Part I of this
Note will examine the "paternalistic" approach traditionally
taken by the medical community in response to intersexed infants.
Part II will argue for a moratorium on infant genital-normalizing
surgery because (A) intersexuality is not a medical condition that
needs to be treated and (B) parents are not legally able to consent
to irreversible cosmetic surgery on their infants. Part III will
explore the benefits of the medical and legal shift to an informed
consent model as an incremental step toward the ultimate goal of
a moratorium. Part IV will examine the problems with current informed
consent proposals and will suggest ways to tailor those proposals
to preserve the potential for further change in the way intersexuality
is addressed. This Note will conclude by asserting that advocates
should be wary of simply settling for an informed consent approach
and should concurrently push for a moratorium on all genital-normalizing
surgery until the medical community can demonstrate a medical need
for "treating" intersexed infants without life-threatening
conditions.
I. THE TRADITIONAL PATERNALISTIC TREATMENT MODEL
Until the late
1990s, the medical community viewed an intersexed infant as an anomaly
that required surgical correction. After surgery, doctors would
assure parents that the anomaly was corrected and that, based on
the doctor's determination, the child should be raised as a girl
or boy. [FN12] This model considered sexual ambiguity unacceptable
and a "psychosocial" emergency (as opposed to a medical
emergency) because "parents and clinicians are uncomfortable
with the sexual ambiguity of the child." [FN13]
A. JOHN MONEY AND THE ORIGINS OF CORRECTIVE GENITAL SURGERY
Much of this
early paradigm was based on the work of one man: John Money, Ph.D.,
a psychologist and sex researcher at Johns Hopkins University. [FN14]
Money viewed parents as passive participants in the decisionmaking
process regarding their intersexed infant; doctors were to make
decisions regarding surgery and sex assignment. [FN15] Money believed
that the "nurture" of a child was the most important factor
in establishing the child's gender identity. [FN16] In order to
properly nurture the child, the sex assignment of the child needed
to be established *132 immediately and the external genitalia had
to conform to that assignment. [FN17] Proponents of Money's model
believed that the "normal" appearance of the genitals
was an essential factor in childhood gender and psychosexual development.
[FN18]
Money based
his research on his 1960s John/Joan case study. [FN19] As a baby,
John's penis was accidentally burned to ablation during circumcision.
[FN20] Based on his belief that individuals are psychosexually neutral
at birth, Money recommended that John be raised as a girl. [FN21]
Money believed that because it is more difficult to construct male
than female genitals, the decision of sex assignment should be based
almost entirely on the size of the phallus. [FN22] Because John's
penis was almost completely destroyed, the decision to perform "feminizing
surgery" was made, and John was raised as Joan, ostensibly
to great success. [FN23]
B. DISCREDITING THE PATERNALISTIC SYSTEM
For years,
Money's John/Joan case study was used as evidence that raising intersexed
children as either girls or boys after genital assignment surgery
was a successful treatment. [FN24] However, as early as 1994, Money
himself retreated from some of his initial views--most notably,
his opinion that healthy psychosexual development is dependent on
genital appearance. [FN25]
Additionally,
in 1997, a researcher tracked down John/Joan and found that the
operation had not been a success after all. [FN26] John now lives
as a man, is married, takes testosterone to replace what would have
been produced by his removed testes, and has had a mastectomy to
remove his estrogen-enhanced breasts. [FN27] Because of his early
childhood surgeries, which included castration, John no longer has
the capacity to reproduce. His reconstructive surgery was difficult
and of limited success; he has problems with urethral closure, and
much of his penis is without sensation. [FN28]
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