A member suggested I may have CAH

[Peter]

Originally Posted by apple

I never felt comfortable using PM's, and so I didn't use them much. It felt like I was one of those people at a public meeting, who constantly gossips under their breath to their immediate circle instead of honestly speaking, forthrightly, so that all can hear.

On the one hand, I guess I really misjudged people here, and then again it appears I was spot on all along.

Hi Apple,

I will speak honestly here. I did send Jon private messages after he contacted me privately about his situation. After several messages, where I stressed Jon’s past statements of love and concern for his partner, I gauged that I could say what I wanted to say without fear for the safety of his partner Chris. When dealing in cyberspace, we are dealing with possible problems that are much worse situations than the masturbation that Dana mentioned. There is the possibility of homosexual panic and violence. I believe in situational ethics, where the situation helps inform what is ethical behavior under the circumstances. If you see me as a dishonest gossip, then I guess that there is not much I can do to change your opinion of me.

Peter

[Rycharde]

Thanks Sunshine, I'm trying to get an endo right now, seems that they all want to treat people with diabetes and a lot of them specialize in certain disorders and only see people with those disorders. Hard enough to find a dentist that will accept my disability coverage, now I've got to find an endo >.<

Well I did have a lot of tests run on me by my nurse at my gender clinic when I was getting testosterone.
(again no I'm not a tranny, I like T because I live as a male and have most my life and I feel better on it)

I asked him to check and see if there was anything that would tell him for sure no, or maybe yes, and if he could send me for more tests. He is not an endo BUT he works solely with IS and TG patients through endos and doctors in the city without patients having to see several specialists on their own.

What does height have to do with CAH? Height is so variant depending on how tall your family is. Guys in my family are from 5'7 to 6'1 and girls are from 5-5'5. I don't know what you can personally determine from knowing that but if it helps to know. Most women don't break 5 in my family but mom and aunt 1 are 5'7

[apple]

Originally Posted by Peter

Hi Apple,

I will speak honestly here. I did send Jon private messages after he contacted me privately about his situation. After several messages, where I stressed Jon’s past statements of love and concern for his partner, I gauged that I could say what I wanted to say without fear for the safety of his partner Chris. When dealing in cyberspace, we are dealing with possible problems that are much worse situations than the masturbation that Dana mentioned. There is the possibility of homosexual panic and violence. I believe in situational ethics, where the situation helps inform what is ethical behavior under the circumstances. If you see me as a dishonest gossip, then I guess that there is not much I can do to change your opinion of me.

Peter

Oh no. Not you too. No I don't see you as a dishonest gossip. In fact, I think you must have gotten my share of "social talent", along with many other people's as well. I see you as very socially adept.

No worries I hope.

I have come to the inescapable conclusion that I am so lacking in such that I must get out of here and stay out before I start or riot or something.

Really very sorry. I should make that my siggy, but I believe that what is there now is more important.

[Rycharde]

Thanks apple for clearing that up, I also too have misunderstood others. I think we all need to use my #1 rule in life. Never assume. Not gender, not sex, not purpose.
I honestly do believe I have CAH, I don't want to have it and I hope I am fine and normal.

I know I have prador 2 genitals. I know there is another cause for this now which (spelling) polycistic ovaries? Something like that?

Whats that? I don't know the spelling to look it up. I was told by a health counselor on the phone (medical crisis help line) that she doubted I had that because I have kids.

I am having several other major problems, pregnancy has increased my sex drive even more and I can not take my urges right now. I hurt myself to the point of severe tissue damage and bleeding. I'm scared because I can't control that. I can't control my apatite and I've gained too much during this pregnancy. Throw that in with constant, ever ever constant heart burn and my anorexia nervosa that keeps coming back and screwing with me, probably because everything I eat makes me want to be sick. I'm hungry and food disgusts me but I force myself. I'm not doing well at all. That added to the fact that my energy level goes from bed ridden exhausted to unable to relax and sometimes I can't even wake myself up.
To add to that I can't get to sleep sometimes because I pierced my labret and it ate a hole through my lip and it's so bloody infected that my lip is swollen. The post is like a T with a ball at the bottom and the top of the T ate into my lip and almost broke the outer skin in one night and I lost my stainless plug for my ear and I'm allergic to the acrylic one I have *cries* I am not doing good!
I have too much muscle on my stomach, my abdominal wall won't move, my hips hurt and haven't grown apart very much. The pressure on my back is too much to take and I just don't want to be alive at this moment but I know I'll be ok in 3 months.

I hope that if I get diagnosed with CAH that some of my problems will be lessened by treatment but I know a lot of my issues are totally not related, like my paranoia of a kidney stone * dies * It better just be extra pressure from the baby that is giving me trouble in the washroom. I am so sick and so worried about everything.

I just needed to rant, sorry, but that got a lot of stress out. Thanks for letting me get that out!

[fraulein_Maria]

I know I have prador 2 genitals. I know there is another cause for this now which (spelling) polycistic ovaries?


PCOS= PolyCystic Ovarian Syndrome. first, a Dx of PCOS does NOT exclude CAH, they often happen togther. You have had many ultra-sounds. If you had PCOS, it surely would have been seen on these. second, CAH's XX'ers are NOT infertile, they have difficulty maintaining a pregnancy (not the same as infertile) so your hot-line person is uninformed.

And your stones are NOT unrelated. salt-wasters typically suffer from them.

As for height, CAH's typically experience Adrenarche (the first sign of puberty in BOTH genders is body hair caused by.... androgens) extremely early; closing the epiphysis, and stunting growth. so you seldom see a CAH over 5'4.

The mistake folks make in judging a medical condition, is the erroneous assumption that an individual MUST have EVERY symptom, and that those symptoms MUST fall within a statistical average.

It is not necessary to have a temp. over 101 to get a dx of an infection of some sort, and be treated with an anti-biotic. Because 98.6 is a statistical average. therefore, for some folks, a temp. of "merely" 99 IS a fever..... and combined with other symptoms IS an infection...

and no doctor worth his salt is going to let you die of septicemia, just because you don't fit his pre-concieved notion of what a fever is.

[Sunshine1]

Dear R-

I wish you all the best wish this and you are really looking which is always good. I look into my Hashi thyroiditis just like you are looking into this stuff. Side note: I have PCOS and I'm not a Doc but I don't think you would be pregnant with that.

CAH is lacking the ability to make cortisol and adrenal crisis.

Early puberty starts from no treatment or lack or supression which causes short stature. People with CAH take cortisone to help make up for what the body wasn't able to make.

100 in a hundred people have late onset CAH.


1 in 12,000 have Salt Wasting CAH 21 hydroxylase and 1 in 100, 000 have Simple- Virilizing CAH besides other types of CAH.


I'm not a doctor or nurse as they in reality are the only ones that can help you explore this if you choose to. I'm just a security guard that just gave you some info about CAH and how cool if others could give you info about their conditions or experinces.


I did understand what you meant that you wanted more testosterone but still wanted female qualities as with CAH the testoserone is waht they want to limit. I went through menopause becuase of the cancer treatment and really it was great and I wonder if that was becuase of declining estrogen.

Maybe needing to be a dual gendered person is what you are looking for?

I worked with people that transed (they were just normal people that were born in the body that wasn't for them) and they were every bit the gender they were meant to be once medically helped like any other condition but you spoke of both which would say that isn't really someone that wants to trans but rather to me dual gender or even pan gendered.

I'm female with an adrenal gland condition but I'm not that insitent about gender although I could never be male or dual or pan - Although I've come across people like this and one is a peace with themseleves but also with those that fit the whatever gender norm is ....sometimes I'm sad that I can't always be like them but neather are they really becuase gender is a spectrum.


You have every right to search and ask questions and have a a journey to peace.

I come here every so often but my thyroid condition (hashi's) is at the place I am now but I hope that I've been a good positive guide for the time being.

[neko2]

Rycharde -
I'm a little confused about what you said... You want to be on T, but you can't tolerate high libido? If that's the case, maybe you'd want something other than testosterone.

What you're describing about being exhausted but unable to relax and get to sleep sounds like CAH. If you become hypoglycemic due to lack of cortisol, then your body will produce adrenaline and you will get into that situation where you are tired but can't sleep. Have you ever tried taking hydrocortisone when you feel like that?

[Sunshine1]

Hey R-

Needed to add this one as it's my thing now

and you did write about being around the Toronto area which one could streach to the Goiter Belt of the Great Lakes ......and I'm getting there did you ever have your thyroid checked for anything like Hashimoto's thyroiditis or Graves disease or even diabetes? cause then you could go to an endo and then get a little more confortable and also then bring up CAH or any other hormone related condition. Just be yourself Ok

I think it is always good to learn about different conditions - this is a link to http://caresfoundation.org an organization for CAH - they might be able to recommend a CANADIAN Doc or answer any CAH questions that you have for yourself or your kids and this link is about adrenal crisis http://congenitaladrenalhyperplasia.org/people.htm

Also, the pictures of you and the kids were cute

take care....I'm off to thyroid land.

[Rycharde]

You have been an amazingly positive guide Sunshine!

About my gender, I would say it is male for certain, however, I don't care what my body looks like as long as it is healthy.

I do want to be seen as male. And I want my body to feel right for a man. So I think taking testosterone will help with my male secondary sex characteristics. I love the feel of the scruff on my face *blushes* and I get a kick because I'm pregnant and my friends are like OMG in shock when they see how hairy I am *giggles*
There are a few strong things like my hair and muscles that show I am very masculine that stick out despite my pregnancy. I do appear female right now apparently. That's fine if people want to assume, but they've assumed wrong!

I like my female body. I like my little penis and I like having babies. On T I like it even more, when I'm in shape I love myself endlessly.

I'm short, cute and sweet, but I have gorgeous compact muscles and I have a feminine waist with a masculine torso and shoulders. Big arms and small legs with many wonderful options for sexuality. I think I am the perfect person.

Dual gendered, no, dual sexed, Yes.

I like how having higher testosterone makes me muscular, how I smell like a man, how I am more man-like physically. I will never be able to close up my vagina, or mutilate my genitals to become something I am not, and a half-done job of it at that.

I would like one day to look into surgery to join my phallus and meatus into a more normal phallus but right now, let's get healthy! (and get a degree so I can get a job in Alberta where trans and IS surgeries are covered!)

In short yes I'm pretty much female, and I accept it as the body I was given. I was also given a male gender, and I feel best as a he, even if I have to live in a she. Put up some paint, make her look more manly and I'm at home right where I am.