know she is just trying to shoo me off.

I know she thinks I'm just a messed up tranny and I know your experiences with transsexuals being rude to people who are IS. I know Miriam feels this way about me and I know I will never change her mind.

She has insulted me and called me wicked names and I won't hear anything from her.

Rycharde I am listening to you, and I am making a real effort to understand how you feel. I mean only good toward you. I am not condemning you. I am just trying to clue you. So be a big boy and listen and learn on this one.

... pause ..... gone reading for minute ....

I just went and read your thread, "Just Stumbled In", and I have a few words for you.

I am very sympathetic to Miriam regarding your previous argument with her. You do seem unwilling to listen, and you appear unwilling to consider the perspectives offered by others. She asked you a very good question before, and you just blew her off! That is very provocative, insulting - fightin werds - as it were. Get my drift on that?

She asked you this gem of a question.

"Why do you want me to share that I have XY chromosomes .... with e.g. [for example] an immigration officer .... if you don't want to share what's in your pants with the guy that sells you porn/smokes/beer etc?"

That is a great question, not just a good one, and it is also a fair question deserving a fair answer Rycharde.

Yet in response you did nothing but whine like a baby, wrongly claiming victim status, and then you made stupid sexist remarks in your weak attempt to belittle her. You only succeeded in making yourself look small however.

Here is some of what you said to her.

"I'm digging for answers, just like you were at one point in your life and just because I've kicked up a little dust and gotten your dress soiled a little gives you no right to sling hateful or cruel words at anyone.

You might think to be miss high and mighty because you have this and that and have solidly fit yourself into a normal gender role in society dispite your challenges but there are some of us who accept that we don't have to."


That is just plain wrong.

If you equate making childish, rude, asinine sexist remarks trying to belittle women, with manliness, then ..... well, .... suffice it to say that nobody is stupid enough to mistake that sort of insecurity driven bluster for macho, ..... and you shouldn't either.

I know you are scared right now, and frustrated, but you need to GET A FRIGGING GRIP DUDE. You have a long way to go, and you cannot get there the way you are going.

I suggest that you also begin, right frigging NOW, to work very hard to find out what your problem with women is.


You should apologize to Miriam. You wont even begin to earn my respect until you do.

Last edited by apple : 04-29-07 at 03:35 AM.
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  #9  
Old 04-29-07, 11:32 AM
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Rycharde Rycharde is offline
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Why don't you post that on the thread it's concerning or message me in private instead of on my thread where I'm asking for help.

I'm not even reading it because it's OVER. Get over it.

Dismissing people? YES. I'm emotionally unstable enough as it is that I don't need your BS or hers so go tell it to someone who cares to listen because that is not me.

If you have HELP to offer me in finding what I need to find then I'd be more than willing to sit and listen to you for hours.

But if you are going to start DRAMA, shove off. I don't argue, I don't fight. You will NOT change my mind on ANYTHING.
I will not argue with you because it's wasting my time.

I'm Here To Learn. Not Start BS. So Go Away and Stop Calling The Kettle Black.
There is NOTHING to gain from what you are posting. Just stop, I DID apologize and it's over.
If YOU can't get over it thats your problem don't go starting more with me.

I've chosen now to ignore any other malicious or harassing posts on the basis that I have said sorry many times and I feel that any other posts about this are HARASSMENT. So shove off, I'm trying to get help here.
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