Got a surgery that you know nothing about ? Parents a little vague for you ? Not to worry !!!! Because of the Right to Know Act of the 1970's, You are entitled to an unaltered copy of your medical records. Just write or call the hospital where you had the surgery done. Tell them the roughly the time period the surgery was done and for a small fee, you can now know why you have those mysterious scars on Your body!

Caution: Be sure that you really want to know this stuff, a therapist isn't included with the medical records but one sure might be helpful !

Night Crow

i've had nothing but the run around, most hospital staff that i delt with have not helped.law or not.

__________________
mutation is THE key to evolution {{{{xxxy}}}}undefined

I have learned that the surgery would have been done during a period of time that my family moved around alot, so I would need to pay for records that exist in every hospital in areas that I lived and I cannot afford that. I did find out (by way of a dr visit) that my suspicion of having "intersex hypospadia" was correct. My Dr seems to agree with my theory.

He thinks that the scars are indicative of this as well. He goes on to tell me that the Clitoris would have been enlarged enough for the medical community to have declared it as a penis, and surgery performed accordingly. This also completely explains my history of suicide attempts, acts of violence against anyone trying to force me into things, depression and never ending bladder infections.

There is more, but I dont think that the board moderators would like to have a medical symposium on here. There is enough info to write an AMA (American Medical Association) article.

Actually, that would be fine:



There aren't any restrictions beyond being polite here. In fact, it is one of the reasons for the board :p

I got your last email but on Monday and Tuesday I have a paying job in NYC and so I don't get much time to spend on Bodies stuff those days. I just wanted to let you know I hadn't forgotten about you!

Betsy

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Until you've lost your reputation, you never realize what a burden it was or what freedom really is. --Margaret Mitchell

You may be better off spending your money on tests than on records. Most IS conditions are detectable even after the "evidence" has been destroyed.

The family pediatrician had a convenient office fire. The hospital had three pages of records. They all seemed cooperative but I still got very little. Testing got me much more information.

The doctors fought testing as well. I had to pay for the initial karyotype. My doctors dismissed it as a fluke and a lab error until two others confirmed the results. And then they still refused to do the ultrasounds that the AAP protocols suggusted. A friend who teaches ultrasound finally did the ulttrasound for me gratis. It showed clearly what I'd suspected.

Shoving it in the doctors' faces hasn't helped my relationship with them but it's sure gotten me better medical treatment.

Kind regards,
Jane
xy/xo

Hi ,
I have recieved my records in life when I had found out that I was XXy. Sure the records are fine . Although it would take a chicken scratch professional to figure out what they had inputed on those white pages.
I had surgery but like most I was never told the truth.
That is when I said I will go to the doctor and get my records .
I did not have any problems getting the records .
Since then the Records are just keeping dust.
I have just accepted my being and have been trying to live a happy life.
Az1

Muhoe

I needed the names of the men that performed the clitoridectomy and vaginoplasty( I use that name loosely because it implies that it is fixed and some how looks better, it doesn't) Fore mostly, I wanted to tell them that I forgive them for what they did to me. They are nothing but puppets of the socialtal norms. I wanted to know why they went ahead and did what they did even though the psych department of the same hospital stated that it is recomended that child wait a few years on genital surgeries.( I have the records. ) I knew what I had wasn't quite right but yet it didn't bother me. I wanted then to know that they didn't make things better, they only made things worse. Today, even my Mom agrees that the clitoridectomy and vaginoplasty is causing problems in my life right know. They were lied to also, just have the surgeries and everything will be fine. My dad even read books about the subject in the library. They put their trust in the medical people of the time. The people that were suppose to know but what did those doctors care ? nothing but an experiment to them.

Wrong civilization for me, should of been an Indian.

History question.
Who was the English man that invented the clitoridectomy?
- I read it in a medical history book but I returned it. Does anyone know the answer ?

Peace to you all

I wanted to ask if surgery that is done for Klienfelter's (sp ?) syndrome XXy is similar to the outside cosmetic surgery done on people with CAH ?

Or is it mostly an inside the body thing ? I guess what I am trying to ask is that does someone with this syndrome have ok looking genitals compared with someone that has butched genitals which is the case for some of us with CAH.

I'm just trying to understand different state of "minds". Someone that has a small scar where the surgeons took something out may have a different mind set compare to someone that sees the surgeons "butcher job" every time they go to the bathroom.

I'm just trying to learn and understand. I want to know about the other "intersex" terms that are the umbrella with CAH.

Respectfully yours,

Aimee

hi Aimee and other individuals out there in a state of mind.

Yes, I am a klienfelters recepient of XXy and with surgery to correct the meaningless function of a penis , and to incorrect the opening of a vagina . ( butchered to achieve a male status )
At the time of my surgeries I was to appear to the world as a
" male ".
Although I had always felt something has never been complete within me. I was then clipped and snipped and my family was told I would be fine.
I joined this site because of my own differences that I have and had to deal with in life .
There are many individuals born with adversities everyday .
I think that this site helps the ones who have never experienced
these issues . Or who have to live life of indifference.

I came here wanting to share my feelings either good or bad.
Betsy had fulfilled my request and " Poof " I am here .
I can only relate to being in an Intersexed state of mind because that is all I know. I do not know what it is to be "male , nor female ". One day I will be az 1.

Muhoe