de la Chapelle syndrome

[imdeadindeed]

can anyone link me information about this or point me to a forum or some kind of message board for it? i am so terrified right now and google barely tells me anything.

[peaceandparty]

hi

i have equally heard nothing about this

and lately -a lot of people tell me that i havent a clue about many syndromes

but the thing is i know about people
and the other thing that you have noted for me....here-----lol-thanks
is that:

many many people havent a clue about lots of things
and the internet...the global internet is still way behind
we are all here talking about syndromes and medical labels that doctors or whatever like to call us

and in the end
we still go nowhere-fast

its time for people who know of these things in any shape or form---to speak out

suffering is the main outcome because of lack of adequate information

in writing this.....i absolutely hope people can read into my frustration and possible anger on this issue of many humans walking this earth not having enough information available to them

i should also say that i presume there will be a syndrome called coleman syndrome soon,because i have my own conclusions just like these so called experts have theirs

if you know anything about it-then i will slowly but surely do a simple video

[JOS]

It sounds like we might have opposite syndromes to each other
I am female with XY chromosomes and I found out that de la Chapelle syndrome is also called XX male syndrome....

http://www.medterms.com/script/main/...ticlekey=25059

but I'm guessing you'd already found that much out for yourself.
I look like a normal female except I'm taller than average (6'1) and a few other small things that you can read about if you're interested when you've got your head round your own stuff.

I found this on Yahoo

http://www.bookrags.com/research/xx-male-syndrome-wog/

don't know how much extra it will tell you but it might give you some more
things to look up? It's all quite daunting at first isn't it but I highly recommend you stick with it cos the more you find out for yourself, the more you can get out of consultations with your doctor.

Anyway welcome to BLO and I hope we can help each other out along the way
JOS

[peaceandparty]

wow...you see!

thats amazing!

and i have found and met on the internet an xxy "female"

so if the human race could ever stop with this idea that we are all just males and females

i think we could all get on with our own lives and forget what are chromosomes are
sometimes i wish i had been born in the caveman days,and not know anything about our bodies
plus they didnt have mirrors
and all in all i dont think they were so caught up in sex and gender like us
but we have to be because societies leaders expect us to conform into one gender role
and i for one will always state proudly...i was born this way.....and if society dont understand-its because the truth is not being taught!
this is another type of vent.....my mood is:just got up an hour ago-and i am a little more narky than usual-just so you all know where i am coming from

[JOS]

that intersex persons in ancient times were though to make powerful shamen and were often venerated.... maybe that's why there are hermaphrodite gods in many cultures?

[Wyn]

but unfortunately, not so. In some native american cultures, yes, the androgodyne was considered a great omen for the tribe, and the family in particular.

However, while most tend to think that Greek and Roman cultures had a similar adoration of the androgodyne (hermaphrodite), in reality, this was far from the truth. In many instances, infanticide was common, and this is also true even here in the US, up until about the '20's and '30's, dependant on where you lived.

Even now, in major parts of Africa, where these conditions are more common, infanticide is the normal reaction.

What else am I to say... cultures tend to do things that are not necessarily in their best interest, particularly if it means altering their world view. And this is particularly true with the monotheistic cultures - Judism, Christianity, and Islam, all of which are founded on the basic principle of a unitary Male God.

At my psychiatrist’s suggestion, I’ve begun reading a book by June Singer, PhD, called “Androgyny”. It has truly been an eye-opening view of sexuality through history, although the reasons for its writing were not in terms of Intersex conditions. Actually, this book was written in the mid-70’s in response to the then-in-vogue open discussions regarding “women’s liberation”, and the parallel, “sexual revolution”. Singer felt a new paradigm regarding sexuality was in order, and this book was her attempt to address the issues of her day as a completely new and reasoned approach to the challenges created by conflicts of opinion regarding the women’s liberation movement.

Truthfully it is a philosophical tome, drawing upon historical and religious references to pull together a rather complete, albeit a somewhat dated, point of view regarding the divisions between the sexes. The concept of a matriarchal vs. a patriarchal society is central to her theme, and can be seen to be a driving force for the world’s current and past conflicts.

However, it is pointed out that in times past, there have been instances of widespread matriarchal societies and, for the most part, these cultures appear to have been rather peaceful, benign, and beneficial to the well-being of human existence in general. That patriarchal ideas have dominated the landscape for the majority of recorded history reflects the fact that this world view tends to produce a rather aggressive and violent culture, and results in much suffering and tragedy in the population.

Furthermore, the current patriarchal dominance is the direct result of these matriarchal cultures being over-run and dominated by the violent actions of the patriarchal adherents.

In terms of Intersex conditions, the patriarchal view, initiated and promoted by monotheism, needs elimination of any reference to the connection between the sexes. This is the only way that the male can overcome the natural subjugation of his will to his mother and, instead, imposes the concept of a ‘Father’ as being the origination of all creation. However, in truth, and as pointed out by Singer, this puts the ‘Father’ in the position of being a ‘hermaphrodite’, as only females can bring forth life, but the practitioners of this patriarchal view can only see what they wish to see.

So, it should be of no surprise that what is happening to children with IS conditions is a direct reflection of a dominant monotheistic and patriarchal society, determined to root out all connections between the feminine and masculine sides of it’s existence.

[Sofie]

Go to
http://scholar.google.com/
and search for
"De La Chapelle syndrome" (with! the quotation marks)

[peaceandparty]

hi win and sofie and all!

hope everyone is well!!!....are you?

interesting read-wyn!

didnt get all of it...because i dont speak or write english like that...its too intricate and complicated
plus-to educate the most important students(children),i need simpler language use
i,myself, had many problems in school
to do with concentration and using huge words
thats probably why i speak a lot,and why i dont read a lot of books because i like to read the words of the "common man"

wyn -you hit on some good points!
the whole thing of the christian god been seen as a man
and
the whole divisions of the sexes thing too

interesting read!
jos -that was good too!

and sofie-thax for that info!

la chapelle and klinefelter and turner and all the other "great" discoverers
are a disgrace to state precise symptoms and leave no room in the minds of medical students who then become doctors,for believing and understanding that intersex peoples can vary completely or partly from the symptoms given to any one syndrome

also

another point is that
i cant understand how people can believe in a god that is a man
i can understand you believing in a god-because i do too!
but not in a male god
because that just doesnt make sense

there is also a sense of feeling from women now in general that due to their independance from the slavery of men that they have finally found out that they are greater than many men,and could make great presidents and we as a society tend to celebrate the first woman president of a country and evn go so far as to say sometimes-the first gay mayor! or the first black world bank president......

i would love to see this stop
and to see people for people
and not categorise them as
male-female
black-white
straight or bent

one thing that could change all those mindsets is if you tell everyone at once through international television...that there exists people who are in between the sexes in the meaning only that we are not total male and not total female...meaning we are not saying we all have two sets of genitals and that we are not all gay.....but even if we were that we are part of planet intersex and we are people just like them after all
but i think letting everyone know that even the basics of their language structure is too rigid and structured badly in this realistic world of differnt species.....so many languages call their furniture(tables and chairs)male or female...rarely there is a neutral form....but there is a neutral form-so i think basing our factual information on info that they(the worlds people) already know and share regularly with themselves would be a good start

scientists love writing about new species discoveries in the world of nature

so lets get them all into the project

lets get together right now...in sweet harmony

[panduwinata]

Wyn,

Nicely spoken! But I'm afraid I must refute a few statements here:

Originally Posted by Wyn

What else am I to say... cultures tend to do things that are not necessarily in their best interest, particularly if it means altering their world view. And this is particularly true with the monotheistic cultures - Judism, Christianity, and Islam, all of which are founded on the basic principle of a unitary Male God.
...
So, it should be of no surprise that what is happening to children with IS conditions is a direct reflection of a dominant monotheistic and patriarchal society, determined to root out all connections between the feminine and masculine sides of it’s existence.

It is in fact not true that Islam has a unitary Male God. Unitary, yes; but our God is declared in the Koran to be "a genderless substance". Yes, most English translations of the Koran refer to Hir as "Him", but only for lack of a better translation. (Gender-neutral language such as "Hir" isn't popular with translators of religious text, I guess )

Islam as a religion was once a very non-patriarchal religion. The Prophet himself, although male, was the first person in his day to fight for the freedoms of women. And, believe it or not, there are laws in Islam for intersexed people as well.

The intersexed in Islam are called "khuntsa". We khuntsa have our own rituals and rules which are completely different from women (called "akhwat") and men ("ikhwan"). Effectively, there are three genders in Islam. Khuntsa, akhwat, and ikhwan. Intersexed, female, and male.

I know what you are probably thinking: Are we talking about the same religion here? Islam seems to be an immensely male-dominated, extremist, unyielding religion. That's true. The *current* Islam discriminates against women (and the intersexed) intensely. The current state of Islam is dire: Terrorist Imams rule the religion, preaching hatred against the gender-challenged; women are treated like third class citizens, forced to wear thick veils wherever they go; feminism is a dirty word; homosexuals are beaten and lynched.

But this has not always been the case. If you look at the earliest history of Islam, you'll find that the religion first drew adherents because of its respect for women.

Islam has been hijacked by the dominant patriarchal society you mentioned. It is the religion's luck to be founded in the most patriarchal society in the world: Arabia. This is the region where, before Islam, female babies are buried alive with their placenta. The patriarchal society has skewed the religion to its views and needs.

An example:
Before the founding of Islam, men in Arabia are allowed to take as many wives as they like. Then Islam came along and limited the allowed wives to 4, and even then said "If you cannot be fair to them you should marry only one". This was a revolution, especially since another chapter of the Koran explicitly pronounced, "Men cannot be fair." Which means men cannot be fair to their wives, and are no longer allowed to be polygamous.

But what happened? The terrorist Imams skewed this perfectly good rhethoric and said that the "men cannot be fair" phrase only applied to business dealings and such. The imams then declared men can take four wives, making Islam one of the last remaining polygamous religions.

Hijacking. Pure and simple. It saddens me.


What about transsexuals? Check out Transsexuality in Iran in Wikipedia. This wiki shows that transsexuality is not only *allowed* in Islam, it is in fact nearly *obligatory* for certain cases. But this is *not* a popular fact in my community.

As for the intersexed? Imams do not like to admit it, but that is one aspect of Islam that is still purely unhijacked. The intersexed are still totally welcome in my religion. And I am oh so happy that we are.



Pandu W

PS: I probably should repost this in another thread-- this is totally off-topic. Sorry. . .