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  #1  
08-20-02, 04:00 AM
Betsy
Gadabout
 
Join Date: Mar 2002
Location: In denial
Posts: 1,192
Dex and CAH

Wondering what you think about the use of dex prenatally for the treatment of CAH and prevention of virilization. I see it as a quick fix for parents hoping to avoid their own discomfort of virilization. The few studies that have been done indicate side effects like small heads, severe bone loss. Yet, once again, just like surgery they tell parents that it is the cure-all for ambiguity and don't have any long-term follow-up studies to prove their point.

Betsy
  #2  
08-20-02, 09:48 AM
Sue
Guest
 
Posts: n/a
Question another question!

That's an interesting question, suprising how often doctors act like something is a known cure when they havnet done the research on it yet.

And I guess this is a little off the original topic, but what about in treatment? How does dex compare with cortef or anything else? I am on cortef and wondering what others are on and how it works.
  #3  
08-23-02, 12:23 AM
Dandara
Executive Director
 
Join Date: Mar 2002
Location: New Jersey
Posts: 16
Sue,

Most days I take 8mg of prednisone a day. If I recall correctly, I was switched to pred when I became pregnant with my daughter 13 years ago. I've gotten fairly wise over the years regarding my meds, take more if I'm under intense stress, know the signs if I need more.

Long term, the side effects from prednisone is about the same as others.

Good Luck.


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